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Eribulin/ Halaven experiences.
starting Eribulin after trodelvy did the trick for 6 months. I’m beet nervous and scared as you all know when starting anew chemo. Scared it won’t work and scared of side effects. I now have liver Mets🥹. I’m devastated. Can someone share some experiences with this drug? Side effects? How long they
starting Eribulin after trodelvy did the trick for 6 months. I’m beet nervous and scared as you all know when starting anew chemo. Scared it won’t work and scared of side effects. I now have liver Mets🥹. I’m devastated. Can someone share some experiences with this drug? Side effects? How long they
Maraki
in
SHARE Metastatic Breast Cancer
2 months ago
No option!?
eribulin,
halaven
, orserdu, enhertu are not available here. So we need a suggestion of what other therapies (perhaps older chemo) would come into consideration? The oncologist says he has nothing another to give her. Help, suggest what to do next...
eribulin,
halaven
, orserdu, enhertu are not available here. So we need a suggestion of what other therapies (perhaps older chemo) would come into consideration? The oncologist says he has nothing another to give her. Help, suggest what to do next...
Goga156
in
SHARE Metastatic Breast Cancer
5 days ago
Halaven (Erubulin)
has anyone been on this drug ?
has anyone been on this drug ?
worldtravel75
in
SHARE Metastatic Breast Cancer
7 months ago
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Halaven
I am currently on
Halaven
which is my fourth line of defense. Hopeful!
I am currently on
Halaven
which is my fourth line of defense. Hopeful!
Waffles1
in
SHARE Metastatic Breast Cancer
2 years ago
How are you sleeping?
Literally… how on earth are you sleeping, because I can’t sleep. I have PBC/PSC overlap and am in early cirrhosis. I take Urso, Ocaliva, Prednisone, Salagen and thyroid meds by prescription. I was taking Benadryl a couple days and it was perfect, out like a light. I read Benadryl may not be safe for
Literally… how on earth are you sleeping, because I can’t sleep. I have PBC/PSC overlap and am in early cirrhosis. I take Urso, Ocaliva, Prednisone, Salagen and thyroid meds by prescription. I was taking Benadryl a couple days and it was perfect, out like a light. I read Benadryl may not be safe for
IAmTheGlue
in
PBC Foundation
2 years ago
Finally out of isolation from covid
She wants to try me on
halaven
. I have been experiencing a lot of pain in my left side not too sure what that is but has not stopped for a good 6 weeks. 4 months is a long time to be off medication. I accept all of my decisions just not sure where I go from here.
She wants to try me on
halaven
. I have been experiencing a lot of pain in my left side not too sure what that is but has not stopped for a good 6 weeks. 4 months is a long time to be off medication. I accept all of my decisions just not sure where I go from here.
Shelby4now
in
SHARE Metastatic Breast Cancer
4 years ago
Eribulin (Halaven )stopped working
Dear ladies , I have metastatic breast cancer ( liver) . I was on Ibrance nearly 3 years and it stopped working in September 2020. My oncologist put me on Eribulin and only had 4 cycles, when unfortunately Eribulin attacked my neutrophils and took nearly 2 weeks to get it back to normal. Doctors are
Dear ladies , I have metastatic breast cancer ( liver) . I was on Ibrance nearly 3 years and it stopped working in September 2020. My oncologist put me on Eribulin and only had 4 cycles, when unfortunately Eribulin attacked my neutrophils and took nearly 2 weeks to get it back to normal. Doctors are
Euebdbdbddh
in
SHARE Metastatic Breast Cancer
4 years ago
Has anyone been on Eribulin (Halaven)
Met with my onc a few days ago and she would like the next line of treatment to be Eribulin I would assume it is a later IV chemo drug to take. I have lost track on how many treatments I have tried. I'm probably well over 10........ My mbc has spread entirely into the skeletal bones... Ribs, hips,
Met with my onc a few days ago and she would like the next line of treatment to be Eribulin I would assume it is a later IV chemo drug to take. I have lost track on how many treatments I have tried. I'm probably well over 10........ My mbc has spread entirely into the skeletal bones... Ribs, hips,
Shelby4now
in
SHARE Metastatic Breast Cancer
4 years ago
Updating treatment plan
I just received a letter from insurance company approving a chemotherapy medication called
Halaven
. Has anyone heard of it? Treatment is 21 days two weeks on one week off. I guess this is what my new oncologist is going to try. Will let you know how I do.
I just received a letter from insurance company approving a chemotherapy medication called
Halaven
. Has anyone heard of it? Treatment is 21 days two weeks on one week off. I guess this is what my new oncologist is going to try. Will let you know how I do.
Jerseygirl45
in
SHARE Metastatic Breast Cancer
4 years ago
Eribulin (Halaven)
The oncologist is putting me on eribulin (
halaven
) iv chemo next. It’s a 21 day cycle with infusions on day 1 and 8 and then a week’s break. Has anyone had this, any tips? If you’ve had was it administered with any other drugs? Any advice gratefully received 😊 Julie
The oncologist is putting me on eribulin (
halaven
) iv chemo next. It’s a 21 day cycle with infusions on day 1 and 8 and then a week’s break. Has anyone had this, any tips? If you’ve had was it administered with any other drugs? Any advice gratefully received 😊 Julie
Julie2233
in
SHARE Metastatic Breast Cancer
4 years ago
Tumor markers swinging wildly.
I started
Halaven
in September. my tumor markers went from 1498 to 190. Then, last month, they were 400. Had cat scan of my chest, pelvis, and abdomen. Everything was stable. My onc said that maybe I had an "inner inflammation." Has anyone had this happen?
I started
Halaven
in September. my tumor markers went from 1498 to 190. Then, last month, they were 400. Had cat scan of my chest, pelvis, and abdomen. Everything was stable. My onc said that maybe I had an "inner inflammation." Has anyone had this happen?
Iwngca
in
SHARE Metastatic Breast Cancer
5 years ago
How low does my wbc have to be for me not to get my Halaven injection?
After my first injection of
Halaven
, wbc was 4. After second, it was 2.9. My oncologist says that my wbc needs to get back up. I can't take Neulasta since it could trigger my leukemia to come back. How high does it have to be?
After my first injection of
Halaven
, wbc was 4. After second, it was 2.9. My oncologist says that my wbc needs to get back up. I can't take Neulasta since it could trigger my leukemia to come back. How high does it have to be?
Iwngca
in
SHARE Metastatic Breast Cancer
5 years ago
Devastated: halaven fourth line of treatment
I’ve just started
Halaven
and I’m exhausted of the mental and physical strain. Can anyone share sim8lar experiences pls in regard to how to deal with such adamant progression and experiences with
Halaven
. I’m devastated and on the verge of giving up 😢
I’ve just started
Halaven
and I’m exhausted of the mental and physical strain. Can anyone share sim8lar experiences pls in regard to how to deal with such adamant progression and experiences with
Halaven
. I’m devastated and on the verge of giving up 😢
monalbaki
in
SHARE Metastatic Breast Cancer
6 years ago
looking for someone taking Halaven (Eribulin) for metastatic breast cancer?
Support service organization is looking for a peer for a volunteer who is taking
Halaven
(Eribulin) for metastatic breast cancer? She is now mets to her liver and will be starting this soon.
Support service organization is looking for a peer for a volunteer who is taking
Halaven
(Eribulin) for metastatic breast cancer? She is now mets to her liver and will be starting this soon.
daf10
in
SHARE Metastatic Breast Cancer
7 years ago
Salagen/Pilocarpine
Hi Everyone I am not sure if there has been a post on here recently regarding Salagen. I did one last year when I was having trouble locating it . Well today I learnt from my Rhumy nurse that Pilocarpine/ Salagen is no longer being made and once the stock has been depleted there will be no more. I know
Hi Everyone I am not sure if there has been a post on here recently regarding Salagen. I did one last year when I was having trouble locating it . Well today I learnt from my Rhumy nurse that Pilocarpine/ Salagen is no longer being made and once the stock has been depleted there will be no more. I know
Mrsdoozer
in
LUPUS UK
7 years ago
Pilocarpine Salagen
Hi Everyone I am not sure if there has been a post on here recently regarding Salagen. I did one last year when I was having trouble locating it . Well today I learnt from my Rhumy nurse that Pilocarpine/ Salagen is no longer being made and once the stock has been depleted there will be no more. I
Hi Everyone I am not sure if there has been a post on here recently regarding Salagen. I did one last year when I was having trouble locating it . Well today I learnt from my Rhumy nurse that Pilocarpine/ Salagen is no longer being made and once the stock has been depleted there will be no more. I
Mrsdoozer
in
IBS Network
7 years ago
Halaven
Anybody on
Halaven
can give me some feed back on their experience I am having very low energy and legs feel like jelly I have only had two treatments so far I go for blood work on Friday to see if white cells are good.
Anybody on
Halaven
can give me some feed back on their experience I am having very low energy and legs feel like jelly I have only had two treatments so far I go for blood work on Friday to see if white cells are good.
Anneespo
in
SHARE Metastatic Breast Cancer
7 years ago
New Oncologist Continued
I will stay on the aribulin/
halaven
with scans in early June. So far my tumor markers have been decreasing and I am feeling pretty good. I have my good "hours" and not so good "hours". Boy, life is different when you have metastatic cancer!
I will stay on the aribulin/
halaven
with scans in early June. So far my tumor markers have been decreasing and I am feeling pretty good. I have my good "hours" and not so good "hours". Boy, life is different when you have metastatic cancer!
Barbara-Aschner
in
SHARE Metastatic Breast Cancer
7 years ago
HELP PLEASE???
I'm quite new here, to all this. I've been on hydroxychloroquine, colchicine, and salagen for about 8 months and was doing great and then I hit a brick wall, called my Dr and he put me on short corse of steroids, in a few days started feeling better and about a week I got back on my feet and was feeling
I'm quite new here, to all this. I've been on hydroxychloroquine, colchicine, and salagen for about 8 months and was doing great and then I hit a brick wall, called my Dr and he put me on short corse of steroids, in a few days started feeling better and about a week I got back on my feet and was feeling
Loopydroopy
in
LUPUS UK
8 years ago
Salagen (Pilocarpine)
I was just wondering if any other Lupus with Sjogren's patients were struggling to get supplies of Salagen again. My pharmacy was saying the next supplies are due in May 2017 now. Is anyone else experiencing problems ?
I was just wondering if any other Lupus with Sjogren's patients were struggling to get supplies of Salagen again. My pharmacy was saying the next supplies are due in May 2017 now. Is anyone else experiencing problems ?
jupus
in
LUPUS UK
8 years ago
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