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Tuesday's Tip
[i]
According to Dr. Jones' book sometimes people will stop taking their Urso because their liver function tests have returned to normal. If your liver enzymes have returned to the normal range it just means that the Urso is working. The PBC isn't cured - it is just controlled.
[/i] [i]
We don't
[i]
According to Dr. Jones' book sometimes people will stop taking their Urso because their liver function tests have returned to normal. If your liver enzymes have returned to the normal range it just means that the Urso is working. The PBC isn't cured - it is just controlled.
[/i] [i]
We don't
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
How much Iron Ferrous Sulfate?
My transferrin saturations is just at 20%. It was recommended I take Iron Ferrous Sulfate but confused at how much and how often. Would appreciate advice on this. Thank you!
My transferrin saturations is just at 20%. It was recommended I take Iron Ferrous Sulfate but confused at how much and how often. Would appreciate advice on this. Thank you!
CathyJoH
in
Restless Legs Syndrome
2 months ago
PA/stomach pain
Hi all, I’m so grateful for all of your support as I’ve started down this road. Got diagnosed with PA/AIG in the fall via an endoscopy. I am on B12 injections. My stomach pain has gotten steadily worse instead of better even though I am on a very restrictive diet. Is there any reason for me to believe
Hi all, I’m so grateful for all of your support as I’ve started down this road. Got diagnosed with PA/AIG in the fall via an endoscopy. I am on B12 injections. My stomach pain has gotten steadily worse instead of better even though I am on a very restrictive diet. Is there any reason for me to believe
Lhood08
in
Pernicious Anaemia Society
5 months ago
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B12 deficiency: a hidden trigger of inflammation?
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Other blood results
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
Purple450
in
Thyroid UK
5 months ago
I Panic when I drive
Been living with generalized panic disorder for almost 20 years. Started with a severe panic attack while I was driving. Took months to get back to driving on my own again, after psychiatrists, therapists, medications. Still I have had trouble driving. I recently decided to change medications to
Been living with generalized panic disorder for almost 20 years. Started with a severe panic attack while I was driving. Took months to get back to driving on my own again, after psychiatrists, therapists, medications. Still I have had trouble driving. I recently decided to change medications to
sunbaby71
in
Anxiety and Depression Support
2 months ago
B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
5 months ago
Sore mouth and tongue with GCA
Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual temporal headaches and scalp sensitivity?
Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual temporal headaches and scalp sensitivity?
Bummed24
in
PMRGCAuk
2 months ago
Dare and meds
has anyone read and tried the dare method and taking meds for anxiety and panic attacks? Did it help? Did anyone use it for agoraphobia?
has anyone read and tried the dare method and taking meds for anxiety and panic attacks? Did it help? Did anyone use it for agoraphobia?
Panicfree
in
Anxiety and Depression Support
2 months ago
change of mind from GP on blood in urine and possible UTI.
Messaged via e consult to GP and she has had change of mind prescribing Fosfomycin one sachet for UTI. However then had another message to say that she had decided to also prescribe Nitrofurantoin capsules, (antibiotics ) for one month. Interesting change of mind relating to the blood in urine.
Messaged via e consult to GP and she has had change of mind prescribing Fosfomycin one sachet for UTI. However then had another message to say that she had decided to also prescribe Nitrofurantoin capsules, (antibiotics ) for one month. Interesting change of mind relating to the blood in urine.
gillsky8
in
PMRGCAuk
2 months ago
Possible lung metastasis
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
Bettyxxx
in
My Ovacome
8 months ago
Nagalase count
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
agnut
in
Fight Prostate Cancer
5 months ago
My SCT journey continues
Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's
Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's
Flyingsteamer
in
MPN Voice
5 months ago
Spinal mets.
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
Got a MRI report back from my new MO...several spine mets which just confirmed my Psma pet. Everything else is structurally good. Not good at comprehending these reports. Not a medical kind of guy...If I couldn't stop the bleeding or couldn't drain the hose that was about the only time I went to a
APK3
in
Advanced Prostate Cancer
8 months ago
Has anyone had Fluanxol while being pregnant?
I suffer from anxiety and sometimes panic attacks. I started on Sertraline and now I’m taking 100mg. The doctor also gave me Fluanxol to give it a boost. I stopped Fluanxol and I’m feeling very anxious again and sometimes panic attacks. I think I might be pregnant as we tried for a baby last week. I
I suffer from anxiety and sometimes panic attacks. I started on Sertraline and now I’m taking 100mg. The doctor also gave me Fluanxol to give it a boost. I stopped Fluanxol and I’m feeling very anxious again and sometimes panic attacks. I think I might be pregnant as we tried for a baby last week. I
ivytina
in
Anxiety Support
2 months ago
Erleada or Xtandi vs Seizure Risk
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
vintage42
in
Advanced Prostate Cancer
8 months ago
Chemotherapy
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
Petalka32
in
SHARE Metastatic Breast Cancer
8 months ago
Chocolatemilk44
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
chocolatemilk44
in
My Ovacome
8 months ago
16cm Fibroid
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Dem92
in
Pelvic Pain Support Network
8 months ago
TSAT low but Ferritin fine/maybe high
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
b1interest
in
Restless Legs Syndrome
6 months ago
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