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Experiences with
Hydroxycarbamide
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DNA Saliva test and Hydroxycarbamide?
So, the only thing I can think of as to why they are failing is
Hydroxycarbamide
, as I produce enough saliva to fill the tube.
So, the only thing I can think of as to why they are failing is
Hydroxycarbamide
, as I produce enough saliva to fill the tube.
Kari1961
in
MPN Voice
3 years ago
hydroxyurea and lactose intolerance
Hi everyone, At the ripe old age of 73, I suddenly seem to have developed lactose intolerance. I'm wondering whether it's connected to the hydroxyurea. How about the rest of you? Are you having more stomach problems or lactose intolerance too?
Hi everyone, At the ripe old age of 73, I suddenly seem to have developed lactose intolerance. I'm wondering whether it's connected to the hydroxyurea. How about the rest of you? Are you having more stomach problems or lactose intolerance too?
souplover
in
MPN Voice
3 years ago
Switched from Hydroxyurea to Pegylated Interferon (PEGASYS)
And most recently for the last few years hydroxyurea/
hydroxycarbamide
. I was quite stable on a low dose 500mg a week until this late 2020. I am currently on 1000mg a week and blood results are a little outside the normal range. HCT great though. My hematologist has offered my Pegasys.
And most recently for the last few years hydroxyurea/
hydroxycarbamide
. I was quite stable on a low dose 500mg a week until this late 2020. I am currently on 1000mg a week and blood results are a little outside the normal range. HCT great though. My hematologist has offered my Pegasys.
SuzanneMPD
in
MPN Voice
3 years ago
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FDA Approves Ropeginterferon Alfa-2b-njft for Polycythemia Vera
The FDA has approved ropeginterferon alfa-2b-njft (Besremi) for use as a treatment in patients with polycythemia vera.1 The regulatory decision was based on safety from the PEGINVERA and PROUD/ CONTINUATION-PV studies and efficacy findings from the PEGINVERA clinical study program. Results showed
The FDA has approved ropeginterferon alfa-2b-njft (Besremi) for use as a treatment in patients with polycythemia vera.1 The regulatory decision was based on safety from the PEGINVERA and PROUD/ CONTINUATION-PV studies and efficacy findings from the PEGINVERA clinical study program. Results showed
JT_Marlin
in
MPN Voice
3 years ago
Third Dose progress
I know that somewhere in my searches for information I saw a report detailing the immune response of each Blood Cancer type versus medication (ET on
Hydroxycarbamide
was just 36%) Can anyone tell me where I saw this as I have lost it.....? Thanks
I know that somewhere in my searches for information I saw a report detailing the immune response of each Blood Cancer type versus medication (ET on
Hydroxycarbamide
was just 36%) Can anyone tell me where I saw this as I have lost it.....? Thanks
quanglewangle
in
MPN Voice
3 years ago
ET Jak2 positive issue with red blood cells
I was diagnosed with ET jak2 positive 18 months ago I signed my consent to
Hydroxycarbamide
treatment in September 2020 and haven’t seen my haematologist since having phone consultation every 2 to 3 months.
I was diagnosed with ET jak2 positive 18 months ago I signed my consent to
Hydroxycarbamide
treatment in September 2020 and haven’t seen my haematologist since having phone consultation every 2 to 3 months.
YBSx
in
MPN Voice
3 years ago
Covid
Hi everyone…. Credible research and my hematologist state that the covid vaccines may not work well, if at all, for people with blood cancers (I have PV with portal hypertension-enlarged spleen, on hydroxyurea, etc)…. and other MPN’s but being vaccinated is better then nothing…. I’ve had 2 doses and
Hi everyone…. Credible research and my hematologist state that the covid vaccines may not work well, if at all, for people with blood cancers (I have PV with portal hypertension-enlarged spleen, on hydroxyurea, etc)…. and other MPN’s but being vaccinated is better then nothing…. I’ve had 2 doses and
Hidden
in
MPN Voice
3 years ago
Hydroxycarbamide
Hi folks Can I ask has anyone on here had a problem getting their
Hydroxycarbamide
, used to get Medac brand from the Hospital, then was passed to Boots the chemist which was fine, but was told last week they cannot obtain anywhere, so will have to speak with hospital to see if they can provide, did
Hi folks Can I ask has anyone on here had a problem getting their
Hydroxycarbamide
, used to get Medac brand from the Hospital, then was passed to Boots the chemist which was fine, but was told last week they cannot obtain anywhere, so will have to speak with hospital to see if they can provide, did
Superwoman
in
MPN Voice
3 years ago
Hello
Hello. Recently diagnosed with ET. Platelets around 700 during routine blood work. Referred to hematologist. Tested JAK2 positive. Put on hydroxyurea, 1000mg per day, and aspirin. Only 3 weeks into this so still wrapping my head around it. I had no symptoms....feels like all this came out of left
Hello. Recently diagnosed with ET. Platelets around 700 during routine blood work. Referred to hematologist. Tested JAK2 positive. Put on hydroxyurea, 1000mg per day, and aspirin. Only 3 weeks into this so still wrapping my head around it. I had no symptoms....feels like all this came out of left
Mike1021
in
MPN Voice
3 years ago
Hydroxycarbamide
I’ve been taking
Hydroxycarbamide
at 500x2 5 days snd 500 x1 2 days for a year. My count was 1200 and it went down quickly and I was reduced to less but then creeped up quickly so it’s now fairly balanced. I’ve had very little problems on it.
I’ve been taking
Hydroxycarbamide
at 500x2 5 days snd 500 x1 2 days for a year. My count was 1200 and it went down quickly and I was reduced to less but then creeped up quickly so it’s now fairly balanced. I’ve had very little problems on it.
Mungestar
in
MPN Voice
3 years ago
Meds
Does anyone on
hydroxycarbamide
suffer from cramp in their feet and calves
Does anyone on
hydroxycarbamide
suffer from cramp in their feet and calves
ChillyAsh34
in
MPN Voice
3 years ago
Fingertip numbness
I've been on
hydroxycarbamide
for ET since January. The numbness occurs occasionally and leaves after around 30 mins. I'd be keen to know how common this is and what your specialist has done about it. My dose is currently 5 x 500mg and 2 x1000mg per week.
I've been on
hydroxycarbamide
for ET since January. The numbness occurs occasionally and leaves after around 30 mins. I'd be keen to know how common this is and what your specialist has done about it. My dose is currently 5 x 500mg and 2 x1000mg per week.
Hidden
in
MPN Voice
3 years ago
Micro blood clot in toe
Hi, hope everyone is feeling as well as possible. I was diagnosed with ET JAK2 positive in 2016, my platelets have never really been higher than 550 however I was diagnosed after having a splenic infarct, sine then have had a splenectomy and small bowel resection due to inflammatory cyst in my bowel.
Hi, hope everyone is feeling as well as possible. I was diagnosed with ET JAK2 positive in 2016, my platelets have never really been higher than 550 however I was diagnosed after having a splenic infarct, sine then have had a splenectomy and small bowel resection due to inflammatory cyst in my bowel.
Janlol
in
MPN Voice
3 years ago
Dosage of hydroxyurea
I should add a side bar to my previous post...after only being on 500mgs of hydroxyurea for a few weeks. I did experience some hair loss! 😳 It still seems to be more than usual, but thankfully, I have alot of hair. Still, a shocker!
I should add a side bar to my previous post...after only being on 500mgs of hydroxyurea for a few weeks. I did experience some hair loss! 😳 It still seems to be more than usual, but thankfully, I have alot of hair. Still, a shocker!
K-itty
in
MPN Voice
3 years ago
What Platelet count is your doctor recommending?
I have been recently diagnosed with Jak 2 ET. At the time of diagnosis my platelets were 575. Was put on hydroxyurea 500 mg once a day but has been increased to 9 per week. First blood test after showed platelets at 438. Two tests since then showed platelets at 518 and 509. Doctor said he was trying
I have been recently diagnosed with Jak 2 ET. At the time of diagnosis my platelets were 575. Was put on hydroxyurea 500 mg once a day but has been increased to 9 per week. First blood test after showed platelets at 438. Two tests since then showed platelets at 518 and 509. Doctor said he was trying
FloydWood
in
MPN Voice
3 years ago
Starting Hydroxycarbamide - ET Jak2
I have just started
Hydroxycarbamide
and wondered if anyone else was at the start of their
Hydroxycarbamide
journey and would like to chat / share responses/ support each other? Hope this is ok Maz?
I have just started
Hydroxycarbamide
and wondered if anyone else was at the start of their
Hydroxycarbamide
journey and would like to chat / share responses/ support each other? Hope this is ok Maz?
Cassandra61
in
MPN Voice
3 years ago
Update on BMB
So, I got lucky the other day when my hematology nurse called and said they had an opening yesterday to review my results. I met with my doctor and she said that my bone marrow had not changed, which was, of course, great news! However, she referred me to another specialist for a second opinion (her
So, I got lucky the other day when my hematology nurse called and said they had an opening yesterday to review my results. I met with my doctor and she said that my bone marrow had not changed, which was, of course, great news! However, she referred me to another specialist for a second opinion (her
Cja1956
in
MPN Voice
3 years ago
Low Serum Folate
I'm Jak2+ PV and take
Hydroxycarbamide
. I consider that I eat a good, healthy, balanced diet - plenty of veg, fruit, nuts and very rarely eat processed food. I keep myself well hydrated and drink 2 litres+ of water daily. But obviously I'm failing somewhere as I can't get the balance right.
I'm Jak2+ PV and take
Hydroxycarbamide
. I consider that I eat a good, healthy, balanced diet - plenty of veg, fruit, nuts and very rarely eat processed food. I keep myself well hydrated and drink 2 litres+ of water daily. But obviously I'm failing somewhere as I can't get the balance right.
Kari1961
in
MPN Voice
3 years ago
PV side effect not heard of by Haematologist
I would be interested to know if anyone with PV or other MPN taking
Hydroxycarbamide
has experienced anything thing like or similar to what I have described above. I am new here this is my first post so apologies for the ramble
I would be interested to know if anyone with PV or other MPN taking
Hydroxycarbamide
has experienced anything thing like or similar to what I have described above. I am new here this is my first post so apologies for the ramble
Edinburgh1953
in
MPN Voice
3 years ago
Pegasus interferon injection
The Pegasus interferon has brought my platelets down but also my white cells and neutrophils so the haematologist has taken me off the
hydroxycarbamide
which I was taking along with the Pegasus hope it all levels off when I have my bloods taken in 3 weeks time.
The Pegasus interferon has brought my platelets down but also my white cells and neutrophils so the haematologist has taken me off the
hydroxycarbamide
which I was taking along with the Pegasus hope it all levels off when I have my bloods taken in 3 weeks time.
Hughley
in
MPN Voice
3 years ago
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