I watched the Forum. Very interesting, but I have most symptoms well under control, including fatigue, my quality of life is excellent. But no-one mentions breathlessness, it is my overriding symptom now, worse in hot, humid weather. I walk up hills, walk an hour every day, but the slightest incline and I am panting, just have to go slow. I am not overweight, do not have asthma, have a clear chest. I always assumed it was low oxygen saturation in the blood. I have no iron reserves and follow a low iron diet, take Hydroxyurea and have phlebotomy approx. every six months now I have a haematocrit controlled to below 45%. I live for the day: Andrew Schorr's throwaway comment about 'waiting for the next stage' struck a chord with me, carefully watching the bloods for conversion to myelofibrosis and keeping my fingers crossed, but I am lucky: 73, PV diagnosed five-and-a-half years ago, and keeping well.
Breathlessness: do I just accept it or is there anything I should do?