so far so good!

[paulapan]

have started my new medication,golimumab, so far so good.first injection was on the 6th dec, second one 6th jan. has really made a differents no more tiredness. joints not as sore! like a new lease of life. did have to wait 9 months on a waiting list , but well worth it .hope it last whoop whoop!

[sciqueen]

Hi

So glad that the medication is going well for you. I have no experience with biologics, but I hope you continue to improve.

Cheers Sci x

[Gina_K]

Thats great news, so glad for you. Make the most of rediscovering life.

Best Wishes, Gina.

[essexgirl]

wow .... well pleased for you

debs

[helixhelix]

sounds wonderful, hope it keeps getting even better & better.

[Hidden]

I only read about this particular anti-tnf somewhere today (the NRAS mag I think?) - that sounds really exciting long may the good effects last - keep us all posted! Tx

[Hidden]

Well that's fab news-really hope they continue to help you more and more x

[Hidden]

I started self-injection of Humira recently - my 4th due next week. The improvement was almost 100% within 24 hours. Yesterday, fixed 2 blown down fence panels, realigned the sat dish (Up a ladder), washed 2 cars and took the dogs for a walk! Two months ago I rarely went out and sometimes used a stick for support.

[Hidden in reply to Hidden]

wow thats fab!! so pleased for you!

[Hidden]

wow, thats fanastic news delighted for you....

and same goes for you bmc!!

ah just lovely to hear..

[MrsFitz17]

I'm really pleased it's worked for you, I've heard some great reports about it.

I started Golimumab on 16th November after previously being on Enbrel than having an allergic reaction to Humira. I was having a really bad flare and got Rheumatoid Vasculitis which is apparently very rare. I have had 2 injections of Golimumab and unfortunately it hasn't worked at all, I now have suspected drug induced lupus and the Vasculitis has recurred. I am on 60mg per day prednisolone while they try to decide what to do next.

Please don'e let my experience of it put anyone off, Enbrel was wonderful for me while it worked and I wouldn't hestitate to try another anti-TNF if I'm allowed.

[Hidden in reply to MrsFitz17]

MaryO, Please don't give up, or be resigned to your situation. You have had some really nasty experiences, so it may take a little longer to get an effect from the Golimumab. It has to go through the damage from the other drugs first, keep on keeping on, it will get better with time, as long as you don't become allergic or get some other reaction.

Curious, are you also taking Methotrexate, or any other Dmards?

Please keep us posted as you go along. All the best, Loret

[MrsFitz17 in reply to Hidden]

Hi Loretta,

I'm on 25mg mtx. I've been taken off the Goli and am having a steroid infusion as the oral ones make me really sick. My consultant is letting me try enbrel again but if that doesn't work then it will be either tocilizumab or rituximab. I really hope the infusion works as this flare has been going on since early September!

Mary

[paulapan]

thank you all for your comments, will defo keep you all posted. cant wait to get my dancing shoes on and a night out with the girls!

[Hidden]

That is remarkable results, especially the time frame! Being steady enough to be on a ladder! I am not allowed to be on a step-stool!

Wonderful for you, enjoy every minute, go dancing! That is one I would love to still do, but alas! All the best, Loret XX

[Hidden]

Fantastic new xx.. gosh I wishy my tiredness would go.. im however not on anti tnf xx

[Hidden]

It's really heartening to hear of such great success stories - long may it continue!

Cece x