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Experiences with
Hydroxyurea
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ET and weight Gain
I am on
Hydroxyurea
daily for the rest of my life. I am so glad i finally found a place with people who have this rare disorder. I too have gained 25 lbs slowly over the years and i am tall and slender and not overweight until now. It has been a slow gain but NOTHING i do takes it off.
I am on
Hydroxyurea
daily for the rest of my life. I am so glad i finally found a place with people who have this rare disorder. I too have gained 25 lbs slowly over the years and i am tall and slender and not overweight until now. It has been a slow gain but NOTHING i do takes it off.
sugarbear56
in
MPN Voice
8 years ago
New Gal...
I take
Hydroxyurea
(1000mg M-F, 1500 SS), and 2 full strength aspirin everyday. Plus, I take meds to help prevent migraines that I have suffered with since I was 20. I am made to feel like I am over-reacting. I'm not even sure I'm happy with my doctors!
I take
Hydroxyurea
(1000mg M-F, 1500 SS), and 2 full strength aspirin everyday. Plus, I take meds to help prevent migraines that I have suffered with since I was 20. I am made to feel like I am over-reacting. I'm not even sure I'm happy with my doctors!
BeckyM4
in
MPN Voice
8 years ago
ET, high cholesterol and statins
Now apparently there are 5 statins and I can't take 2 of them because the interfere with
Hydroxyurea
, and he is mindful of the potential side effects of statins. I have had more bloods taken and another appointment in 4 weeks to discuss next steps.
Now apparently there are 5 statins and I can't take 2 of them because the interfere with
Hydroxyurea
, and he is mindful of the potential side effects of statins. I have had more bloods taken and another appointment in 4 weeks to discuss next steps.
lizzieET
in
MPN Voice
9 years ago
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Living with PV for 47 years after father diagnosed days earlier.
I began using
Hydroxyurea
/Hydrea. I am still using this drug today. I was sent for a second opinion to Rush Medical Center and saw Dr. Stephanie Gregory who once again verified my having PT/Spherocytosis.
I began using
Hydroxyurea
/Hydrea. I am still using this drug today. I was sent for a second opinion to Rush Medical Center and saw Dr. Stephanie Gregory who once again verified my having PT/Spherocytosis.
Hidden
in
MPN Voice
9 years ago
Breathlessness
I have no iron reserves and follow a low iron diet, take
Hydroxyurea
and have phlebotomy approx. every six months now I have a haematocrit controlled to below 45%.
I have no iron reserves and follow a low iron diet, take
Hydroxyurea
and have phlebotomy approx. every six months now I have a haematocrit controlled to below 45%.
lucieboo
in
MPN Voice
9 years ago
Nail changes with chemo drugs
Nail changes may also be seen with
hydroxyurea
. I would be grateful if some of you that may have suffered from altered nails would take a few minutes to share some information with me.
Nail changes may also be seen with
hydroxyurea
. I would be grateful if some of you that may have suffered from altered nails would take a few minutes to share some information with me.
db1307
in
Fight Prostate Cancer
9 years ago
ET newly diagnosed
Has anyone chosen not to take the platelet lowering drug
hydroxyurea
(spelling?)) I am 70 in good health generally apart from this so I would like to hold off as long as possible before going on to the drug Any input would be helpful, its all a bit scary.
Has anyone chosen not to take the platelet lowering drug
hydroxyurea
(spelling?)) I am 70 in good health generally apart from this so I would like to hold off as long as possible before going on to the drug Any input would be helpful, its all a bit scary.
jeanr
in
MPN Voice
9 years ago
Itiching Relief.
I am also on
Hydroxyurea
500 mg every other day. Correction that is Ataryx, previously missed spelled.
I am also on
Hydroxyurea
500 mg every other day. Correction that is Ataryx, previously missed spelled.
TxTwin
in
MPN Voice
9 years ago
Anagrelide and herpes
I was on
hydroxyurea
and had a bad case of herpes on my face. Now into about 5th week of anagrelide and now bad herpes on face. Taking aciclovir tabs but seems to be taking a while to clear. Has anyone else experienced herpes as a result of taking anagrelide and if so, any advice? Tinkerbell13
I was on
hydroxyurea
and had a bad case of herpes on my face. Now into about 5th week of anagrelide and now bad herpes on face. Taking aciclovir tabs but seems to be taking a while to clear. Has anyone else experienced herpes as a result of taking anagrelide and if so, any advice? Tinkerbell13
Tinkerbell13
in
MPN Voice
10 years ago
Diagnosed with erythrocytosis, jak2+, is this pv?
I was recently told that I have the jak2 v617f mutation and I will be starting
hydroxyurea
in the nextfew days. My RBC is 6.85, HGB 20, and HCT is 62.2 even though I have had two phlebotomies in the past week.
I was recently told that I have the jak2 v617f mutation and I will be starting
hydroxyurea
in the nextfew days. My RBC is 6.85, HGB 20, and HCT is 62.2 even though I have had two phlebotomies in the past week.
TimVA
in
MPN Voice
10 years ago
Is anyone getting blisters on their feet???
I've been on
hydroxyurea
for over a year now and have been getting blisters all over my feet. They are driving me crazy!!! Appointment with GP next week but just looking for some advice before I see her Any comments or help would be appreciated
I've been on
hydroxyurea
for over a year now and have been getting blisters all over my feet. They are driving me crazy!!! Appointment with GP next week but just looking for some advice before I see her Any comments or help would be appreciated
R8afg
in
MPN Voice
11 years ago
I have PV, am Jak2 positive and being treated with Hydroxyurea and phlebotomy. Has anyone tried hemp oil to stop proliferation of cells?
1zica1
in
MPN Voice
11 years ago
Weight Gain - Has anyone experienced this on Hydroxyurea (Hydroxycarbamide)?
I have ET and since starting Hu I have gained 8/10 lbs in weight (it fluctuates). I have been on HU just over 12 months and this has crept on since then. I have never had a weight problem before so this is unusual for me.
I have ET and since starting Hu I have gained 8/10 lbs in weight (it fluctuates). I have been on HU just over 12 months and this has crept on since then. I have never had a weight problem before so this is unusual for me.
Hidden
in
MPN Voice
11 years ago
Is agent orange and the dioxin from AO (TCDD) a potential cause of my MPD,essential Thombocytosis.
I am currently under a hematologist/oncologist's care ,have to get a blood draw to monitor the platelet count monthly, and am taking 1 500mg tab of
hydroxyurea
daily to try to keep the platelets at a safe level.When I was diagnosed with it,my count was almost 1,000,000 and is now down to about 480,000
I am currently under a hematologist/oncologist's care ,have to get a blood draw to monitor the platelet count monthly, and am taking 1 500mg tab of
hydroxyurea
daily to try to keep the platelets at a safe level.When I was diagnosed with it,my count was almost 1,000,000 and is now down to about 480,000
Hidden
in
MPN Voice
11 years ago
Would hydroxyurea affect INR levels?
Have been on HU 500mg a day since June. Recently increased and have found my INR levels have risen. Nurse struggling to get this under control. She doesn't think the HU would affect this but just wondered if anyone else has had the same problem??
Have been on HU 500mg a day since June. Recently increased and have found my INR levels have risen. Nurse struggling to get this under control. She doesn't think the HU would affect this but just wondered if anyone else has had the same problem??
R8afg
in
MPN Voice
12 years ago
Has anyone experienced a sudden fall in white blood cells and neutrophils with ET when on hydroxyurea?
gset
in
MPN Voice
12 years ago
Does anyone know if hydroxyurea is only harmful to a baby if the mum is the one who is taking the drug?
Monc
in
MPN Voice
12 years ago
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