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GnRH agonist
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Hot flushed Post GNRH analogues
Hi I was on Prostap followed by Zoladex for 2 years. I decided to stop having injections 5.5 months ago. I had a lot of weight gain, other autoimmune conditions and underactive thyroid. I was all medicated up and on too much. So my question....did you have hot flushes after you came off them? Im currently
Hi I was on Prostap followed by Zoladex for 2 years. I decided to stop having injections 5.5 months ago. I had a lot of weight gain, other autoimmune conditions and underactive thyroid. I was all medicated up and on too much. So my question....did you have hot flushes after you came off them? Im currently
Awwy
in
Endometriosis UK
11 months ago
hysterectomy advice
Hi, Can anyone offer any advice? I have grade 4 endo affecting both my bowel and bladder too. I’ve started GNrH injections (had 4) and saw the consultant today for a review and to discuss surgery. Surgery would be a complete hysterectomy but obviously there would be assistance from potential other
Hi, Can anyone offer any advice? I have grade 4 endo affecting both my bowel and bladder too. I’ve started GNrH injections (had 4) and saw the consultant today for a review and to discuss surgery. Surgery would be a complete hysterectomy but obviously there would be assistance from potential other
KTe23
in
Endometriosis UK
11 months ago
Can you reject GNRH analogues? Consequences? Please help.
Hi there, I'm going in for my second Endo surgery next week, 9cm endometrioma, and the MRI showed a few other lesions. My last surgery was 6 years ago, and they removed a 16m endometrioma. The surgeon called last week in response to some questions I had and made an offhand remark about having a shot
Hi there, I'm going in for my second Endo surgery next week, 9cm endometrioma, and the MRI showed a few other lesions. My last surgery was 6 years ago, and they removed a 16m endometrioma. The surgeon called last week in response to some questions I had and made an offhand remark about having a shot
SeventeenNineteen
in
Endometriosis UK
11 months ago
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ADT duration
I have locally contained G9 discovered July as PSA in June 2022 rose to 6.9 , 6 months after HIFU In December 2021. Immediately started Bicalutimide 150 3rd August 2022 and planned radiotherapy for end of November 2022 after clear PSMA. For various reasons I was on bicalutimide for longer than
I have locally contained G9 discovered July as PSA in June 2022 rose to 6.9 , 6 months after HIFU In December 2021. Immediately started Bicalutimide 150 3rd August 2022 and planned radiotherapy for end of November 2022 after clear PSMA. For various reasons I was on bicalutimide for longer than
SimMartin
in
Advanced Prostate Cancer
11 months ago
GnRH analogues
Hi all, I am due to be starting injectable GnRH analogues soon alongside a HRT, dose anyone have any advice/ guidance on them and their side effects and management? In the past I have had Nafarelin (Synarel). The plan is to have these before surgery as NHS wait is 50 weeks where I am. Thanks
Hi all, I am due to be starting injectable GnRH analogues soon alongside a HRT, dose anyone have any advice/ guidance on them and their side effects and management? In the past I have had Nafarelin (Synarel). The plan is to have these before surgery as NHS wait is 50 weeks where I am. Thanks
Foodman500
in
Endometriosis UK
11 months ago
Scared of GnRH as symptoms include osteoporosis, alopecia and hot flashes. Endo and fibroid.
I've been diagnosed of fibroid, endo and dermoid cyst. Gyna suggested surgery but must take GnRH for 6 months pre surgery to avoid blood loss and eventually hysterectomy. I'm 29. GnRH side effects scares me - alopecia osteoporosis depression weight gain. I'm a very active person, an artist and marketing
I've been diagnosed of fibroid, endo and dermoid cyst. Gyna suggested surgery but must take GnRH for 6 months pre surgery to avoid blood loss and eventually hysterectomy. I'm 29. GnRH side effects scares me - alopecia osteoporosis depression weight gain. I'm a very active person, an artist and marketing
Molight
in
Endometriosis UK
1 year ago
Periods returning?
Hi. I have been on 2 different GNRH analogues for 2.5 years ish. I have decided to come off the injections as I can no longer tolerate the side effects. Especially joint pains. How long does it take for your periods to return? Will they be as bad as before? Thanks
Hi. I have been on 2 different GNRH analogues for 2.5 years ish. I have decided to come off the injections as I can no longer tolerate the side effects. Especially joint pains. How long does it take for your periods to return? Will they be as bad as before? Thanks
Awwy
in
Endometriosis UK
1 year ago
ASCO 2023 Poster: Androgen-deprivation therapy and risk of dementia in patients with prostate cancer:Clinical outcomes from real-world data.
Conclusion: This is the largest real-world study describing the association between ADT and the risk of dementia, including over 600 thousand prostate cancer patients. The risk of dementia was significantly higher in patients on ADT, with a 60% increased risk. The highest risk was witnessed with GnRH
Conclusion: This is the largest real-world study describing the association between ADT and the risk of dementia, including over 600 thousand prostate cancer patients. The risk of dementia was significantly higher in patients on ADT, with a 60% increased risk. The highest risk was witnessed with GnRH
rsgdmd
in
Advanced Prostate Cancer
1 year ago
🔥 Hot Topic – Endometriosis and Menopause
Endometriosis UK Specialist Advisor Joanne Hanley is producing a series of short articles on topics that may be of interest to anyone with endometriosis. This time the 'Hot Topic' is endometriosis and the menopause Does endometriosis go away with the menopause? During the perimenopause and menopause
Endometriosis UK Specialist Advisor Joanne Hanley is producing a series of short articles on topics that may be of interest to anyone with endometriosis. This time the 'Hot Topic' is endometriosis and the menopause Does endometriosis go away with the menopause? During the perimenopause and menopause
Lynne_support
Endometriosis UK
in
Endometriosis UK
1 year ago
Fed up and tired
Hi, I did a request to get my latest MRI report. They have sent me notes of a recent MDT discussion. I was diagnosed with endometriosis in June 2020 after suffering for over 15 years. I am concerned about the report because it says my adenomyosis looks slightly better. I wasn't even told I had that as
Hi, I did a request to get my latest MRI report. They have sent me notes of a recent MDT discussion. I was diagnosed with endometriosis in June 2020 after suffering for over 15 years. I am concerned about the report because it says my adenomyosis looks slightly better. I wasn't even told I had that as
Awwy
in
Endometriosis UK
1 year ago
goserelin and ACTH
I am wondering how and if GnRH medications like Zoladex impact the ACTH production and if the activity of the adrenal production of adrenal androgens feeds the prostate cancer cells independently of the LH / testosterone route. Also as cortisol is increased with various other physical and psychological
I am wondering how and if GnRH medications like Zoladex impact the ACTH production and if the activity of the adrenal production of adrenal androgens feeds the prostate cancer cells independently of the LH / testosterone route. Also as cortisol is increased with various other physical and psychological
SimMartin
in
Prostate Cancer Network
1 year ago
Employer not being supportive about endometriosis / invasion of privacy
Hi all, I was wondering if anyone has any advice on how to approach having an employer who is not supportive of endometriosis / treatment, and consistently asking for a lot of detailed medical information? I’m 29, diagnosed with endo at 25. I had a surgery almost immediately after being diagnosed
Hi all, I was wondering if anyone has any advice on how to approach having an employer who is not supportive of endometriosis / treatment, and consistently asking for a lot of detailed medical information? I’m 29, diagnosed with endo at 25. I had a surgery almost immediately after being diagnosed
BlueMorpho13
in
Endometriosis UK
1 year ago
Coming off GNRH analogues
Hi, I have been on prostrap and then zoladex for the past 2.5 years. This was to help with pain which it did initially and i have been waiting for so long for an op. One year ago my consultant said persevere bit longer. Its only licensed for a 6 months and I'm concerned that I'm doing more damage
Hi, I have been on prostrap and then zoladex for the past 2.5 years. This was to help with pain which it did initially and i have been waiting for so long for an op. One year ago my consultant said persevere bit longer. Its only licensed for a 6 months and I'm concerned that I'm doing more damage
Awwy
in
Endometriosis UK
1 year ago
Should I go on Prostap/Zoladex?!
Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due to how long I was waiting) had leaked so I have more areas on endo around my insides now. The surgeon said this was quiet bad and wants to put
Hi, A very complex question, I know, but one that’s been eating me up since I had my surgery 3 months ago. I had a large endometrioma which sadly (likely due to how long I was waiting) had leaked so I have more areas on endo around my insides now. The surgeon said this was quiet bad and wants to put
Louisehart1995
in
Endometriosis UK
1 year ago
Nonexistent Periods
I had a GNRH injection in July and still haven’t had a period, is this normal? I did have my endometriosis surgery in late November, but expected my periods to be back by now?
I had a GNRH injection in July and still haven’t had a period, is this normal? I did have my endometriosis surgery in late November, but expected my periods to be back by now?
Aardvarks
in
Endometriosis UK
2 years ago
What first?: Provenge or Nubeqa?
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
I have not used 2d line AR drugs yet. CRPC just started six months ago. My PSA is below 1. One small, suspected area on last month's PSMA PET scan. That is the same area that looked suspicious on PSMA PET in 2016 and on Axumin in early 2021. I did IADT 2016-2020, with continuous ADT since Jan 2021
GeorgeGlass
in
Advanced Prostate Cancer
2 years ago
Problems in diagnosing.
So I am literally feeling at the end of my tether now. For many years I have had various symptoms. A lot of them started after being on the contraceptive injection which beforehand I was a very active healthy person, now I feel completely the opposite. I gained around 4 Stone whilst on the injection
So I am literally feeling at the end of my tether now. For many years I have had various symptoms. A lot of them started after being on the contraceptive injection which beforehand I was a very active healthy person, now I feel completely the opposite. I gained around 4 Stone whilst on the injection
x_b_x
in
Thyroid UK
2 years ago
Bleeding on GnRh analog is normal
If bleeding continues after second dose of decapeptyl 3.75 mg injection is normal ?What is the cause of bleeding
If bleeding continues after second dose of decapeptyl 3.75 mg injection is normal ?What is the cause of bleeding
Luxy_45
in
Endometriosis UK
2 years ago
So near, but feeling so far
I don't know where to start, and I apologise if I ramble.I am awaiting a total hysterectomy with excision laproscopicly. My first surgery for endo. My diagnosis was via CT, then MRI of adenomyosis and Endometriosis with bilateral endometriomas and kissing ovaries, with my reproductive system, unusualy
I don't know where to start, and I apologise if I ramble.I am awaiting a total hysterectomy with excision laproscopicly. My first surgery for endo. My diagnosis was via CT, then MRI of adenomyosis and Endometriosis with bilateral endometriomas and kissing ovaries, with my reproductive system, unusualy
Macdunc29
in
Endometriosis UK
2 years ago
Anyone with experience of FWGE? TNVANS asked the same question 3 years ago, but now there is this paper on a pilot clinical trial.
Fermented Wheat Germ Extract (FWGE) as a Treatment Additive for Castration-Resistant Prostate Cancer: A Pilot Clinical TrialRony Weitzen, Nava Epstein, Bernice Oberman, Rebecca Shevetz, Mate Hidvegi, Raanan Berger Nutrition and Cancer 74 (4), 1338-1346, 2022 Castration-resistant prostate cancer (CRPC
Fermented Wheat Germ Extract (FWGE) as a Treatment Additive for Castration-Resistant Prostate Cancer: A Pilot Clinical TrialRony Weitzen, Nava Epstein, Bernice Oberman, Rebecca Shevetz, Mate Hidvegi, Raanan Berger Nutrition and Cancer 74 (4), 1338-1346, 2022 Castration-resistant prostate cancer (CRPC
Graham49
in
Advanced Prostate Cancer
2 years ago
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