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Experiences with
Hydroxyurea
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Shingrix jab for shingles
is has anyone else over a certain age 🤪 had this jab and had any adverse side effects, also my blood pressure has gone sky high when it’s normally in the normal range as I am on an Ace inhibitor, on another note the leaflet for Shringrix states that anyone on certain prescription drugs one being
Hydroxyurea
is has anyone else over a certain age 🤪 had this jab and had any adverse side effects, also my blood pressure has gone sky high when it’s normally in the normal range as I am on an Ace inhibitor, on another note the leaflet for Shringrix states that anyone on certain prescription drugs one being
Hydroxyurea
Superwoman
in
MPN Voice
2 years ago
Do PV patients need a fourth Covid vaccine?
I have PV and am on
hydroxyurea
. I'm very confused - and not getting clear guidance from my hematologist. Should PV patients go for a fourth shot? If so, should that be a fourth primary vaccine or a booster shot?
I have PV and am on
hydroxyurea
. I'm very confused - and not getting clear guidance from my hematologist. Should PV patients go for a fourth shot? If so, should that be a fourth primary vaccine or a booster shot?
souplover
in
MPN Voice
2 years ago
How do you afford Jakefi chemo? My insurance only pays for half of it.
My Hematologist wants to put me on this instead of
hydroxyurea
. My insurance only pays for half the cost of the drug. How do you afford it?
My Hematologist wants to put me on this instead of
hydroxyurea
. My insurance only pays for half the cost of the drug. How do you afford it?
Meeileem
in
MPN Voice
2 years ago
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Osteoporosis
Hi all, I have been on 500mg of
hydroxyurea
for 5 years and just been told that I’m at high risk for fractures because of a big change in my osteoporosis due to the
Hydroxyurea
. My doctor wants me to have injections of Prolia but the side effects are bad with that.
Hi all, I have been on 500mg of
hydroxyurea
for 5 years and just been told that I’m at high risk for fractures because of a big change in my osteoporosis due to the
Hydroxyurea
. My doctor wants me to have injections of Prolia but the side effects are bad with that.
Ann16
in
MPN Voice
2 years ago
New to this site. We
Tinnitus has got much louder since I started in
Hydroxyurea
. Is this common?
Tinnitus has got much louder since I started in
Hydroxyurea
. Is this common?
Jim1949
in
MPN Voice
2 years ago
mds/mpn-rs-t
I am on
hydroxyurea
and aspirin and that is controlling my platelets but not new symptoms I have developed.
I am on
hydroxyurea
and aspirin and that is controlling my platelets but not new symptoms I have developed.
woodmonkey
in
MPN Voice
2 years ago
72 year old make
Is seems like my tinnitus is getting louder since I’ve been taking
Hydroxyurea
. I have to wear hearing aids and use a white noise machine to sleep. Anyone else have similar symptoms?
Is seems like my tinnitus is getting louder since I’ve been taking
Hydroxyurea
. I have to wear hearing aids and use a white noise machine to sleep. Anyone else have similar symptoms?
Jim1949
in
MPN Voice
2 years ago
Covid immune response on hydroxyurea
Hi everyone, From this list, I learned that PV patients on
hydroxyurea
should consider themselves as immune compromised and should have a third and possibly a fourth Covid shot.
Hi everyone, From this list, I learned that PV patients on
hydroxyurea
should consider themselves as immune compromised and should have a third and possibly a fourth Covid shot.
souplover
in
MPN Voice
2 years ago
ET questions for my 16 year old daughter
She is on 81mg aspirin daily and one Dr. initially wanted to put her on
hydroxyurea
and we declined and sought a second opinion which recommended aspirin only. She has a lot of neck and back pain and tired frequently. Is this normal? Does this condition also affect the RH FACTOR?
She is on 81mg aspirin daily and one Dr. initially wanted to put her on
hydroxyurea
and we declined and sought a second opinion which recommended aspirin only. She has a lot of neck and back pain and tired frequently. Is this normal? Does this condition also affect the RH FACTOR?
Piperpeeps
in
MPN Voice
2 years ago
Taking Plavix (generic clopidogrel) for PV
I have tried
Hydroxyurea
and Anagrelide but both of them were intolerable for me. I was getting ready to go on Jakafi (very expensive as others have pointed out). My HCT seems to be under control with an occasional phlebotomy but platelets are still very, very high.
I have tried
Hydroxyurea
and Anagrelide but both of them were intolerable for me. I was getting ready to go on Jakafi (very expensive as others have pointed out). My HCT seems to be under control with an occasional phlebotomy but platelets are still very, very high.
Bluetoday1
in
MPN Voice
2 years ago
hydroxyurea and lactose intolerance
I'm wondering whether it's connected to the
hydroxyurea
. How about the rest of you? Are you having more stomach problems or lactose intolerance too?
I'm wondering whether it's connected to the
hydroxyurea
. How about the rest of you? Are you having more stomach problems or lactose intolerance too?
souplover
in
MPN Voice
2 years ago
Phase 3, Trial of Interferon-α versus Hydroxyurea in Polycythemia Vera and Essential Thrombocythemia
Key Points Rates of thrombosis and progression were low in patients with ET/PV treated with either HU or IFN in this randomized study. PEG was more effective in normalizing counts and reducing JAK2V617F VAF in PV while HU induced more histopathologic responses in ET. https://ashpublications.org/blood
Key Points Rates of thrombosis and progression were low in patients with ET/PV treated with either HU or IFN in this randomized study. PEG was more effective in normalizing counts and reducing JAK2V617F VAF in PV while HU induced more histopathologic responses in ET. https://ashpublications.org/blood
Manouche
in
MPN Voice
2 years ago
INF vs HU, histological response (fibrosis, celluarity, etc) Surprise Result, and Possible Reasons
Many of us, including the authors of the study, were surprised, esp as some of us plan to switch to INF. https://healthunlocked.com/mpnvoice/posts/147415052/phase-3-trial-of-interferon-%CE%B1-versus-
hydroxyurea
-in-polycythemia-vera-and-essential-thrombocythemia?
Many of us, including the authors of the study, were surprised, esp as some of us plan to switch to INF. https://healthunlocked.com/mpnvoice/posts/147415052/phase-3-trial-of-interferon-%CE%B1-versus-
hydroxyurea
-in-polycythemia-vera-and-essential-thrombocythemia?
EPguy
in
MPN Voice
2 years ago
Dosage of hydroxyurea
I should add a side bar to my previous post...after only being on 500mgs of
hydroxyurea
for a few weeks. I did experience some hair loss! 😳 It still seems to be more than usual, but thankfully, I have alot of hair. Still, a shocker!
I should add a side bar to my previous post...after only being on 500mgs of
hydroxyurea
for a few weeks. I did experience some hair loss! 😳 It still seems to be more than usual, but thankfully, I have alot of hair. Still, a shocker!
K-itty
in
MPN Voice
3 years ago
Hello
Put on
hydroxyurea
, 1000mg per day, and aspirin. Only 3 weeks into this so still wrapping my head around it. I had no symptoms....feels like all this came out of left field. Came across this site, it is encouraging to read comments from many of you living with it and have for many years.
Put on
hydroxyurea
, 1000mg per day, and aspirin. Only 3 weeks into this so still wrapping my head around it. I had no symptoms....feels like all this came out of left field. Came across this site, it is encouraging to read comments from many of you living with it and have for many years.
Mike1021
in
MPN Voice
3 years ago
What Platelet count is your doctor recommending?
Was put on
hydroxyurea
500 mg once a day but has been increased to 9 per week. First blood test after showed platelets at 438. Two tests since then showed platelets at 518 and 509. Doctor said he was trying to keep platelet count below 600.
Was put on
hydroxyurea
500 mg once a day but has been increased to 9 per week. First blood test after showed platelets at 438. Two tests since then showed platelets at 518 and 509. Doctor said he was trying to keep platelet count below 600.
FloydWood
in
MPN Voice
3 years ago
MPN and Covid vaxes
- The 2nd study was retrospective with n=74: In ET, INF provides improved response vs HU or aspirin only, but HU is not bad vs aspirin: <<In the ET cohort, spike protein antibody levels were higher (mean 4,151.15 AU/mL) in patients treated with pegylated interferon compared to patients treated with
hydroxyurea
- The 2nd study was retrospective with n=74: In ET, INF provides improved response vs HU or aspirin only, but HU is not bad vs aspirin: <<In the ET cohort, spike protein antibody levels were higher (mean 4,151.15 AU/mL) in patients treated with pegylated interferon compared to patients treated with
hydroxyurea
EPguy
in
MPN Voice
2 years ago
Hydroxyurea
who’s the one treated well with hydroxy??? Doesn’t this medication lots of side effects or effective treatment for ET??? Let me know please thank you so much…
who’s the one treated well with hydroxy??? Doesn’t this medication lots of side effects or effective treatment for ET??? Let me know please thank you so much…
shiela23
in
MPN Voice
3 years ago
Covid
Credible research and my hematologist state that the covid vaccines may not work well, if at all, for people with blood cancers (I have PV with portal hypertension-enlarged spleen, on
hydroxyurea
, etc)…. and other MPN’s but being vaccinated is better then nothing….
Credible research and my hematologist state that the covid vaccines may not work well, if at all, for people with blood cancers (I have PV with portal hypertension-enlarged spleen, on
hydroxyurea
, etc)…. and other MPN’s but being vaccinated is better then nothing….
Hidden
in
MPN Voice
3 years ago
Micro blood clot in toe
I have been treated with
Hydroxyurea
(low dose of 4 times a week) and visited my GP last week as my toe was so painful and had turned white. My GP sent me to my local hospital where I was admitted for tests with the vascular team.
I have been treated with
Hydroxyurea
(low dose of 4 times a week) and visited my GP last week as my toe was so painful and had turned white. My GP sent me to my local hospital where I was admitted for tests with the vascular team.
Janlol
in
MPN Voice
3 years ago
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