Search
Search
About
Log in
Join
Experiences with
Hoyeraal-Hreidarsson syndrome
Posts
Communities
3,347 public posts
Filter results
BP meds interference?
I'm taking Losartan Potasium, Lerconidipine and Atenolol for very high blood pressure, and cannot have the surgery I need until it's normal. I've been taking Dihydrocodeine for severe, full body RLS for nearly 20 years, but recently, the bed-time dose I take around 12.30am is only lasting for about two
I'm taking Losartan Potasium, Lerconidipine and Atenolol for very high blood pressure, and cannot have the surgery I need until it's normal. I've been taking Dihydrocodeine for severe, full body RLS for nearly 20 years, but recently, the bed-time dose I take around 12.30am is only lasting for about two
lorrinet
in
Restless Legs Syndrome
5 years ago
Levodopa
Hi I have just been given via tel message a prescription for levodopa 25mg but not told if I should take it along with my pramipexole. I have just been told to take 1 tablets at night hopefully it will help my insomnia
Hi I have just been given via tel message a prescription for levodopa 25mg but not told if I should take it along with my pramipexole. I have just been told to take 1 tablets at night hopefully it will help my insomnia
Hoochybaby
in
Restless Legs Syndrome
5 years ago
Does L-Tyrosine also cause augmentation
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good, Neupro, good leaves bu
Carbidopa Levodopa Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good,
Carbidopa Levodopa Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good,
Elijah5
in
Restless Legs Syndrome
5 years ago
Opiate use and sleep.
This is a link to a study/ warning of the dangers of opiate use. Related to sleep quality and breathing problems. It is not a major problem for the low doses used for refractory rls. It is really interesting that it recognises the use of opiates for rls and the distinction between that and the much higher
This is a link to a study/ warning of the dangers of opiate use. Related to sleep quality and breathing problems. It is not a major problem for the low doses used for refractory rls. It is really interesting that it recognises the use of opiates for rls and the distinction between that and the much higher
Madlegs1
in
Restless Legs Syndrome
5 years ago
DIL vs SLE - Anti Histone Antibody
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
katidid
in
LUPUS UK
5 years ago
GCA
Hi, another newbie. Had mild pain in temples for around 8 days and been to hospital for bloods. They think could be GCA and have prescribed 50mg steroid which I will get to tomorrow. Biopsy is TBC Bit scared to be honest. I’m 46yr male usually fit and healthy? Any feedback would be greatly appreciated
Hi, another newbie. Had mild pain in temples for around 8 days and been to hospital for bloods. They think could be GCA and have prescribed 50mg steroid which I will get to tomorrow. Biopsy is TBC Bit scared to be honest. I’m 46yr male usually fit and healthy? Any feedback would be greatly appreciated
Jc554
in
PMRGCAuk
5 years ago
Detective Work
After having repeated exacerbations, my consultant has discovered from sputem sampleas that I am suffering from "entrerobacter" and "pseudomonas". She has prescribed Ciproflaxin for the latter and in the meantime is arranging for me to have nebulised Gentamycin, the other drug Tazocin can only be administered
After having repeated exacerbations, my consultant has discovered from sputem sampleas that I am suffering from "entrerobacter" and "pseudomonas". She has prescribed Ciproflaxin for the latter and in the meantime is arranging for me to have nebulised Gentamycin, the other drug Tazocin can only be administered
Bobfirmin
in
Lung Conditions Community Forum
5 years ago
RLS
Hi .. this site is the best, thank you My question is: I am now completely off sifrol, having weened down from 0.75, withdrawal was horrendous 🥴 I am now taking tramadol to help with this how long before sifrol is completely out of your body? I want to get down to baseline to see if I can do without
Hi .. this site is the best, thank you My question is: I am now completely off sifrol, having weened down from 0.75, withdrawal was horrendous 🥴 I am now taking tramadol to help with this how long before sifrol is completely out of your body? I want to get down to baseline to see if I can do without
Ladro
in
Restless Legs Syndrome
5 years ago
Plaquenil and dry mouth
Plaquenil is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
Plaquenil is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
loopy4me
in
LUPUS UK
5 years ago
More help please
I have posted here several times and have had wonderful help. Now I need more please. I have been trying to get back to more sleep , having gone through hell getting off the dopamine agonists. It is over 3 months since I began withdrawal, which took 6 weeks to be totally clear. Currently I am on Gabapentin
I have posted here several times and have had wonderful help. Now I need more please. I have been trying to get back to more sleep , having gone through hell getting off the dopamine agonists. It is over 3 months since I began withdrawal, which took 6 weeks to be totally clear. Currently I am on Gabapentin
wairoa36
in
Restless Legs Syndrome
5 years ago
Desperate for sleep.
I have taken pramipexole for a few years and life was wonderful then over a year ago the restless legs started again with a vengeance I was only taking one at night after being on the maximum for a while even on one at night it was working for a long time now here I am at 2-30am sitting up going mad
I have taken pramipexole for a few years and life was wonderful then over a year ago the restless legs started again with a vengeance I was only taking one at night after being on the maximum for a while even on one at night it was working for a long time now here I am at 2-30am sitting up going mad
Nevermind61
in
Restless Legs Syndrome
5 years ago
Felcainide vs. Tikosyn
I've been on flecainide since my ablation in July, 2017. I still continue to have episodes of afib and aflutter which can last a few minutes to a few days. My cardiologist would like me to switch to tikosyn but is leaving the decision up to my EP. I'll be seeing my EP soon and would like to discuss
I've been on flecainide since my ablation in July, 2017. I still continue to have episodes of afib and aflutter which can last a few minutes to a few days. My cardiologist would like me to switch to tikosyn but is leaving the decision up to my EP. I'll be seeing my EP soon and would like to discuss
JudyMarieC
in
Atrial Fibrillation Support
5 years ago
Small sores that will not go!
Just want some advice please. It’s my third month on Ibrutinib and all going really well. However, I have a few small sores on my hands, one on my nose and one on a buttock that just will not heal up. Saw a GP on Friday, never met anyone so bored by what I was saying 😠 and he prescribed Fusidic Acid
Just want some advice please. It’s my third month on Ibrutinib and all going really well. However, I have a few small sores on my hands, one on my nose and one on a buttock that just will not heal up. Saw a GP on Friday, never met anyone so bored by what I was saying 😠 and he prescribed Fusidic Acid
Jooby59
in
CLL Support
5 years ago
update on my Homeopathic remedy treatment
I was diagnosed with PMR in March this year (2019), took Prednison ( 20mg) until August, tried to taper down slowly, but had to start over because of flair ups. Had an appointment -- consultation with a Homeopathic Doctor for 3 sessions and intensive interview. Took one pellet of Causticum, which was
I was diagnosed with PMR in March this year (2019), took Prednison ( 20mg) until August, tried to taper down slowly, but had to start over because of flair ups. Had an appointment -- consultation with a Homeopathic Doctor for 3 sessions and intensive interview. Took one pellet of Causticum, which was
km5yx7
in
PMRGCAuk
5 years ago
Do you need expert fertility information and face-face support from others trying to conceive?
Join the fertility group meeting in Swansea TONIGHT.. Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
Join the fertility group meeting in Swansea TONIGHT.. Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
Does Neupogen wash help thin lining?
Hi, I was hoping someone could help me. I am doing my 7th cycle of ivf. I had 3 at argc and they all failed. I then moved on to donor eggs in Spain. Two of the cycles were cancelled as the lining did not get past 7mn. On the third where the lining was 7.3 there were no embryos to implant as we were doing
Hi, I was hoping someone could help me. I am doing my 7th cycle of ivf. I had 3 at argc and they all failed. I then moved on to donor eggs in Spain. Two of the cycles were cancelled as the lining did not get past 7mn. On the third where the lining was 7.3 there were no embryos to implant as we were doing
Bagpuss07
in
Fertility Network UK
5 years ago
Need face-face expert information & support?
Join the fertility group meeting on Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs Gordon has
Join the fertility group meeting on Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs Gordon has
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
Itchy rash more
Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath tonight - any ideas please?
Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath tonight - any ideas please?
Daffodilia
in
PMRGCAuk
5 years ago
Do you need expert fertility information and face-face support from others trying to conceive?
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
1
...
73
74
75
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1497 results
Fertility Network UK
360 results
PMRGCAuk
137 results
View top 10 communities
Sort by
Most Relevant
Newest