Hi ladies I thought you would like to know the covid isolation is now over . They kept extending the time due to my compromised immune system 30 days. I need some help ....since November 15 the I have not been on any treatment .. It was more situational.... Cancelled clinical trial.. Hospital 8 days .. Early December .. Got a pet scan end of December still progression.. I asked my oncologist if I could have another month off chemo to get over my lung infection and blood clots...she agreed and thank goodness as I came down with covid. I'm glad I had not started treatment as the doctor stated the outcome could have been different.i have a pet scan scheduled for Thursday March 4 and see doctor on March 11 . I know the progression has not stopped. She wants to try me on halaven. I have been experiencing a lot of pain in my left side not too sure what that is but has not stopped for a good 6 weeks. 4 months is a long time to be off medication. I accept all of my decisions just not sure where I go from here. It's been 10 plus years lots of different treatment and have never stopped the progression just have slowed it down. I can't talk to family yet .... What would you do...
Thanks for listening
So sorry for such a long post
Take care
Be safe
🙏🏻❤️
Shelby
Written by
Shelby4now
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A very hard question to answer! I would wait until I got my results back before I decided anything. But then you have to weigh all your options. I know nothing about Haloven so I can’t speak to going on it or not. If it’s your only option, I would go for it. I don’t know your family situation either. If you are married, should you clue your husband in? Mine would want to know. I haven’t done a thing here to help you, and I suspect that the lack of answers may be due to the fact that we don’t know the answers to your questions. But please know that we will be here to support you when you have more information and whatever your decisions are.
Thanks Elaine. I'm not even sure what kind of answers I was looking for I guess I was just rambling though my thought processes. I tell my husband everything. It took me some time to share with him because I hated to see the hurt in his eyes. We have moved past that
I just looked back at your older posts and realized I’d missed your post of getting married a short time ago. I’d share your anxieties about this new medication and what your next decision will be with your husband. Anyone willing to marry knowing what the future could bring deserves the truth of your situation and probably wants to share those worries with you. You are so lucky to have him!
Dear ShelbyI was so happy for you when you wrote about your love and marriage. I still am. I assume that you must be sharing everything with the love of your life and that when you say family members that does not apply to him? I certainly don't share everything with my family members. I share what I think they can handle. You have enough on your plate without worrying about how others will handle your heavy duty decisions.
I so admire you! I love that you have been off medications for a while. So, you gave your body time to heal in other ways while the cancer grew. It makes perfect sense to me.
You ask what others would do. What we could do is to follow your brilliant example!
Of course you will do what the oncologist advises and if she/he advises something you disagree with, you won't do that. You re leading your own life brilliantly. Keep it up, girl!
I loved your response. A few tears later it made me feel good. We have such a small family I have a sister 11 years older than me son daughter and 3 grandchildren. The twins are graduating this year and have been accepted with full scholarships one to McGill The other to UBC . They have held a 98% average since grade 9 in all subjects. That is where my happiness lies . I want to see them graduate .
and see them off to university if I can thanks for listening
Welcome back, Shelby! You have been through a difficult and challenging time but there are still options out there for you. It is easy to think the worst when you are having progression and especially as you have had to be off medication- I am staying on Ibrance and Letrozole at the moment despite some progression over the last few months, because it seems to be slow-growing, but I have scans this month and am apprehensive. Our oncologists will have a plan for us.
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Good news from my first post treatment scan.
COVID positive , any feedback appreciated.
Update finally on treatment 
Phone call from my Oncologist
How often should I do PET scan?
