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Experiences with
Implantable cardioverter defibrillator (ICD)
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Living with an ICD
Fitted with
ICD
last month and going through some anxiety following SCD’s.
Fitted with
ICD
last month and going through some anxiety following SCD’s.
Faunce
in
British Heart Foundation
3 years ago
No one is offering any answewers or help
Hey, just wanted some advice or similar stories. I've had endo for around 10 years 4 laparoscapys later and I've been told I can't have any more as it could cause too much damage. I use the contraceptive pill to manage the endo as I've tried pretty much everything else. They don't really want to help
Hey, just wanted some advice or similar stories. I've had endo for around 10 years 4 laparoscapys later and I've been told I can't have any more as it could cause too much damage. I use the contraceptive pill to manage the endo as I've tried pretty much everything else. They don't really want to help
jjmurph1234
in
Endometriosis UK
2 years ago
EF and exercise capacity
Many will say ‘EF is just a number, it’s your symptoms that matter’, but it is definitely the case that my treatment (Entresto &
ICD
) has been overwhelmingly led by that magic number.
Many will say ‘EF is just a number, it’s your symptoms that matter’, but it is definitely the case that my treatment (Entresto &
ICD
) has been overwhelmingly led by that magic number.
Hidden
in
British Heart Foundation
2 years ago
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When to start oestrogen patch and mirena coil
Hi. I am having a coil fitted next week as the progesterone part of hrt. I have the oestrogen patches waiting. Can I start the patches a few days before having the coil?
Hi. I am having a coil fitted next week as the progesterone part of hrt. I have the oestrogen patches waiting. Can I start the patches a few days before having the coil?
fitwithgail
in
Menopause and Perimenopause Support
2 years ago
When is surgery necessary?
For the last few years I've had very heavy periods - annoying, but manageable. For the last 12 months I've had really bad bloating in my stomach on and off - annoying, but manageable. For most of last year I had an on/off dull ache near my left ovary - annoying but manageable. Since November the dull
For the last few years I've had very heavy periods - annoying, but manageable. For the last 12 months I've had really bad bloating in my stomach on and off - annoying, but manageable. For most of last year I had an on/off dull ache near my left ovary - annoying but manageable. Since November the dull
Jenn2022
in
Endometriosis UK
2 years ago
Mirena or endo pain?
Hi all, I had my laparoscopy in December 2020 to remove endo. During the op I had the mirena coil inserted. Now 14 months later, I’m still having pain most days. I finally have a gyno appt coming up in a few weeks and I think they’re going to suggest having my coil taken out, which feels like a really
Hi all, I had my laparoscopy in December 2020 to remove endo. During the op I had the mirena coil inserted. Now 14 months later, I’m still having pain most days. I finally have a gyno appt coming up in a few weeks and I think they’re going to suggest having my coil taken out, which feels like a really
LondonEndo325
in
Endometriosis UK
2 years ago
I'm new here
Hi everyone, I'm so glad I came across this page as I feel reassured and more educated already. I went on the pill at 15, to stop my extremely heavy and painful periods and since then everything was fine - periods were regular, a normal amount of pain etc. A year ago, at 22, I decided I no longer wanted
Hi everyone, I'm so glad I came across this page as I feel reassured and more educated already. I went on the pill at 15, to stop my extremely heavy and painful periods and since then everything was fine - periods were regular, a normal amount of pain etc. A year ago, at 22, I decided I no longer wanted
cbradbury
in
Endometriosis UK
2 years ago
Contraceptive Coil
Hi, I have stage 4 endometriosis and It has been suggested that I have the coil fitted. I have heard nothing but bad things about having a coil. I was wondering if anyone else has any opinions on if a coil is bad or ok?
Hi, I have stage 4 endometriosis and It has been suggested that I have the coil fitted. I have heard nothing but bad things about having a coil. I was wondering if anyone else has any opinions on if a coil is bad or ok?
Sazle
in
Endometriosis UK
2 years ago
Mirena coil and HRT, severe Endo
Hi all first post of new year. Was wandering your experiences . On 20th November 2021 I had my ovaries removed and Severe rectal vaginal Endo also treated. During this surgery I had a mirena coil inserted and also HRT patches. I have bleed from day 1 although settled it’s now a brown discharge quite
Hi all first post of new year. Was wandering your experiences . On 20th November 2021 I had my ovaries removed and Severe rectal vaginal Endo also treated. During this surgery I had a mirena coil inserted and also HRT patches. I have bleed from day 1 although settled it’s now a brown discharge quite
Chicken2012
in
Endometriosis UK
2 years ago
Hormones affecting vaginal dryness
Hi I’ve been on microgynon for a year and it’s made me really dry and loss of libido, my gp changed me to Yasmin and it’s not improved at all. I’m considering going on the copper IUD but all I hear are negative things. Clearly there’s downsides to any contraceptive. But just wanted peoples advice or
Hi I’ve been on microgynon for a year and it’s made me really dry and loss of libido, my gp changed me to Yasmin and it’s not improved at all. I’m considering going on the copper IUD but all I hear are negative things. Clearly there’s downsides to any contraceptive. But just wanted peoples advice or
S_hennessy
in
BASHH
2 years ago
Searching for similar cases, pleeeease!!
Hello I am a person with obsessive personality disorder with various OCD, but among them from the group of mentally tormented. I have believed in the philosophy of reincarnation for quite some time and the obsession that has robbed me of my life for years is suffering eternally physically in each reincarnation
Hello I am a person with obsessive personality disorder with various OCD, but among them from the group of mentally tormented. I have believed in the philosophy of reincarnation for quite some time and the obsession that has robbed me of my life for years is suffering eternally physically in each reincarnation
jhgil27
in
Anxiety Support
2 years ago
2nd op/Prostap/Provera - which to choose ..?
Hello everyone, I am hoping for a bit of help/advice on behalf of my 19-year old daughter, who, after having a laperascopy a year ago to drain her ovarian cysts, has been told they are filling up again. She has been given the option of progesterone treatment (provera), Prostap for 1 year, or surgery
Hello everyone, I am hoping for a bit of help/advice on behalf of my 19-year old daughter, who, after having a laperascopy a year ago to drain her ovarian cysts, has been told they are filling up again. She has been given the option of progesterone treatment (provera), Prostap for 1 year, or surgery
Claire49
in
Endometriosis UK
2 years ago
Merina coil at 56
Hello I’m 56 in a couple of weeks just been diagnosed endo after biopsy and MRI I had horrific bleeding emergency trip to hospital as bleed was so bad. coil fitted 5 weeks ago I’m old lol no menopause yet as I’ve not stopped bleeding. Anyone else my age ? Just trying to get my head around all this.
Hello I’m 56 in a couple of weeks just been diagnosed endo after biopsy and MRI I had horrific bleeding emergency trip to hospital as bleed was so bad. coil fitted 5 weeks ago I’m old lol no menopause yet as I’ve not stopped bleeding. Anyone else my age ? Just trying to get my head around all this.
Catmum66
in
Endometriosis UK
2 years ago
Mirena coil malposition, low lying
Hi everyone I currently have the Mirena coil which was inserted/replaced during my lap in March 2021. I just had an internal ultrasound due to ongoing add increasing pain to check if any new cysts and luckily none found. However my Mirena is low lying at 7mm low. I have a history of expulsion and malpositioned
Hi everyone I currently have the Mirena coil which was inserted/replaced during my lap in March 2021. I just had an internal ultrasound due to ongoing add increasing pain to check if any new cysts and luckily none found. However my Mirena is low lying at 7mm low. I have a history of expulsion and malpositioned
Claire_Alexandra
in
Endometriosis UK
2 years ago
Could this be bowel endo?
Hi all I had a laparoscopy in October and I told them beforehand that I felt like I had bowel endo, as I often bled from my back passage during my period as well as diarrhoea. They informed me that they would check the surface but wouldn’t check inside. So I had the surgery and they found endo but she
Hi all I had a laparoscopy in October and I told them beforehand that I felt like I had bowel endo, as I often bled from my back passage during my period as well as diarrhoea. They informed me that they would check the surface but wouldn’t check inside. So I had the surgery and they found endo but she
DalmatianGirl
in
Endometriosis UK
2 years ago
Anxiety and fear due to cardiac arrest 2 years ago
young children, it's been 2 years now as I say but I don't feel like I have progressed in anyway forward at all, I struggle on a daily basis with what I believe to be a severe bout of anxiety, which has very similar symptoms to a heart attack or cardiac events I am constantly on edge I also have an
icd
young children, it's been 2 years now as I say but I don't feel like I have progressed in anyway forward at all, I struggle on a daily basis with what I believe to be a severe bout of anxiety, which has very similar symptoms to a heart attack or cardiac events I am constantly on edge I also have an
icd
Dan33ynwa
in
British Heart Foundation
3 years ago
Cannot find an answer to this!
I’m really struggling with perimenopausal hormone fluctuations. My thyroid levels are stable and have been for a while now, however at the beginning of my cycle when my protestors drops and oestrogen increases, I feel awful and it takes a couple of weeks to level out again. I had been using bioidential
I’m really struggling with perimenopausal hormone fluctuations. My thyroid levels are stable and have been for a while now, however at the beginning of my cycle when my protestors drops and oestrogen increases, I feel awful and it takes a couple of weeks to level out again. I had been using bioidential
Murphysmum
in
Thyroid UK
2 years ago
Contraceptive whilst on Decapeptyl - do I really need one?
Has anyone else been in this situation and what were you advised about contraception? I’ve been on Decapeptyl injections for 8 years and these have successfully managed by endometriosis. I have no pain or other symptoms whatsoever now. I get bone scans every 3 years to check my bone density and I’ve
Has anyone else been in this situation and what were you advised about contraception? I’ve been on Decapeptyl injections for 8 years and these have successfully managed by endometriosis. I have no pain or other symptoms whatsoever now. I get bone scans every 3 years to check my bone density and I’ve
Endo1973
in
Endometriosis UK
2 years ago
Date for ICD
Hi I’ve had my date for implantation of
ICD
and reality has set in. I am really anxious about how it could affect my life having just returned from holiday swimming and body boarding and long coastal walks! Not bad for a 64 year old.
Hi I’ve had my date for implantation of
ICD
and reality has set in. I am really anxious about how it could affect my life having just returned from holiday swimming and body boarding and long coastal walks! Not bad for a 64 year old.
Bunb
in
British Heart Foundation
3 years ago
Private laparoscopy
Hey there. I’m a 32 year old female, I had horrendous hyperemesis gravidarium while pregnant and since then my health hasn’t been the same. I’ve developed suspected endometriosis, which became terrible last year and I have a c section niche. Since having my covid booster I’m having a period every 12
Hey there. I’m a 32 year old female, I had horrendous hyperemesis gravidarium while pregnant and since then my health hasn’t been the same. I’ve developed suspected endometriosis, which became terrible last year and I have a c section niche. Since having my covid booster I’m having a period every 12
LS07
in
Endometriosis UK
2 years ago
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