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Update finally on treatment
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
monkeygirl62
in
SHARE Metastatic Breast Cancer
9 months ago
Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
9 months ago
How bad are these PSMA Pet Scan Results?
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
hiker75
in
Advanced Prostate Cancer
9 months ago
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In hospital again over oxygen levels & new happening Dizzy spells & panic attacks
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Well dear friends Here I am back in hospital after just 3 weeks of discharge This time pains in the chest have started & I'm having panic attacks when I stand up to get on the commode or if at home then toilet This is something I've not had before so I ll be talking to the Docs when they come round
Sara_2611
in
Lung Conditions Community Forum
5 months ago
Treatment help
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
Red476
in
Endometriosis UK
7 months ago
HCCsurgery
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
LittleMeadow
in
British Liver Trust
9 months ago
Bowel preparation before surgery
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Endolemon
in
Endometriosis UK
7 months ago
Weekly Paclitaxol
Has anyone had success with with weekly taxol? I've got two stubborn cancerous pelvis lymph nodes. I'm deemed platinum refractory. Thanks.
Has anyone had success with with weekly taxol? I've got two stubborn cancerous pelvis lymph nodes. I'm deemed platinum refractory. Thanks.
win_56
in
My Ovacome
7 months ago
Eczema
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Eloquentia
in
Pregnancy and Parenting Support
9 months ago
Serositis
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Hi I’m new here, been struggling with bilateral pleural effusion since may last year and now my second bout of pericarditis so my respiratory consultant is sending everything to a rheumatologist as he believes I have lupus but does anyone else have this please and what medication are you on etc.. Any
Numptybrain
in
LUPUS UK
7 months ago
Cortisol saliva test results
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
CornishChick
in
Thyroid UK
6 months ago
Brutal Panic/Anxiety
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Can anyone provide some advice?? I've dealt with severe anxiety and depression for 30+ years. I had it under control up until 3 weeks ago. Out of nowhere, my anxious stomach came roaring back and is worse than ever. It's 24/7. My Dr just put me on Vilazodone Any advice/help??
Goinboating
in
Anxiety and Depression Support
5 months ago
What’s the protocol for GP actioning full iron panel?
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
J972
in
Thyroid UK
7 months ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
dwolden
in
CLL Support
3 months ago
A Bladder Cancer Update.
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
Ern007
in
Lung Conditions Community Forum
9 months ago
Failed on Piqray... off to xeloda I go....
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
DianaSav
in
SHARE Metastatic Breast Cancer
9 months ago
Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
akhilsalwan
in
My Ovacome
9 months ago
Break ups?? Walk in the park
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
I would like to say , yes break ups are terrible, but I would take a break up over a panic attack attack anyday of the week, I know they are similar , from the time you awake to the time you go to sleep you have that person in your mind, and it's awful and terrible, but time heals those wounds,, try
detour13
in
Anxiety and Depression Support
5 months ago
Happy New Year
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
10Ronnies
in
My Ovacome
9 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
7 months ago
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