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Emphysema
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Zand60
in
Lung Conditions Community Forum
1 year ago
Osteoporosis treatment post transplant
I'm post Kidney Transplant with many problems, and one is Osteoporosis. My Endocrinologist wanted to put me on Reclast and I declined. Now, he wants to put me on Prolia. There seems to be many side effects to this also. I was on Fosomax and had many bad abdominal side effects. I'm told these are my
I'm post Kidney Transplant with many problems, and one is Osteoporosis. My Endocrinologist wanted to put me on Reclast and I declined. Now, he wants to put me on Prolia. There seems to be many side effects to this also. I was on Fosomax and had many bad abdominal side effects. I'm told these are my
Rocknlily
in
Bone Health and Osteoporosis UK
1 year ago
ARTIFICIAL LIVER
Good news , maybe we don’t have to wait for a liver transplant after all. I didn’t realise that machines existed that can carry out the function of the liver, at this stage they are external like kidney dialysis. Would think you have to hooked up permanently as the liver is always working.
Good news , maybe we don’t have to wait for a liver transplant after all. I didn’t realise that machines existed that can carry out the function of the liver, at this stage they are external like kidney dialysis. Would think you have to hooked up permanently as the liver is always working.
Oztrax
in
British Liver Trust
1 year ago
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We are incredibly excited to see you in-person at this year’s AF Association Patients Day!
You can expect a jam-packed agenda, with a wide range of topics from anticoagulants, pacemakers, AF ablation and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers alike to hear about
You can expect a jam-packed agenda, with a wide range of topics from anticoagulants, pacemakers, AF ablation and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers alike to hear about
Hidden
Partner
in
AF Association
1 year ago
Depression and Anxiety
I am 68 years male, retired, with diabetes, liver transplant suffering from depression and anxiety. I am single, feel bored, not having hobbies, difficult to pass time alone. Not having friends to talk so missing a lot. I always think of doing suicide. Need help and support.
I am 68 years male, retired, with diabetes, liver transplant suffering from depression and anxiety. I am single, feel bored, not having hobbies, difficult to pass time alone. Not having friends to talk so missing a lot. I always think of doing suicide. Need help and support.
MOVY
in
Anxiety and Depression Support
1 year ago
I don't quite understand?
So what is being "Policed" here is natural progression? Surely it is quite natural to progress a subject as it tumbles around an educated group and when it runs out of steam, someone else will bring the group back on track with another "CLEAN" post! That is how a democracy works - well at least I and
So what is being "Policed" here is natural progression? Surely it is quite natural to progress a subject as it tumbles around an educated group and when it runs out of steam, someone else will bring the group back on track with another "CLEAN" post! That is how a democracy works - well at least I and
Kelling
in
British Heart Foundation
1 year ago
TAVI pre and post experience?
I have severe aortic valve stenosis (bicuspid valve) but am asymptomatic. I am terrified of the idea of open heart surgery, or any other treatment for that matter, but considering having a Transcatheter aortic valve implementation . I would be interested to hear about experiences of pre and post implementation
I have severe aortic valve stenosis (bicuspid valve) but am asymptomatic. I am terrified of the idea of open heart surgery, or any other treatment for that matter, but considering having a Transcatheter aortic valve implementation . I would be interested to hear about experiences of pre and post implementation
Rosslare
in
Heart Valve Voice
1 year ago
Shortness of breadth
I had open heart surgery 8 years ago, I used to have AFIB but a valve replacement resolved it so far. I also have sleep apnea and use a cpap. Recently I have been getting up in the middle of the night once or twice to urinate and I am experiencing shortness of breadth. After I urinate it goes away.
I had open heart surgery 8 years ago, I used to have AFIB but a valve replacement resolved it so far. I also have sleep apnea and use a cpap. Recently I have been getting up in the middle of the night once or twice to urinate and I am experiencing shortness of breadth. After I urinate it goes away.
tk5518
in
AF Association
1 year ago
Sudden increase in resting Heart Rate?
Bit puzzled by this, wondering if anyone had any clever ideas? I've tried to ring the local arrhythmia nurses but not got through yet, emailed them yesterday but no reply so far. I'm on 1x1.25mg biso and 1x50 flec twice daily which appears to have been working Ok.
Saturday I did a local park run
Bit puzzled by this, wondering if anyone had any clever ideas? I've tried to ring the local arrhythmia nurses but not got through yet, emailed them yesterday but no reply so far. I'm on 1x1.25mg biso and 1x50 flec twice daily which appears to have been working Ok.
Saturday I did a local park run
kitenski
in
AF Association
1 year ago
Bereavement and loss.
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Biofreak
in
Lung Conditions Community Forum
1 year ago
Flecainide: Worse AFib attack ever after being prescribed at a+e admission
Hi all hope everyone is well. Wish I was. Two days ago I was diagnosed with angina in ACU and prescribed yet more medication. The angina I now have is distinct from AFib type of angina pain which I am familiar with ie: I only experience it when I'm in afib. So A fib free, in NSR i have angina pain quite
Hi all hope everyone is well. Wish I was. Two days ago I was diagnosed with angina in ACU and prescribed yet more medication. The angina I now have is distinct from AFib type of angina pain which I am familiar with ie: I only experience it when I'm in afib. So A fib free, in NSR i have angina pain quite
DizzyD
in
Atrial Fibrillation Support
1 year ago
We are incredibly excited to see you in-person at this year’s Arrhythmia Alliance Patients Day!
You can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers
You can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
It never rains, always seems to pour.
I went in for my op 8 days ago and it went better than I expected, by the I mean the spinal soon cleared, i did not bleed and got home earlier than expected, So far so good. Three night later I had a nasty fall, I meen I moved in a bungalow because I have fallen down stairs twice. So my nose seemed
I went in for my op 8 days ago and it went better than I expected, by the I mean the spinal soon cleared, i did not bleed and got home earlier than expected, So far so good. Three night later I had a nasty fall, I meen I moved in a bungalow because I have fallen down stairs twice. So my nose seemed
Ern007
in
Lung Conditions Community Forum
1 year ago
TantaAnna update post sixth ablation
Going to have a pacemaker implanted this Friday! My journey continues, seeking QOL to improve, not good for over four months. Had six ablation (for atrial tachycardia) with six spots ablated by Texas Dr. I still have fluctuations in heart rate changing minute to minute almost., sitting still. I can’
Going to have a pacemaker implanted this Friday! My journey continues, seeking QOL to improve, not good for over four months. Had six ablation (for atrial tachycardia) with six spots ablated by Texas Dr. I still have fluctuations in heart rate changing minute to minute almost., sitting still. I can’
Tantaanna
in
AF Association
1 year ago
transplant with no social support?
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
bundelino
in
Lung Conditions Community Forum
1 year ago
Tips for supporting my Dad after heart bypass
Hi all, My Dad is having a triple heart bypass next week so I wanted to ask if there’s anything that anyone found particularly useful/ helpful whilst in hospital and for recovery. Also anything I can do to support my mum too would be wonderful. I’m planning on staying with my mum the week he is
Hi all, My Dad is having a triple heart bypass next week so I wanted to ask if there’s anything that anyone found particularly useful/ helpful whilst in hospital and for recovery. Also anything I can do to support my mum too would be wonderful. I’m planning on staying with my mum the week he is
ML51
in
British Heart Foundation
1 year ago
Afib attack
My mum who's 88 & asymptomatic with afib,had an attack,where she couldn stop shaking & could feel her heart jumping around,hospital increased her blood pressure medication,any one here experience a similar thing ?
My mum who's 88 & asymptomatic with afib,had an attack,where she couldn stop shaking & could feel her heart jumping around,hospital increased her blood pressure medication,any one here experience a similar thing ?
Nugger
in
AF Association
1 year ago
Heart failure dizziness when standing up or looking up
I'm fine with breathing and moving about but if I've been sat for a while and get up I shake and feel dizzy. never happens when i get out of bed or from the toilet just the sofa.
I'm fine with breathing and moving about but if I've been sat for a while and get up I shake and feel dizzy. never happens when i get out of bed or from the toilet just the sofa.
thelad73
in
AF Association
1 year ago
THE “C” WORD
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Oztrax
in
British Liver Trust
1 year ago
Can Anyone Help?
I’m currently abroad and have ‘spanish tummy’. Anyone know of any reason I can’t take Imodium or Dioralyte with Flecainide/Bisoprolol or Apixaban?
I’m currently abroad and have ‘spanish tummy’. Anyone know of any reason I can’t take Imodium or Dioralyte with Flecainide/Bisoprolol or Apixaban?
SilverliningsForNow
in
AF Association
1 year ago
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