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ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
5 months ago
Another update
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
Gandalf2
in
Encephalitis International
5 months ago
Abiraterone + Olaparib: ASCO GU 2024 Highlights: BRCAAway Trial
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
Maxone73
in
Advanced Prostate Cancer
5 months ago
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T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Gene therapy
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
Farooqji
in
Cure Parkinson's
5 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
5 months ago
testing protocol on T4 and T3
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Hi all. Does anyone have any experience/wisdom re a good time to take T3 pre bloods? I currently take it when I wake up which is between 6.20 and 7.30 and in the afternoon between 3.30 and 4.30. I have a first test since starting combined therapy booked and am wondering when I should take what.
Topes009
in
Thyroid UK
6 months ago
Proton Beam Therapy
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
woppaginny
in
Advanced Prostate Cancer
6 months ago
North of England Endo
Good evening I’m looking for private message replies please on your recommended Endo’s in the North of England. Yorkshire and North East. Not many seem to be listed on Thyroid U.K. list. Someone open to combined therapy. Thank you! Look forward to hearing from you :)
Good evening I’m looking for private message replies please on your recommended Endo’s in the North of England. Yorkshire and North East. Not many seem to be listed on Thyroid U.K. list. Someone open to combined therapy. Thank you! Look forward to hearing from you :)
Bollieforme
in
Thyroid UK
6 months ago
Let's enjoy some predictions: cell and gene therapy in 2024
because sometimes we must also have some positive but realistic dreams.... https://www.massgeneralbrigham.org/en/about/newsroom/articles/2024-predictions-about-gene-and-cell-therapy
because sometimes we must also have some positive but realistic dreams.... https://www.massgeneralbrigham.org/en/about/newsroom/articles/2024-predictions-about-gene-and-cell-therapy
Maxone73
in
Advanced Prostate Cancer
6 months ago
Why should ft4 be at a certain percentage through reference range (mid to upper) when on T4/T3 combination therapy when T4 is inactive?
As per the subject title, if ft4 is inactive, then why do some people on T4/T3 therapy only feel good if their ft4 level is at the mid/upper level despite the fact their ft3 (active form) may be at a optimal level? Or if they are not feeling well, why are they advised to increase their Levo dosage if
As per the subject title, if ft4 is inactive, then why do some people on T4/T3 therapy only feel good if their ft4 level is at the mid/upper level despite the fact their ft3 (active form) may be at a optimal level? Or if they are not feeling well, why are they advised to increase their Levo dosage if
RIGBY1978
in
Thyroid UK
6 months ago
BCF after 9 years post proton therapy
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
hwrjr
in
Prostate Cancer Network
6 months ago
Update on Endo and WLAMS
Re the Endo who was determined to take away my T3 whilst all I wanted was a blood test to include T3. After an exchange of letters, he phoned this morning. He had back pedalled so far he was out of site. He agreed T3 was vital, he agreed testing the full TSH, T4 and T3 were needed to make a positive
Re the Endo who was determined to take away my T3 whilst all I wanted was a blood test to include T3. After an exchange of letters, he phoned this morning. He had back pedalled so far he was out of site. He agreed T3 was vital, he agreed testing the full TSH, T4 and T3 were needed to make a positive
serenfach
in
Thyroid UK
6 months ago
update Vanderbilt
just thought I would update and let y’all know that I have an appointment with a doctor at Vanderbilt university medical in Franklin Tennessee in April. Vanderbilt is a RLS quality care center and the closest to me. I actually had one of their Doctors call me and said that if there were any cancellations
just thought I would update and let y’all know that I have an appointment with a doctor at Vanderbilt university medical in Franklin Tennessee in April. Vanderbilt is a RLS quality care center and the closest to me. I actually had one of their Doctors call me and said that if there were any cancellations
6236
in
Restless Legs Syndrome
6 months ago
red light therapy
has anyone ever heard of or tried red light therapy? I’m sure that’s not the proper medical term but that’s what Dr Cooper called it. After the nerve induction test he said both my legs showed nerve weakness and the red light therapy is what he prescribed saying that it might possibly help the RLS.
has anyone ever heard of or tried red light therapy? I’m sure that’s not the proper medical term but that’s what Dr Cooper called it. After the nerve induction test he said both my legs showed nerve weakness and the red light therapy is what he prescribed saying that it might possibly help the RLS.
6236
in
Restless Legs Syndrome
6 months ago
Secondary Cancers after CAR-T Cell Therapy
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
Jm954
Administrator
in
CLL Support
6 months ago
Red light/ near infrared light therapy
I have been treating my foot and legs with red light/ near infrared light with the Leanne Venier Red juvenator biophotonic led light matrix #3 formula lights over the past 3 months. My treatment was for multiple fractures of my foot bones and ligament and tendon sprains. Over the course of a month
I have been treating my foot and legs with red light/ near infrared light with the Leanne Venier Red juvenator biophotonic led light matrix #3 formula lights over the past 3 months. My treatment was for multiple fractures of my foot bones and ligament and tendon sprains. Over the course of a month
maxkat22
in
Restless Legs Syndrome
6 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
6 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
6 months ago
Should I reduce dose slightly? T3/T4 combination therapy
Hello lovely people. I recently had my bloods done and met with my endocrinologist, and wanted to ask your thoughts. I am currently on 87.5mcg Levothyroxine and 25mcg T3 daily. I feel better than I have in a long time, though possibly slightly anxious (difficult to tell though as I am prone to anxiety
Hello lovely people. I recently had my bloods done and met with my endocrinologist, and wanted to ask your thoughts. I am currently on 87.5mcg Levothyroxine and 25mcg T3 daily. I feel better than I have in a long time, though possibly slightly anxious (difficult to tell though as I am prone to anxiety
CatACat1
in
Thyroid UK
6 months ago
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