Experiences with

Hidradenitis suppurativa

Over the years we have had several members report having Hidradenitis Suppurativa. Yet little has been known or understood about this disorder. Just now, I noticed this paper, and thought it worth mentioning previous posters.

I also had quite a long time of being in excruciating pain with hidradenitis suppurativa And terrible pain with diagnosed fibromylagia Don't know if any of these are linked to hormone/thyroid issues but believe it or not this post isn't about any of those.

Hi all! Was wondering if anyone else who has chronic kidney disease has been diagnosed with this? It’s truly awful and something else that never goes away and is worrisome. I’m in stage 3B currently and things seem to be going bad quickly here lately. This is another battle for me that will have to

I have bipolar 2, depression, anxiety, hidradenitis suppurativa (an autoimmune disorder that includes painful bumps similar to acne but much worse), interstitial cystitis (overactive bladder with 40+ trips to the bathroom a day and also includes chronic infections).

So thankful to have had my first jab of Corona Vaccine, for all of you with similar underlying health issues similar to myself(Heart Murmur, Asthma, Hyper Mobility Syndrome, Under Active Thyroid, Fibromyalgia, Hidradenitis Suppurativa, High Blood Pressure) I thought it might be useful to let you know

I have been suffering with Hidradenitis Suppurativa for 16 years now. It has gotten to the point where it is extremely painful and I am on 3600mg of Gabapentin a day and it is not helping in the slightest.

I have been diagnosed with IBS, joint pain, fatigue, migraines, anxiety/ depression, hidradenitis suppurativa and pelvic pain. Just had laparoscopy for pelvic pain but they didn’t find anything. Does anybody else have these health issues too? Just feeling rather unfixable.....

suppurativa which is called HUMIRA I'm crossing my fingers that I qualify to try this medication

Again, I'm not sure if this is relevant, but I also have HS (Hidradenitis suppurativa), another autoimmune disease, how many autoimmune diseases can a person have? My mother also has lupus, an autoimmune disease I am aware hashimoto's for example, can progress onto.

Hi, I recently got a pretty dismissive diagnosis in December of Hidradenitis Suppurativa.

I also developed hidradenitis suppurativa under my arms and some flair up in my groin. I apologize, but it's been a fucking ride. I needed to have foot surgery last year and just had rotator cuff surgery in the beginning of February.

One of these lesions is Hidradenitis Suppurativa, which is a chronic disease that is characterized by inflammation of the sweat glands. Is it normal for the vagina to give off a bad smell?

Hello, I have just been diagnosed with hidradenitis suppurativa and I have been put on a course of injections with a drug called humira, can I get some feed back from anyone that knows about humira or also taking it ...thanks

I am 63 and have suffered with HS since I was 17. I have outbreaks in the groin area. My dermatologist recommended 2 washes to use on a daily basis when showering. One is called 10% Benzoyl Peroxide, and the other is Hibiclens Antiseptic Antimicrobial Skin Liquid Soap. This has worked well for me.

I've been suffering with hidradenitis suppurativa for going on 4 years now. I've been given many medications but nothing has worked for me. I experience severe pain every month. But since I'm just 31 years of age I guess I'll face this problem for the rest of my life.

Some interesting research: https://nutritionfacts.org/video/dietary-cure-for-hidradenitis-suppurativa/?utm_source=NutritionFacts.org&utm_campaign=103ad878ba-RSS_VIDEO_DAILY&utm_medium=email&utm_term=0_40f9e497d1-103ad878ba-24597565&mc_cid=103ad878ba&mc_eid=9867ff0d88

I've had hidradenitis suppurativa since I was 19, fibromyalgia appeared at age 26 after having my gallbladder removed and then when my symptoms started to get worse I decided to get my own private bloods which uncovered hashimotos but as far as doctors are concerned they're going to wait until my thyroid

I have a autoimmune (not proven) skin disease (hidradenitis suppurativa) since many years back. At least 15. During that time I have had pretty bad blood works. Low HB and high inflammation markers. One major symptom has been fatigue.

I've just started taking traditional chinese medicine to help with hidradenitis suppurativa. I can see a small improvement so far. The doctor did say it will take time to heal and that I will be monitored weekly. Any further improvements I'll post it here :)

Hi, I'm new here :). I've had HS since 11 and now 23. Although I have never received any medical treatment for my HS. This disease really is a cruel one in the way it grips its victims from the outside - in. The psychological aspect of the disease had been the worst part for me. Since 11 and up until