New diagnosis of HF and Cardiomyopathy - British Heart Fou...

British Heart Foundation

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New diagnosis of HF and Cardiomyopathy

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Hi, I've just turned 40 and was diagnosed back in February with no known cause. My EF was 15 and I am now on the highest doses of meds available including Entresto, Bisoprolol, Dapagliflozin, Furosemide and Spironolactone. I had a review echocardiogram 2 weeks ago and despite maximum dose my EF is still 15. I'm therefore being referred for ICD and my consultant mentioned a transplant if necessary. I'm scared, annoyed, sad and anxious all of the time. I'm a social worker, I love my job and don't want to stop. I heard ill lose my license temporarily after the implant and I don't know what that will mean for me. This diagnosis came completely out of the blue, I'm breathless and exhausted all the time and I'm just generally struggling to agree with people around me who say I need to be thankful they found it, I'm not there at the moment and am so disappointed there's no improvement at all despite the high dosage.

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