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Experiences with
Implantable cardioverter defibrillator (ICD)
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New diagnosis of HF and Cardiomyopathy
I'm therefore being referred for
ICD
and my consultant mentioned a transplant if necessary. I'm scared, annoyed, sad and anxious all of the time. I'm a social worker, I love my job and don't want to stop.
I'm therefore being referred for
ICD
and my consultant mentioned a transplant if necessary. I'm scared, annoyed, sad and anxious all of the time. I'm a social worker, I love my job and don't want to stop.
SparkleandShine1
in
British Heart Foundation
12 days ago
Cardiac MRI Scan
I was referred by the electrocardiologist for an MRI to assess the scar tissue etc before looking at an
ICD
... Went along this morning and couldn't do it.
I was referred by the electrocardiologist for an MRI to assess the scar tissue etc before looking at an
ICD
... Went along this morning and couldn't do it.
DaiHatsu
in
British Heart Foundation
5 months ago
S-ICD
Hi,Had my subcutaneous
ICD
fitted just over a month ago. So thought I'd post to let anyone else having one know how it is living with one. Firstly I am doing fine, it was weird at first having a box inside me, but you soon just get on with it.
Hi,Had my subcutaneous
ICD
fitted just over a month ago. So thought I'd post to let anyone else having one know how it is living with one. Firstly I am doing fine, it was weird at first having a box inside me, but you soon just get on with it.
Sprinty_Nige
in
British Heart Foundation
8 months ago
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Scar from Cox-maze procedure
I already have a scar from my
ICD
implant and being young (ish) at 44, I'd like to have an idea of what it will look like. Not that it would affect my decision, I'm just curious. Thanks, B
I already have a scar from my
ICD
implant and being young (ish) at 44, I'd like to have an idea of what it will look like. Not that it would affect my decision, I'm just curious. Thanks, B
BeeBee79
in
AF Association
6 months ago
What's it like getting a crtd / icd shock
Give me the unvarnished truth! 😆I'm 44, very fit, have a very high pain tolerance, want to here honest experiences about people who have had the big shock... Rather than the version from the doctor, who has never experienced it. I've heard it's like being punched in the chest. But punched by who? Mike
Give me the unvarnished truth! 😆I'm 44, very fit, have a very high pain tolerance, want to here honest experiences about people who have had the big shock... Rather than the version from the doctor, who has never experienced it. I've heard it's like being punched in the chest. But punched by who? Mike
Maradona10
in
British Heart Foundation
2 months ago
recovering after ICD shock - advice about the future
I recently received a shock from my
ICD
at a mainline station in London and spent 2 nights in hospital. My device went off as I was in tachycardia which was 240-260 beats. My condition had been well controlled, following treatment about 8 years ago.
I recently received a shock from my
ICD
at a mainline station in London and spent 2 nights in hospital. My device went off as I was in tachycardia which was 240-260 beats. My condition had been well controlled, following treatment about 8 years ago.
ShaneDullerhit
in
British Heart Foundation
3 months ago
Looking for tips and experience of regaining fitness after an ICD implant for LVT.
The second
ICD
implant and lead revision seems to be healing well and it will be coming up to 4 weeks in a couple of days. I have been increasing my walking, including hills, over that time, without problems.
The second
ICD
implant and lead revision seems to be healing well and it will be coming up to 4 weeks in a couple of days. I have been increasing my walking, including hills, over that time, without problems.
Chinkoflight
in
British Heart Foundation
2 months ago
ICD and driving - how long to be able to drive again?
Investigations as to type and cause still happening.Whatever I am being advised I will have an
ICD
fitted. What are your real world experiences on how long it takes to be allowed to drive from having the implant? I have looked back for info but the threads don't seem simple or specific.
Investigations as to type and cause still happening.Whatever I am being advised I will have an
ICD
fitted. What are your real world experiences on how long it takes to be allowed to drive from having the implant? I have looked back for info but the threads don't seem simple or specific.
Chinkoflight
in
British Heart Foundation
5 months ago
Three Distinct MS Subtypes Identified
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ecd=WNL_EVE_240411_mdedge&
icd
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BettysMom
in
My MSAA Community
3 months ago
Boston Scientific IV/ICD lead problem - any experience to share please.
Has anyone subsequently had a different device fitted eg sub cutaneous
ICD
? I hope this set of questions is not too specific.
Has anyone subsequently had a different device fitted eg sub cutaneous
ICD
? I hope this set of questions is not too specific.
Chinkoflight
in
British Heart Foundation
3 months ago
Pacemakers - what is your experience? The good, the bad and the ugly...
I do not know yet if I will be advised to have an
icd
or pacemaker but thanks to everyone who responded to my post on the
icd
. Have a great day. 👍
I do not know yet if I will be advised to have an
icd
or pacemaker but thanks to everyone who responded to my post on the
icd
. Have a great day. 👍
Maradona10
in
British Heart Foundation
9 months ago
ICD therapy and reapplying for driving licence
I had an
ICD
fitted last August and voluntarily surrendered my licence. It was tough, but I did it over the phone and the DVLA person was really helpful and empathetic. I then received device therapy in October, which reset the 6 month clock.
I had an
ICD
fitted last August and voluntarily surrendered my licence. It was tough, but I did it over the phone and the DVLA person was really helpful and empathetic. I then received device therapy in October, which reset the 6 month clock.
EmmJayTea
in
British Heart Foundation
5 months ago
Mrs Mac.
He has arrhythmic type cardiomyopathy, an
icd
implant and he has been in heart failure for 7 years now. He changed his diuretic (furosemide)a few months ago due to side effect of gout attacks. The current one (bumetanide) is causing agonising muscle cramps.
He has arrhythmic type cardiomyopathy, an
icd
implant and he has been in heart failure for 7 years now. He changed his diuretic (furosemide)a few months ago due to side effect of gout attacks. The current one (bumetanide) is causing agonising muscle cramps.
ballybee
in
British Heart Foundation
6 months ago
Living with heart failure
I was in a intensive care /coma for over a week before coming round ,they were unable to unblock the artery in this time ,some damage to my heart muscle.On full medication from day one and in October I had
ICD
fitted .Just a rollercoaster of a year , emotionally and mentally still ongoing I did survive
I was in a intensive care /coma for over a week before coming round ,they were unable to unblock the artery in this time ,some damage to my heart muscle.On full medication from day one and in October I had
ICD
fitted .Just a rollercoaster of a year , emotionally and mentally still ongoing I did survive
Stag1
in
British Heart Foundation
5 months ago
Getting fit again after an ICD implant and LVT diagnosis - tips and experience please.
The second
ICD
implant and lead revision seems to be healing well and it will be coming up to 4 weeks in a couple of days. I have been increasing my walking, including hills, over that time, without problems.
The second
ICD
implant and lead revision seems to be healing well and it will be coming up to 4 weeks in a couple of days. I have been increasing my walking, including hills, over that time, without problems.
Chinkoflight
in
Atrial Fibrillation Support
2 months ago
LV Fibrillation & SCA
Just wo Deri g if anyone can relate to this, it's traumatising every time his
ICD
shocks him, it's like our lives are on hold , no previous heart problems ever, he had just turned 54 . On the second shock with the
ICD
the consultant 3 days prior changed him from sotalol to nebivolol .
Just wo Deri g if anyone can relate to this, it's traumatising every time his
ICD
shocks him, it's like our lives are on hold , no previous heart problems ever, he had just turned 54 . On the second shock with the
ICD
the consultant 3 days prior changed him from sotalol to nebivolol .
Gazania27
in
British Heart Foundation
5 months ago
anyone knows how to get a card to show in case of emergency ?
Hi all, i have been diagnosed with brugada this march, i have a
ICD
implanted and two months ago i also had an ablation but all of this happened in Italy
Hi all, i have been diagnosed with brugada this march, i have a
ICD
implanted and two months ago i also had an ablation but all of this happened in Italy
BrugadaDavid
in
British Heart Foundation
9 months ago
Do you have an S-ICD with the Latitude box? If so how often does the white heart button flash for you?
However mine flashes every monday and I'm not sure if that is normal and I also understand that pressing it too often runs down the battery in your S-
ICD
.
However mine flashes every monday and I'm not sure if that is normal and I also understand that pressing it too often runs down the battery in your S-
ICD
.
MrHocum
in
Heart Rhythm Disorders Support
2 days ago
Anyone have an S-ICD with the Latitude box? How often does the white heart button flash for you?
However mine flashes every monday and I'm not sure if that is normal and I also understand that pressing it too often runs down the battery in your S-
ICD
.
However mine flashes every monday and I'm not sure if that is normal and I also understand that pressing it too often runs down the battery in your S-
ICD
.
MrHocum
in
British Heart Foundation
2 days ago
Investigational MS Med Nearly Eliminates Disease Activity on MRI
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icd
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ecd=WNL_EVE_240606_mdedge&
icd
=login_success_email_match_norm
BettysMom
in
My MSAA Community
1 month ago
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