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Hand-foot-and-mouth disease
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SPECT scan horror
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
I had a SPECT scan after first does of Pluvicto. I had no idea how horrible a scan could be. There are things that project out to get as close to you as possible. I have had many CT scans MRIs PET scans but this is different. I do have a bit of claustrophobia but never felt this horrible before. They
spencoid2
in
Advanced Prostate Cancer
7 months ago
REMINDER! Harrogate Lupus Group - Coffee and Chat meeting - 2nd March 10.30am
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
michaellasmith
Administrator
in
LUPUS UK
4 months ago
Dr Guptas video
Has anyone seen the video re cardiac anxiety? I'm trying to figure out what comes first the anxiety or the list of symptoms ie palpitations chest pain etc. Has anyone dived into this research?
Has anyone seen the video re cardiac anxiety? I'm trying to figure out what comes first the anxiety or the list of symptoms ie palpitations chest pain etc. Has anyone dived into this research?
TillyBoss
in
Atrial Fibrillation Support
3 months ago
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The ups and downs of our rollercoaster OC journeys
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
When I recovered from debulking earlier this year I gave myself a good talking to and vowed not to let myself go from blood check to blood check worrying about them. I was so pleased my first check showed bloods were normal so thought my plan was working but then prior to the 6 month check developed
Jholly4
in
My Ovacome
7 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
5 months ago
Oxygen therapy
I am helping to look after my 88 year old sister at present. She has been prescribed ambulatory oxygen therapy following a diagnosis of pulmonary hypertension, I think related to her Protein S Deficiency. She is frail and even the small oxygen cylinders are heavy and difficult for her to use but oxygen
I am helping to look after my 88 year old sister at present. She has been prescribed ambulatory oxygen therapy following a diagnosis of pulmonary hypertension, I think related to her Protein S Deficiency. She is frail and even the small oxygen cylinders are heavy and difficult for her to use but oxygen
mozart27
in
Lung Conditions Community Forum
3 months ago
Anticoagulant for AF
I've seen some helpful posts on this site and I hope someone can help me further. I was recently diagnosed with AF but I don't have a fast heart rate. My pulse rarely gets to 59. My doctor has prescribed an anticoagulant (Eliquis) but I'm scared of taking it because of the side effects. I had two bleeding
I've seen some helpful posts on this site and I hope someone can help me further. I was recently diagnosed with AF but I don't have a fast heart rate. My pulse rarely gets to 59. My doctor has prescribed an anticoagulant (Eliquis) but I'm scared of taking it because of the side effects. I had two bleeding
Calypso76
in
Atrial Fibrillation Support
3 months ago
Afib and PE
Hi I have already felt supported and informed by this group and wanted to share my experience in the hope I can continue to learn about my recent diagnoses. I am 67 and other than having COPD was in reasonable health even though I am a bit overweight and probably drink more wine than is good for me
Hi I have already felt supported and informed by this group and wanted to share my experience in the hope I can continue to learn about my recent diagnoses. I am 67 and other than having COPD was in reasonable health even though I am a bit overweight and probably drink more wine than is good for me
RockingRoxy
in
Atrial Fibrillation Support
3 months ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
4 months ago
6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Vasili
in
Advanced Prostate Cancer
7 months ago
Home Oxygen Therapy
I don't recall seeing this mentioned on here but was wondering if anyone had experiences of being discharged home with Oxygen after an ICU stay. I'm a month out of hospital (after a total stay of 8 months). I was discharged with a CPAP machine for OSA and prescribed 1l of oxygen at night whilst in the
I don't recall seeing this mentioned on here but was wondering if anyone had experiences of being discharged home with Oxygen after an ICU stay. I'm a month out of hospital (after a total stay of 8 months). I was discharged with a CPAP machine for OSA and prescribed 1l of oxygen at night whilst in the
CCXLI
in
ICUsteps
3 months ago
Benfotiamine In The Mix For PD Again?
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
The following new animal study (December 2023) suggests that the fat soluble form of vitamin B1, Benfotiamine, may also be suitable for PD : https://www.sciencedirect.com/science/article/abs/pii/S0014299923007483?via%3Dihub Here is a relevant study quote :
' The results demonstrated that treatment
chartist
in
Cure Parkinson's
7 months ago
Apple watch and Kardia questions
I saw my cardiologist yesterday and we have agree although no AF yet (maybe A flutter) on 24hr ECG getting a watch and maybe a kardia is a good idea. I am planning to buy the watch and the local apple shop ( Edinburgh UK) and wanted to ask a few questions before hand. Ive read some on what the watch
I saw my cardiologist yesterday and we have agree although no AF yet (maybe A flutter) on 24hr ECG getting a watch and maybe a kardia is a good idea. I am planning to buy the watch and the local apple shop ( Edinburgh UK) and wanted to ask a few questions before hand. Ive read some on what the watch
ainslie
in
Atrial Fibrillation Support
3 months ago
cardioversion
hi, I had my first Cardioversion at St Richards Chichester on 11th March. (First diagnosed early January but probably been in AF since Sept) It worked initially but reverted to AF very shortly after. Since watching the very helpful video interview on this site with Prof Gupta, now realise that most revert
hi, I had my first Cardioversion at St Richards Chichester on 11th March. (First diagnosed early January but probably been in AF since Sept) It worked initially but reverted to AF very shortly after. Since watching the very helpful video interview on this site with Prof Gupta, now realise that most revert
Ongreendolphinstreet
in
Atrial Fibrillation Support
3 months ago
Heart problems
Has anybody else experienced heart problems with an MPN?I have been having heart palpitations and more severe breathlessness than usual for about 6 months. An x-ray showed an enlarged heart and I've been awaiting the results of an echocardiogram since January, but repeated calls to the hospital and
Has anybody else experienced heart problems with an MPN?I have been having heart palpitations and more severe breathlessness than usual for about 6 months. An x-ray showed an enlarged heart and I've been awaiting the results of an echocardiogram since January, but repeated calls to the hospital and
JP1952
in
MPN Voice
3 months ago
New diagnosis
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
DogsMakeLifeGood
in
NRAS
4 months ago
TSH 37 - taking Levothyroxine 200mg
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
Jadewhitcombe
in
Thyroid UK
4 months ago
COVID
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
KatzFib
in
Atrial Fibrillation Support
3 months ago
Serum cortisol test results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
Hello all, Further to my saliva cortisol test (link to post below), I requested a serum cortisol test at my GPs (8.45am, yesterday): Serum cortisol level 381 nmol/L >350 nmol/L makes adrenal insufficiency unlikely Is this in keeping with my less-than-optimal-and-occasionally-below-range saliva results
J972
in
Thyroid UK
7 months ago
Looking for feedback regarding Asymptomatic Afib
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
DrBook
in
Atrial Fibrillation Support
3 months ago
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