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Speech therapy
I would like to know if there are any members in this group who has speech problems with low voice pitch , because of which they are undergoing speech therapy conducted by Parkinson voice project
I would like to know if there are any members in this group who has speech problems with low voice pitch , because of which they are undergoing speech therapy conducted by Parkinson voice project
Ripraniya
in
Cure Parkinson's
10 months ago
Erleada/ADT
hey so when are the side effects are supposed to kick in… started ADT in Mid October and Erleada mid January. Thanks in advance.
hey so when are the side effects are supposed to kick in… started ADT in Mid October and Erleada mid January. Thanks in advance.
Leaffan57
in
Advanced Prostate Cancer
5 months ago
perimenopause, hormones & RA flare..
just here for a moan really.. feel like Ivd been hit by a truck last few days, pain everywhere, immense fatigue, then not sleeping.. I’m now 46, and been diagnosed with RA about 16 months ago.. currently on Leflunomide but is not really working, but having done 12 months on MTX which affected my MH
just here for a moan really.. feel like Ivd been hit by a truck last few days, pain everywhere, immense fatigue, then not sleeping.. I’m now 46, and been diagnosed with RA about 16 months ago.. currently on Leflunomide but is not really working, but having done 12 months on MTX which affected my MH
Sapphire1701
in
NRAS
5 months ago
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Testosterone too high?
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
I recently had my quarterly PSA and T tests, following stopping 18 months of ADT (Orgovyx) in April of 2022. PSA continued to de undetectable (<0.01) and T was 761. The last quarterly T was 706. Having had an initial PC Dx of GL9, Stage 4, Decipher .76 (July 2019) should I be concerned that T is
JPnSD
in
Advanced Prostate Cancer
5 months ago
Thyroid/post viral fatigue/perimenopause/CFS - help!
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Dahliasanddaisies
in
Thyroid UK
5 months ago
ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
5 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
5 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
5 months ago
Improved thyroid levels since HRT ?
hi has anyone been down this road please? - Taking bio identical hormones via Louise Newson to gp & now from the nhs, & my sub clinical thyroid numbers (& after years of taking levothyroxine doses without conversion improvement or drop in tsh). On taking hrt i went from TSH 5 to 1.1!!! In a very
hi has anyone been down this road please? - Taking bio identical hormones via Louise Newson to gp & now from the nhs, & my sub clinical thyroid numbers (& after years of taking levothyroxine doses without conversion improvement or drop in tsh). On taking hrt i went from TSH 5 to 1.1!!! In a very
Jeppy
in
Thyroid UK
5 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
5 months ago
mHSPCa with undetectable PSA - chemo-only?
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Purple-Bike
in
Advanced Prostate Cancer
5 months ago
Menopause/HRT Question.
I recently changed over to the Evorel 50 HRT patches from oral HRT tablets, well what a waste of time, they are absolutely useless. They wont stay on even though I put a sticky plaster and surgical tape on over the top. I used 4 in a week! They are definitely not for me. I had a consult today with a
I recently changed over to the Evorel 50 HRT patches from oral HRT tablets, well what a waste of time, they are absolutely useless. They wont stay on even though I put a sticky plaster and surgical tape on over the top. I used 4 in a week! They are definitely not for me. I had a consult today with a
Sparklingsunshine
in
Thyroid UK
5 months ago
Bleeding on prostab
Hi anyone in a similar situation would be helpful to me right now, I have been on prostab injections for 11 months with everoll hrt patches, in November I started having a flare up of pain and it hasn't settled down, now I am bleeding and in alot of pain. I think the injections have stopped working
Hi anyone in a similar situation would be helpful to me right now, I have been on prostab injections for 11 months with everoll hrt patches, in November I started having a flare up of pain and it hasn't settled down, now I am bleeding and in alot of pain. I think the injections have stopped working
Deedee112345
in
Endometriosis UK
5 months ago
PROSTOX Tests
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Infamous9597
in
Advanced Prostate Cancer
12 days ago
MRI report shows enhancing bone lesion is noted involving the left sphenoid bone.
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
Gl448
in
Advanced Prostate Cancer
13 days ago
Heavy news today
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
Hi Everyone, I am feeling really bummed tonight…over the past 5 months I was on Enhertu, I qualified because of the destiny trials. Long story short it was a disaster, not only did I have infection after infection but I ended up with extensive uptake in bone Mets and spread to my liver again (originally
SoulJourney
in
SHARE Metastatic Breast Cancer
5 months ago
Hyperbaric oxygen therapy
Hi Im in the middle of a bronchietasis flareup folowing flu 6 weeks ago and chest infection. Ive had a week of Amoxycilin a course of steroids and now coming to the end of 2 week Doxycycline. Im not sure Im back to my self.Yesterday I had my first session in the divers tank ( the service runs out of
Hi Im in the middle of a bronchietasis flareup folowing flu 6 weeks ago and chest infection. Ive had a week of Amoxycilin a course of steroids and now coming to the end of 2 week Doxycycline. Im not sure Im back to my self.Yesterday I had my first session in the divers tank ( the service runs out of
Topsy-Turvey
in
Lung Conditions Community Forum
9 months ago
Delay date for Lupron injection
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
I am due to get my third 6 monthly dose of Lupron injection in late May. I plan to travel during that time. Is there any harm if I should postpone the injection date by 2 or 3 weeks beyond the 6 months dateline?My PSA reading is currently below 0.1 ug/l. Secondly, I am contemplating going on ADT vacation
John347
in
Advanced Prostate Cancer
5 months ago
Lupron SEs - legs
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
NickKnick
in
Advanced Prostate Cancer
17 days ago
It's Back!
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
Tjc1
in
Advanced Prostate Cancer
5 months ago
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