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Golimumab
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R/A treatment.
My current medication is monthly injections of "Simponi" (
golimumab
), but for the last 3 weeks the pain from the R/A has been bad, the local G.P prescribed 80mg daily of "tramadol "as a pain killer, my last appointment at Rheumatology was on 1/4/14, last week I telephoned the Hospital to request an appointment
My current medication is monthly injections of "Simponi" (
golimumab
), but for the last 3 weeks the pain from the R/A has been bad, the local G.P prescribed 80mg daily of "tramadol "as a pain killer, my last appointment at Rheumatology was on 1/4/14, last week I telephoned the Hospital to request an appointment
Scorpius
in
NRAS
10 years ago
Hi I am new to this site...I am about to move to injections. Can anyone share their experience
i have been asked if i want to take etanercept as a weekly jab, adalimumab as a fortnightly jab and
golimumab
as a monthly jab. mxt is doing nothing for me and my steroid injection lasted 8 weeks max. I have 2 permanently swollen fingers and another nodule growing on another finger.
i have been asked if i want to take etanercept as a weekly jab, adalimumab as a fortnightly jab and
golimumab
as a monthly jab. mxt is doing nothing for me and my steroid injection lasted 8 weeks max. I have 2 permanently swollen fingers and another nodule growing on another finger.
sarah1968
in
NRAS
10 years ago
Advice please at my wits end here so low have RA
I am currently on these medications Sertraline 100mg 1 Bedranolol 160mg, Cyclizine 50mg twice daily, Folic acid 5mg, Tramadol 50mg 8 caps daily, sulfasalazine 500mg 6 tablets daily, Leflunomide 10mg, Lansoprazole 30mg, Methotrexate 15mg,
Golimumab
2 smartject pens, Vit B12.
I am currently on these medications Sertraline 100mg 1 Bedranolol 160mg, Cyclizine 50mg twice daily, Folic acid 5mg, Tramadol 50mg 8 caps daily, sulfasalazine 500mg 6 tablets daily, Leflunomide 10mg, Lansoprazole 30mg, Methotrexate 15mg,
Golimumab
2 smartject pens, Vit B12.
stiffenlady
in
NRAS
10 years ago
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Simponi/Golimumab - Please can anyone share their experience?
Hello, I'm posting on behalf of my friend who has been offered the anti-TNF drug Simponi/
Golimumab
for Ankylosing Spondylitis and RA. Please can anyone share their experiences of this drug? Thanks so much, Tillyx
Hello, I'm posting on behalf of my friend who has been offered the anti-TNF drug Simponi/
Golimumab
for Ankylosing Spondylitis and RA. Please can anyone share their experiences of this drug? Thanks so much, Tillyx
Tillytop
in
NRAS
11 years ago
Which dietary changes can I make to gain better control over my Rheumatoid Arthritis? Should I go gluten/wheat, dairy and acid free?
I know of people who changed their diet once they were diagnosed and have never needed drugs apart from the occasional course of steroids, whereas I am on 25mg Methotrexate injectable a week and Hydroxycholoroquine and am looking to start
Golimumab
treatment.
I know of people who changed their diet once they were diagnosed and have never needed drugs apart from the occasional course of steroids, whereas I am on 25mg Methotrexate injectable a week and Hydroxycholoroquine and am looking to start
Golimumab
treatment.
blondii
in
NRAS
11 years ago
What are the side effects of Golimumab when using with or after treatment of Methotrexate (injected) and Hydroxycholoroquine?
I am wondering if anyone has suffered side effects, severe or otherwise and particularly young women, from
Golimumab
treatment and whether it will affect my fertility later in life. Any knowledge on this drug would be most helpful.
I am wondering if anyone has suffered side effects, severe or otherwise and particularly young women, from
Golimumab
treatment and whether it will affect my fertility later in life. Any knowledge on this drug would be most helpful.
blondii
in
NRAS
11 years ago
NICE decision on Belimumab
Here is our statement following the latest decision by NICE on the use of Belimumab in the treatment of lupus; http://lupusuk.org.uk/latest-news/nice-belimumab You can read more about NICE's decision on their website here; http://www.nice.org.uk/newsroom/pressreleases/NICEConsultsBelimumabSystemicLupusErythematosus.jsp
Here is our statement following the latest decision by NICE on the use of Belimumab in the treatment of lupus; http://lupusuk.org.uk/latest-news/nice-belimumab You can read more about NICE's decision on their website here; http://www.nice.org.uk/newsroom/pressreleases/NICEConsultsBelimumabSystemicLupusErythematosus.jsp
Paul_Howard
LUPUS UK
in
LUPUS UK
11 years ago
Prof Graham Hughes' blog May 2013
'The coldest spring in fifty years?’ Anyway, whatever this month's record was, it was certainly unseasonable. And it seems to have been unseasonable over much of Europe .Last Friday I was in Zurich, where the snow level was at an unprecedented low for late May. The Zurich meeting was interesting
'The coldest spring in fifty years?’ Anyway, whatever this month's record was, it was certainly unseasonable. And it seems to have been unseasonable over much of Europe .Last Friday I was in Zurich, where the snow level was at an unprecedented low for late May. The Zurich meeting was interesting
Hidden
in
Hughes Syndrome APS Forum
11 years ago
New and a little shy :)
Having tried four DMARDS and suffered horrible side effects with all I have moved on to
Golimumab
. 3 injections in I have had a week in hospital, my worst joint pain ever & a complete meltdown. I have an appointment at the rheumatologist tomorrow which can't come soon enough.
Having tried four DMARDS and suffered horrible side effects with all I have moved on to
Golimumab
. 3 injections in I have had a week in hospital, my worst joint pain ever & a complete meltdown. I have an appointment at the rheumatologist tomorrow which can't come soon enough.
pennylane
in
NRAS
11 years ago
Has anyone applied to their PCT for the Belimumab/Benlysta treatment? If so, what was the result?
I know that NICE has refused to recommend Belimumab for treatment for lupus patients (4 days ago!) but this does not necessarily mean that a PCT can't sanction it, if they're presented with good reasons, evidence and consultants' recommendation. But the NICE refusal and the general drive to cut costs
I know that NICE has refused to recommend Belimumab for treatment for lupus patients (4 days ago!) but this does not necessarily mean that a PCT can't sanction it, if they're presented with good reasons, evidence and consultants' recommendation. But the NICE refusal and the general drive to cut costs
alyosha
in
LUPUS UK
11 years ago
Decision Decision Decision
the 3 in question are - etanercept ( enbrel ) , adalimumab ( humira ) and
golimumab
( simponi ) ...
the 3 in question are - etanercept ( enbrel ) , adalimumab ( humira ) and
golimumab
( simponi ) ...
_andy_
in
NRAS
11 years ago
Has anyone had treatment with BELIMUMAB for aps?
Ive had treatment of mabthera (rituximab) for 13 months, 2 doses per month....in my case, it helped a little but not as much as my doctor would have liked it. This wasnt as horrible as fchristal says, it didnt repressed my immune system like that and i had no side effects but the weakness the first weak
Ive had treatment of mabthera (rituximab) for 13 months, 2 doses per month....in my case, it helped a little but not as much as my doctor would have liked it. This wasnt as horrible as fchristal says, it didnt repressed my immune system like that and i had no side effects but the weakness the first weak
pamcelis
in
Hughes Syndrome APS Forum
12 years ago
Press statement on NICE’s Announcement on Belimumab
LUPUS UK is extremely disappointed that NICE has refused to recommend Belimumab for treatment for lupus patients experiencing a high degree of disease activity who have not responded to other treatments. ”This is a real tragedy as it leaves patients, who have found other drugs ineffectual in controlling
LUPUS UK is extremely disappointed that NICE has refused to recommend Belimumab for treatment for lupus patients experiencing a high degree of disease activity who have not responded to other treatments. ”This is a real tragedy as it leaves patients, who have found other drugs ineffectual in controlling
Paul_Howard
LUPUS UK
in
LUPUS UK
12 years ago
Is anybody on high dose 100mg Golimumab?
I was on the high dose
Golimumab
100mg for a few months before I started getting Thunder Clap headaches and my hair started to fall out.
I was on the high dose
Golimumab
100mg for a few months before I started getting Thunder Clap headaches and my hair started to fall out.
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
My 2 Year RA Anniversary
I was switched to humira and immediately had an allergic reaction so I was changed to
golimumab
and due to start it mid november. Just before starting the goli I got a rash and spoke to my rheumy nurse who got me in there and then to see the consultant.
I was switched to humira and immediately had an allergic reaction so I was changed to
golimumab
and due to start it mid november. Just before starting the goli I got a rash and spoke to my rheumy nurse who got me in there and then to see the consultant.
MrsFitz17
in
NRAS
12 years ago
so far so good!
have started my new medication,
golimumab
, so far so good.first injection was on the 6th dec, second one 6th jan. has really made a differents no more tiredness. joints not as sore! like a new lease of life. did have to wait 9 months on a waiting list , but well worth it .hope it last whoop whoop!
have started my new medication,
golimumab
, so far so good.first injection was on the 6th dec, second one 6th jan. has really made a differents no more tiredness. joints not as sore! like a new lease of life. did have to wait 9 months on a waiting list , but well worth it .hope it last whoop whoop!
paulapan
in
NRAS
12 years ago
News & Views - Winter 2011 – OUT NOW!
We had our wonderful team of volunteers back in National Office last week (a day later than planned, following a delivery error), packing all the new copies of News & Views to be sent out to our members. We’d like to say a big THANK YOU to all those that helped, especially since they changed days on
We had our wonderful team of volunteers back in National Office last week (a day later than planned, following a delivery error), packing all the new copies of News & Views to be sent out to our members. We’d like to say a big THANK YOU to all those that helped, especially since they changed days on
Paul_Howard
LUPUS UK
in
LUPUS UK
12 years ago
Thunder Clap Headaches Anyone?
Is it part of the problem or part of the solution- I'm on high dose
Golimumab
and Leflunomide. Ax
Is it part of the problem or part of the solution- I'm on high dose
Golimumab
and Leflunomide. Ax
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Has anybody tried Golimumab (Simponi)?
My Rheumy is talking about putting me on it and I would like to hear if anybody has tried it and if so how it was/is for them? Ax
My Rheumy is talking about putting me on it and I would like to hear if anybody has tried it and if so how it was/is for them? Ax
AMDP
in
NRAS
13 years ago
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