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If I Didn't Have Faith and Family Like You!
Now, I just shared my story about my weekend in NY seeing Chris Botti; now I'm sitting in the Family Waiting Room of Jefferson Hospital for hubby to get out of surgery. He kept complaining of bad back and stomach pain. Well, large Kidney Stone causing a blockage! He needed a different procedure; not
Now, I just shared my story about my weekend in NY seeing Chris Botti; now I'm sitting in the Family Waiting Room of Jefferson Hospital for hubby to get out of surgery. He kept complaining of bad back and stomach pain. Well, large Kidney Stone causing a blockage! He needed a different procedure; not
GratefulNeeC
in
My MSAA Community
6 months ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
3 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
3 months ago
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What is my status
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
JennyWrenn4
in
Thyroid UK
5 months ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
3 months ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
3 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
3 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
3 months ago
Muscle wasting?
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
kaypeeoh
in
Cure Parkinson's
6 months ago
How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
3 months ago
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day?
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Shewulf
Administrator
in
LDN Research Trust
3 months ago
unexplained chest pain and shortness of breath .
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
Susiequest
in
NRAS
2 months ago
Positive results after five months
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
Pisces101
in
Early CKD Support
6 months ago
Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
3 months ago
Malar rash caused by heat?
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Nome11
in
LUPUS UK
3 months ago
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
https://www.science.org/doi/10.1126/scisignal.adi9018 "Editor’s summary: The cell death that occurs in neurodegenerative diseases is due partly to decreased
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
https://www.science.org/doi/10.1126/scisignal.adi9018 "Editor’s summary: The cell death that occurs in neurodegenerative diseases is due partly to decreased
Bolt_Upright
in
Cure Parkinson's
6 months ago
Role of Luteolin in overcoming Parkinson's disease 2021
Role of Luteolin in overcoming Parkinson's disease 2021
https://sci-hub.ru/10.1002/biof.1706 "The incidence of life threating neurodegenerative diseases such as PD is increasing day by day. Sporadic as well as genetic causes are well documented. Due to the decline in the dopaminergic neurons,
Role of Luteolin in overcoming Parkinson's disease 2021
https://sci-hub.ru/10.1002/biof.1706 "The incidence of life threating neurodegenerative diseases such as PD is increasing day by day. Sporadic as well as genetic causes are well documented. Due to the decline in the dopaminergic neurons,
Bolt_Upright
in
Cure Parkinson's
6 months ago
Advice please?
Hi all. I just wanted to see if anybody has experienced the same as me. I am a 28 year old male. I used to drink very heavily for around 6-7 years. I drank vodka with lemonade and could get through a couple of litres a week following my dad's death (not an excuse but it is the reason I drank so much
Hi all. I just wanted to see if anybody has experienced the same as me. I am a 28 year old male. I used to drink very heavily for around 6-7 years. I drank vodka with lemonade and could get through a couple of litres a week following my dad's death (not an excuse but it is the reason I drank so much
Connorsw95
in
British Liver Trust
6 months ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
3 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
3 months ago
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