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Diagnosed with Aggressive Prostate Cancer
Hi guys, Just wondering if anyone has had a similar experience to mine. I had a TURP op for a BHP less than 12 months ago. All going well until my PSA test 3 months ago came back as 18.5 then 18.9 one month later. Since then I have had an MRI, PET scan and biopsy which has found 5 tumours on my
Hi guys, Just wondering if anyone has had a similar experience to mine. I had a TURP op for a BHP less than 12 months ago. All going well until my PSA test 3 months ago came back as 18.5 then 18.9 one month later. Since then I have had an MRI, PET scan and biopsy which has found 5 tumours on my
Wharfster
in
Prostate Cancer Network
12 days ago
Lymphoproliferative disorder diagnosis following PET scan
My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?
My husband had his transplant in 2017. He has been ill for some time and had a PET scan 10 days ago. He has been diagnosed with Lymphoproliferative disorder. Does anyone know anything about this?
Kimlescam
in
British Liver Trust
12 days ago
delayed Fulvestrant injection
hi fellow Warriors I couldn’t attend my 4 weekly appointment today for my fulvestrarent injection so it is delayed for another week. This means my cycle now has a gap of 5 weeks instead of 4. The doctor said it won’t make any difference but I am nervous. Anyone had experience of delays to their
hi fellow Warriors I couldn’t attend my 4 weekly appointment today for my fulvestrarent injection so it is delayed for another week. This means my cycle now has a gap of 5 weeks instead of 4. The doctor said it won’t make any difference but I am nervous. Anyone had experience of delays to their
BritSammy
in
SHARE Metastatic Breast Cancer
12 days ago
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Surgery?
Hi! I am 19. I got my lymphedema in 2018. At the age of 5 I had a cancer on my left leg and my tight muscle was removed. At the age of 7 the cancer came back, but on the soft tissues. Another survey caused the interruption of 3 lymph nodes. A radiotherapy followed. At the age of 9, one more cancer, a
Hi! I am 19. I got my lymphedema in 2018. At the age of 5 I had a cancer on my left leg and my tight muscle was removed. At the age of 7 the cancer came back, but on the soft tissues. Another survey caused the interruption of 3 lymph nodes. A radiotherapy followed. At the age of 9, one more cancer, a
sad_watermelon
in
LSN
13 days ago
Provenge update
Looks like I may be starting Provenge immunotherapy soon, although I'm still being evaluated for castrate resistance. I finally found a local clinic to administer it (although I may have to go to Orlando to have the blood drawn each time). Interestingly, it is being done by a Urology clinic. Apparently
Looks like I may be starting Provenge immunotherapy soon, although I'm still being evaluated for castrate resistance. I finally found a local clinic to administer it (although I may have to go to Orlando to have the blood drawn each time). Interestingly, it is being done by a Urology clinic. Apparently
dhccpa
in
Advanced Prostate Cancer
14 days ago
Just received this email about previously named ERSO.... now ERX-315
ERX-315 CLINICAL TRIAL APPROVED BY HREC Inbox 4:22 PM (3 hours ago) to Ilona Dear Patients and Caregivers, We are excited to announce that last night we received formal notification from the Australian regulatory authorities that our Phase I clinical trial was approved. We have also included
ERX-315 CLINICAL TRIAL APPROVED BY HREC Inbox 4:22 PM (3 hours ago) to Ilona Dear Patients and Caregivers, We are excited to announce that last night we received formal notification from the Australian regulatory authorities that our Phase I clinical trial was approved. We have also included
Trissh
in
SHARE Metastatic Breast Cancer
15 days ago
Adavanced Prostate Cancer with widespread bone Metastases with pain.
The Home Care Hospice Nurse advised Buec 5 patches + Oramorph liquid to take if he has spike through pain and requested that off the GP. The Oramorph even 1 ml gave my husband nightmares and panic attacks, especially during the night We have asked for a CT Scan to see how the metastases progression
The Home Care Hospice Nurse advised Buec 5 patches + Oramorph liquid to take if he has spike through pain and requested that off the GP. The Oramorph even 1 ml gave my husband nightmares and panic attacks, especially during the night We have asked for a CT Scan to see how the metastases progression
Janhpr
in
Advanced Prostate Cancer
15 days ago
I was diagnosed with Squamous Cell Carcinoma on my chin today.
Presumably this is a secondary tumor from my CLL. The problem that I am experiencing is that the tumor has been left to grow for quite some time. The last time I spoke with Dr Fakhri at Stanford was 5 months ago, and she was happy that my CLL has been so stable. I noticed something growing in my
Presumably this is a secondary tumor from my CLL. The problem that I am experiencing is that the tumor has been left to grow for quite some time. The last time I spoke with Dr Fakhri at Stanford was 5 months ago, and she was happy that my CLL has been so stable. I noticed something growing in my
Jonquiljo
in
CLL Support
15 days ago
Radiation and CA125 increase
I had surgery last November to remove a large tumor along with my ovaries (already had a hysterectomy). In June, a CT scan showed the lymph nodes in my pelvis were growing and a biopsy confirmed that the cancer had spread (or was there all along). I started radiation therapy and had bloodwork done
I had surgery last November to remove a large tumor along with my ovaries (already had a hysterectomy). In June, a CT scan showed the lymph nodes in my pelvis were growing and a biopsy confirmed that the cancer had spread (or was there all along). I started radiation therapy and had bloodwork done
SpecialUnicorn
in
My Ovacome
16 days ago
PROTON THERAPY
Who is eligible to use proton therapy as a treatment for prostate cancer. In a recent meeting with my oncologist and specialists I was told ONLY prostate cancer patients can do it and not those who have metastasize of the bone or other areas.
Who is eligible to use proton therapy as a treatment for prostate cancer. In a recent meeting with my oncologist and specialists I was told ONLY prostate cancer patients can do it and not those who have metastasize of the bone or other areas.
PARKER3237
in
Advanced Prostate Cancer
16 days ago
What treatment for brain Mets?
Well, now I know why my markers were going up but scans looked stable; MRI showed Mets in my brain while PETScan didn’t pick up the brain lesions. I will be seeing a radiation oncologist to cyberknife some of the Mets. Not sure if he can treat all of the lesions, so wondering what other therapies (
Well, now I know why my markers were going up but scans looked stable; MRI showed Mets in my brain while PETScan didn’t pick up the brain lesions. I will be seeing a radiation oncologist to cyberknife some of the Mets. Not sure if he can treat all of the lesions, so wondering what other therapies (
HelenWi
in
SHARE Metastatic Breast Cancer
16 days ago
Brothers great news
My brother had bowel stage 4 cancer , stoma bag operation on the cards. , BUT after radiotherapy and chemo. He is Clear. What a relief. He can even go back to work. To see hospital every three months but so pleased for him. I'm doing ok as well, put on D3 and B12 tablets. Two of each each day. Can live
My brother had bowel stage 4 cancer , stoma bag operation on the cards. , BUT after radiotherapy and chemo. He is Clear. What a relief. He can even go back to work. To see hospital every three months but so pleased for him. I'm doing ok as well, put on D3 and B12 tablets. Two of each each day. Can live
mag123ben
in
MPN Voice
18 days ago
3b MLA of ovary
hiya everyone I’m starting my 1st chemo tomorrow having carboplatin Paclitaxel and bevacizumab feeling very nervous. I had surgery and was told I had 3b MLA of the ovary can anyone give me advice what is is best to take with me and thing o help after chem thanks.
hiya everyone I’m starting my 1st chemo tomorrow having carboplatin Paclitaxel and bevacizumab feeling very nervous. I had surgery and was told I had 3b MLA of the ovary can anyone give me advice what is is best to take with me and thing o help after chem thanks.
LKII
in
My Ovacome
19 days ago
not PCa yet but very important new technique
enhancing cart-t cells memory makes immune therapy way more effective against relapsing cancer…still not tested on prostate cancer but they are talking about a platform that will be used for different kinds of cancer! https://www.news-medical.net/news/20240729/Overcoming-cancer-relapse-with-CAR-Enhancer-therapy.aspx
enhancing cart-t cells memory makes immune therapy way more effective against relapsing cancer…still not tested on prostate cancer but they are talking about a platform that will be used for different kinds of cancer! https://www.news-medical.net/news/20240729/Overcoming-cancer-relapse-with-CAR-Enhancer-therapy.aspx
Maxone73
in
Advanced Prostate Cancer
19 days ago
Starting treatments
Had a setback due to being hospitalized in the ICU for a month and a half. Went to the Oncologist last week and about to start some aggressive treatment as I have a very aggressive prostate cancer. The oncologist on duty at the hospital had an MRI done to show where the metastasized bone cancer is located
Had a setback due to being hospitalized in the ICU for a month and a half. Went to the Oncologist last week and about to start some aggressive treatment as I have a very aggressive prostate cancer. The oncologist on duty at the hospital had an MRI done to show where the metastasized bone cancer is located
PARKER3237
in
Advanced Prostate Cancer
19 days ago
Started hospice
My dad has had a significant decline over the past three weeks since seeing my dad’s oncologist. We had a petscan that showed an advancement into three new bones and the old cancer that was “sleeping” has woken up. Zytiga never worked. About two weeks ago my dad started sleeping 15-20 hours a day
My dad has had a significant decline over the past three weeks since seeing my dad’s oncologist. We had a petscan that showed an advancement into three new bones and the old cancer that was “sleeping” has woken up. Zytiga never worked. About two weeks ago my dad started sleeping 15-20 hours a day
lgutman
in
Advanced Prostate Cancer
19 days ago
apixaban and hematuria
Has anyone else had this issue? I have now had second serious episode of hematuria ( gross blood in my urine ) that was initially diagnosed as likely UTI, but later not confirmed by tests, and have been told it’s likely a result of my taking blood thinner. I am curious 🤨. My blood work showed small
Has anyone else had this issue? I have now had second serious episode of hematuria ( gross blood in my urine ) that was initially diagnosed as likely UTI, but later not confirmed by tests, and have been told it’s likely a result of my taking blood thinner. I am curious 🤨. My blood work showed small
37Polly
in
Atrial Fibrillation Support
19 days ago
HAS ANYONE EVER TRIED ELECTRICAL STIMULATION OF A TUMOR?
I'm experimenting with an EMS (muscle exercise machine that uses electrodes and electrical stimulation for muscle growth and healing) on a collection of swollen lymph glands on my left pelvis (probably cancerous - feels like a mass more than a collection of lymph nodes...waiting for CT results and oncologist
I'm experimenting with an EMS (muscle exercise machine that uses electrodes and electrical stimulation for muscle growth and healing) on a collection of swollen lymph glands on my left pelvis (probably cancerous - feels like a mass more than a collection of lymph nodes...waiting for CT results and oncologist
Jsbach1953
in
Advanced Prostate Cancer
20 days ago
BNT324/DB-1311 Receives Fast Track Designation From FDA for mCRPC
Fast track designation has been granted by the FDA to the antibody-drug conjugate (ADC) BNT324/DB-1311 to potentially treat patients with unresectable advanced or metastatic castration-resistant prostate cancer (mCRPC) whose disease had progressed on or after standard systemic regimens.1 The next-generation
Fast track designation has been granted by the FDA to the antibody-drug conjugate (ADC) BNT324/DB-1311 to potentially treat patients with unresectable advanced or metastatic castration-resistant prostate cancer (mCRPC) whose disease had progressed on or after standard systemic regimens.1 The next-generation
God_Loves_Me
in
Advanced Prostate Cancer
20 days ago
Advice on my Situation
Just finished my first year on AS. My initial biopsy and the most recent one were both downgraded by Johns Hopkins.
Most recent biopsy findings from JH:
Gleason 3+3: Two cores (30%,40%) Gleason 3+3: Two cores (5%,60%) My intitial MRI last year was graded as a Pirad 5. My second MRI
Just finished my first year on AS. My initial biopsy and the most recent one were both downgraded by Johns Hopkins.
Most recent biopsy findings from JH:
Gleason 3+3: Two cores (30%,40%) Gleason 3+3: Two cores (5%,60%) My intitial MRI last year was graded as a Pirad 5. My second MRI
tcott54
in
Prostate Cancer Network
21 days ago
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