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Experiences with
Implantable cardioverter defibrillator (ICD)
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mirena coil ?
What’s everyone’s experience with this coil as I had my surgery and they didn’t remove anything 😫😫 just want to get rid of my pain with my period
What’s everyone’s experience with this coil as I had my surgery and they didn’t remove anything 😫😫 just want to get rid of my pain with my period
Jsrzb
in
Endometriosis UK
1 year ago
Laproscopy and hysterocopy
Hi all had a diagnostic laproscopy 19th June which removed some endo and a large cyst. Also had a hysteroscopy to remove polyps healing really well. Was told the only way to slow down recurrence of endo was to have coil or get pregnant. I've had so many issues with a variety of contraception and really
Hi all had a diagnostic laproscopy 19th June which removed some endo and a large cyst. Also had a hysteroscopy to remove polyps healing really well. Was told the only way to slow down recurrence of endo was to have coil or get pregnant. I've had so many issues with a variety of contraception and really
Hidden
in
Endometriosis UK
1 year ago
Implant or Injections
I am 21 diagnosed endo laparoscopy last year & had hormonal coil which is due for removal in December (I think it was containing my pain but now it isn’t)My pain is increasing dramatically so consultant has recommended implant or injections when coil is removed. I’m wondering how I am supposed to decide
I am 21 diagnosed endo laparoscopy last year & had hormonal coil which is due for removal in December (I think it was containing my pain but now it isn’t)My pain is increasing dramatically so consultant has recommended implant or injections when coil is removed. I’m wondering how I am supposed to decide
BT20
in
Endometriosis UK
1 year ago
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Ultrasounds/MRIs - My experience and why you need to advocate for yourself if they don’t show Endo!
Controversial take here on ultrasounds and MRIs, but I responded to another users query with the below info, and wanted to share it more widely as I think more people need to challenge their doctors when they are told the scans didn't show anything but you are still in pain. I was diagnosed with severe
Controversial take here on ultrasounds and MRIs, but I responded to another users query with the below info, and wanted to share it more widely as I think more people need to challenge their doctors when they are told the scans didn't show anything but you are still in pain. I was diagnosed with severe
dot7
in
Endometriosis UK
1 year ago
Complaining about care from Gynaecologist in Surrey
Hi everyone, I had an MRI at the beginning of this year (finally lol!). I had to make several complaints to PALs just to get a telephone appointment to discuss the results, 6 months later. I finally had that telephone appointment today, and honestly, I am feeling suicidal after how I was spoken to
Hi everyone, I had an MRI at the beginning of this year (finally lol!). I had to make several complaints to PALs just to get a telephone appointment to discuss the results, 6 months later. I finally had that telephone appointment today, and honestly, I am feeling suicidal after how I was spoken to
MoominBabe92
in
Endometriosis UK
1 year ago
My ICD reports that I have had short bursts of Ventricular Tachycardia.
My
ICD
reports that I have had short bursts of Ventricular Tachycardia - up to 15 seconds. Self correcting.Has anyone else experienced this?
My
ICD
reports that I have had short bursts of Ventricular Tachycardia - up to 15 seconds. Self correcting.Has anyone else experienced this?
Curryandchips
in
British Heart Foundation
2 years ago
Stopping Amiodarone Because of Side-Effects
I am going for a routine appointment to the Pacing Clinic today to have my
ICD
checked, with a few additional checks at the consultants request.
I am going for a routine appointment to the Pacing Clinic today to have my
ICD
checked, with a few additional checks at the consultants request.
Guitarman666
in
British Heart Foundation
2 years ago
Mirena coil during laparoscopy
Hey everyone, I’ve just been for my pre op appointment all went well but I asked the nurse wether I could have my copper coil taken out and replaced with a Mirena during surgery and he said I’d have to speak to the surgeon about it on the day of surgery. This seems really last minute and kinda stresses
Hey everyone, I’ve just been for my pre op appointment all went well but I asked the nurse wether I could have my copper coil taken out and replaced with a Mirena during surgery and he said I’d have to speak to the surgeon about it on the day of surgery. This seems really last minute and kinda stresses
Livylou1112
in
Endometriosis UK
1 year ago
copper coil
has anyone experienced horrible headaches with the ten year copper coil. I’m only a few weeks in and they said it will take a few months to settle but I thought that would be bleeding or cramps but not migraines? It’s non hormonal so I’m not sure why it wd give me headaches but I also have painful twinges
has anyone experienced horrible headaches with the ten year copper coil. I’m only a few weeks in and they said it will take a few months to settle but I thought that would be bleeding or cramps but not migraines? It’s non hormonal so I’m not sure why it wd give me headaches but I also have painful twinges
Avagrac
in
BASHH
1 year ago
Bleeding after Laparoscopy
Hi all, Please note this maybe to much info .... Apologies. Sorry for the question. I know there is a few topics regarding Laparoscopy but just want to understand if what's happening is normal. I had my laparoscopy 3 weeks ago. All the incisions have healed well and from surgery side of things I'm
Hi all, Please note this maybe to much info .... Apologies. Sorry for the question. I know there is a few topics regarding Laparoscopy but just want to understand if what's happening is normal. I had my laparoscopy 3 weeks ago. All the incisions have healed well and from surgery side of things I'm
AMJ88
in
Endometriosis UK
1 year ago
Feeling deflated after first appointment with Gynaecology! Yet another ultrasound! 😢
Hi I’m completely new to the group, joined after my urology doctor referred me to gynaecology to have a laparoscopy to investigate endometriosis. Since then I have researched a lot and convinced I have endometriosis! Everything I have been through the last 3 years points to endo. (I didn’t know about
Hi I’m completely new to the group, joined after my urology doctor referred me to gynaecology to have a laparoscopy to investigate endometriosis. Since then I have researched a lot and convinced I have endometriosis! Everything I have been through the last 3 years points to endo. (I didn’t know about
Gingerlove195
in
Endometriosis UK
1 year ago
Severe Period Pains
Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her brother were just diagnosed with FA in Nov 22. She's previously passed out with the pain from cramps & mentioned severe shooting pains traveling
Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her brother were just diagnosed with FA in Nov 22. She's previously passed out with the pain from cramps & mentioned severe shooting pains traveling
Hidden
in
Ataxia UK
1 year ago
ICD inappropriate shocks! Can someone tell me how I post what’s happened to me just out of a week of being in hospital an awful experience!
not sure where or how I write about my experience is it in this space? Grateful for any help as been through a nightmare and not ended yet!!!!
not sure where or how I write about my experience is it in this space? Grateful for any help as been through a nightmare and not ended yet!!!!
Lizob
in
British Heart Foundation
2 years ago
Mirena coil/ still have periods
I’ve already had a coil before and I had it in for almost 4 years and it stopped working with that coil I had absolutely no issues infact I was like a new woman for 4 years. Then I had another 1 fitted last year in September and even upto this point now it’s not settled I’m having periods ever 2 weeks
I’ve already had a coil before and I had it in for almost 4 years and it stopped working with that coil I had absolutely no issues infact I was like a new woman for 4 years. Then I had another 1 fitted last year in September and even upto this point now it’s not settled I’m having periods ever 2 weeks
Coral07
in
Endometriosis UK
1 year ago
A little bit of help with an echogram result please?
My husband has a history of heart disease and has stents and an
ICD
implant approx 6 years ago. (He went into VT after damage from a heart attack) He has never been shocked since and is stable regarding VT. He also has atrial fibrillation controlled by meds.
My husband has a history of heart disease and has stents and an
ICD
implant approx 6 years ago. (He went into VT after damage from a heart attack) He has never been shocked since and is stable regarding VT. He also has atrial fibrillation controlled by meds.
oscar2
in
British Heart Foundation
2 years ago
Coming off the Mirena coil and Pregabalin to try for a baby - advice
So my fiancé and I are planning to try for a baby soon, I am super excited but also very nervous about coming off the Mirena coil (which I have had since being diagnosed with endo in 2019) and my medication Pregabalin (which I have been taking for 2 years now at a dose of 225mg twice a day). My endo
So my fiancé and I are planning to try for a baby soon, I am super excited but also very nervous about coming off the Mirena coil (which I have had since being diagnosed with endo in 2019) and my medication Pregabalin (which I have been taking for 2 years now at a dose of 225mg twice a day). My endo
gkbear
in
Endometriosis UK
1 year ago
ICD going off ??
Could this be due to
ICD
kicking in? Waiting for the GP to call me back but though I’d ask the question here. What does the
ICD
going off feel like?
Could this be due to
ICD
kicking in? Waiting for the GP to call me back but though I’d ask the question here. What does the
ICD
going off feel like?
Hashh123
in
British Heart Foundation
2 years ago
copper coil, irregular period
i got the coil inserted 2ish months ago and got my period as normal, it lasted two weeks long and was a lot more painful/heavier. This doesn’t worry me however my second cycle seems a lot longer, my Flo app is saying I’m 6 days late, was just wondering if anyone else has experienced irregular periods
i got the coil inserted 2ish months ago and got my period as normal, it lasted two weeks long and was a lot more painful/heavier. This doesn’t worry me however my second cycle seems a lot longer, my Flo app is saying I’m 6 days late, was just wondering if anyone else has experienced irregular periods
Daisynails28
in
BASHH
1 year ago
Hormone therapy for Endometriosis
Hello, I hope you're all doing ok. I was wondering if anyone has any advice, tips or experience in hormone therapy for endometriosis. Long story short I was diagnosed with stage 4 endometriosis 5 years ago, I had a lap in Dec 2018 to remove endometrioma and check my tubes. In Nov 2019 I had a bowel
Hello, I hope you're all doing ok. I was wondering if anyone has any advice, tips or experience in hormone therapy for endometriosis. Long story short I was diagnosed with stage 4 endometriosis 5 years ago, I had a lap in Dec 2018 to remove endometrioma and check my tubes. In Nov 2019 I had a bowel
Violet89
in
Endometriosis UK
1 year ago
Doctor won't test for Endometriosis
I'm in my early 30's and started getting painful periods when I was 17. Pain in my stomach, back, down my legs and generally feeling sick. It was quite severe, to the point where I would throw up so I went to the Doctor at age 17 and was told I would grow out of it. Now in my 30's I've gone back to the
I'm in my early 30's and started getting painful periods when I was 17. Pain in my stomach, back, down my legs and generally feeling sick. It was quite severe, to the point where I would throw up so I went to the Doctor at age 17 and was told I would grow out of it. Now in my 30's I've gone back to the
K833
in
Endometriosis UK
1 year ago
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