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Recent Diagnosis
Good evening everyone, I’m new to this forum. My somewhat depressing story is in my bio. Anyone had a similar diagnosis that’s further down the line and can offer any encouragement? One tiny bit of more positive news is that since starting the hormone treatment my back pain (which was the only real symptom
Good evening everyone, I’m new to this forum. My somewhat depressing story is in my bio. Anyone had a similar diagnosis that’s further down the line and can offer any encouragement? One tiny bit of more positive news is that since starting the hormone treatment my back pain (which was the only real symptom
Yellowtail33
in
Advanced Prostate Cancer
15 days ago
To scan or not to scan, that is the question.
I've had my two years on ADT, and now I'm 6 months into my "vacation" (iADT) PSA has hit 2.0, and the plan is to restart ADT when it hits 5.0. Assuming there are no complications, I'm okay with that plan. Also assuming there are no complications, my MO says we won't be doing a PSMA scan, or any radiation
I've had my two years on ADT, and now I'm 6 months into my "vacation" (iADT) PSA has hit 2.0, and the plan is to restart ADT when it hits 5.0. Assuming there are no complications, I'm okay with that plan. Also assuming there are no complications, my MO says we won't be doing a PSMA scan, or any radiation
Lewellen
in
Advanced Prostate Cancer
16 days ago
What does ‘neuroendocrine differentiation' mean in metastatic prostate cancer?
My 71 year old dad has been diagnosed with metastatic prostate cancer with neuroendocrine differentiation - he had absolutely zero symptoms until a lymph node on his neck swelled up. It’s metastasised to his lower spine and sternum too. He’s just had his oncology appointment today and they’re going to
My 71 year old dad has been diagnosed with metastatic prostate cancer with neuroendocrine differentiation - he had absolutely zero symptoms until a lymph node on his neck swelled up. It’s metastasised to his lower spine and sternum too. He’s just had his oncology appointment today and they’re going to
NikkiJayne
in
Advanced Prostate Cancer
16 days ago
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Abiraterone weaning
When the time comes to stop ADT and abiraterone, for good reasons. Does anyone here have info on abiraterone weaning planning? Including prednisone weaning? TIA
When the time comes to stop ADT and abiraterone, for good reasons. Does anyone here have info on abiraterone weaning planning? Including prednisone weaning? TIA
Derf4223
in
Advanced Prostate Cancer
16 days ago
Dealing with the Anxiety and Depression From Cancer
There recently was an excellent discussion about the how to overcome anxiety and depression caused by this cancer. It seemed to focus on the use of medicines and some herbal solutions. While I have no issue with that approach I was going to attach my comments to that thread and had second thoughts for
There recently was an excellent discussion about the how to overcome anxiety and depression caused by this cancer. It seemed to focus on the use of medicines and some herbal solutions. While I have no issue with that approach I was going to attach my comments to that thread and had second thoughts for
Mgtd
in
Advanced Prostate Cancer
16 days ago
When to take Medication, Vits and HRT?
Hi All Please can you give me some advice? I would like to begin taking Estrogen (Lenzetto spray) and Progesterone (Utrogestan) again. I am fearful though, when I began taking it last time my TSH went up to 28 so had to stop taking it. I was taking it a few hours in a morning after my thyroid
Hi All Please can you give me some advice? I would like to begin taking Estrogen (Lenzetto spray) and Progesterone (Utrogestan) again. I am fearful though, when I began taking it last time my TSH went up to 28 so had to stop taking it. I was taking it a few hours in a morning after my thyroid
Lavender-Blue
in
Thyroid UK
17 days ago
Change to medication
Hi everyone, I have been taking 150mg of thyroxine for over 10 years. At the beginning of the year, I spoke to my doctor because my fatigue was increasing, I didn't feel like myself, and I was having heavy periods. I thought I was starting to become perimenopausal. The doctor said I was depressed
Hi everyone, I have been taking 150mg of thyroxine for over 10 years. At the beginning of the year, I spoke to my doctor because my fatigue was increasing, I didn't feel like myself, and I was having heavy periods. I thought I was starting to become perimenopausal. The doctor said I was depressed
MrsD6
in
Thyroid UK
17 days ago
What to expect after Decapeptyl and Tibolone - Any advice
Hi All Following excision of Endometriosis , I started Decapeptyl and Tibolone for 4 months. The aim was to give body a reset and to see how things are after the treatment. As the 4 months are up I am wondering what to expect going forward. Should I stop HRT cold turkey or wean myself off it? Does
Hi All Following excision of Endometriosis , I started Decapeptyl and Tibolone for 4 months. The aim was to give body a reset and to see how things are after the treatment. As the 4 months are up I am wondering what to expect going forward. Should I stop HRT cold turkey or wean myself off it? Does
Pcosandendo
in
Endometriosis UK
17 days ago
ADT causes insomnia ?
Dad has been on orgovyx ADT since 3 weeks. Since 3-4 days he complains of not getting proper sleep like earlier. Does ADT cause this ?
Dad has been on orgovyx ADT since 3 weeks. Since 3-4 days he complains of not getting proper sleep like earlier. Does ADT cause this ?
Tinkudi
in
Advanced Prostate Cancer
17 days ago
Antiandrogen Withdrawal Syndrome After Stopping Enzalutamide in Metastatic Castration-Resistant Prostate Cancer: Two Case Reports & Review
https://www.cureus.com/articles/267994-antiandrogen-withdrawal-syndrome-after-discontinuation-of-enzalutamide-in-patients-with-metastatic-castration-resistant-prostate-cancer-a-report-of-two-clinical-cases-and-a-literature-review#!/ Abstract Metastatic prostate cancer treatment is based on
https://www.cureus.com/articles/267994-antiandrogen-withdrawal-syndrome-after-discontinuation-of-enzalutamide-in-patients-with-metastatic-castration-resistant-prostate-cancer-a-report-of-two-clinical-cases-and-a-literature-review#!/ Abstract Metastatic prostate cancer treatment is based on
God_Loves_Me
in
Advanced Prostate Cancer
18 days ago
Older adult with tinnitus suddenly
I am a healthy 79 year old woman who still runs one marathon a year. Had tinnitus suddenly occur in both ears. My question is does anyone associate tinnitus with HRT or dementia?
I am a healthy 79 year old woman who still runs one marathon a year. Had tinnitus suddenly occur in both ears. My question is does anyone associate tinnitus with HRT or dementia?
Shika1945
in
Tinnitus UK
18 days ago
Euthyroid Thyroid Eye Disease
I have had problems with one eye for 9 months now. Started with gritty feeling, watering eye. Inflammation and baggy eye bags. Then fatty bumps appeared to be coming through above one eye, and one eye ball seems slightly higher than the other, and pushed forward slightly. Then came the double vision
I have had problems with one eye for 9 months now. Started with gritty feeling, watering eye. Inflammation and baggy eye bags. Then fatty bumps appeared to be coming through above one eye, and one eye ball seems slightly higher than the other, and pushed forward slightly. Then came the double vision
Agh2001
in
Thyroid UK
18 days ago
Old Guy Update
I was diagnosed in November 2020 with stage 4 Ductal adenocarcinoma of the prostate. I had EBRT and 24 months of ADT which was terminated in October of 2022. My PSA at that time was undetectable and my Testosterone was also undetectable. It’s now July 2024, and my PSA is 0.2 and my Testosterone is 10
I was diagnosed in November 2020 with stage 4 Ductal adenocarcinoma of the prostate. I had EBRT and 24 months of ADT which was terminated in October of 2022. My PSA at that time was undetectable and my Testosterone was also undetectable. It’s now July 2024, and my PSA is 0.2 and my Testosterone is 10
TottenhamMan
in
Advanced Prostate Cancer
18 days ago
PSA at 0.285
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
Formosan
in
Advanced Prostate Cancer
19 days ago
Can I trust a second opinion?
It's not that I don't trust my MO, but he seems to be quite SOC, and doesn't offer options unless I bring them up. Which I have been doing. I even seem to have a reputation for having good questions. Which I am glad to hear, but frankly I don't feel I'm as well educated as all that 🙄. It could be that
It's not that I don't trust my MO, but he seems to be quite SOC, and doesn't offer options unless I bring them up. Which I have been doing. I even seem to have a reputation for having good questions. Which I am glad to hear, but frankly I don't feel I'm as well educated as all that 🙄. It could be that
Lewellen
in
Advanced Prostate Cancer
19 days ago
Silent Reflux and B12 Deficiency- Any Link?
Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one every three months due to severe side effects that worried my GP. Had my first of the 3 monthly ones a few weeks ago and all went well. I saw
Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one every three months due to severe side effects that worried my GP. Had my first of the 3 monthly ones a few weeks ago and all went well. I saw
Hidden
in
Pernicious Anaemia Society
19 days ago
Ibs or celiac
hiya so for a few years off and on I’ve always had bloating , pains in adomin ect. But now constantly everytime I wee I always need a poo but I’m always straining . Couple of weeks ago I had bright pink blood in my sick. And for a couple of weeks I had mucus and blood in my stool. Doctors want to do
hiya so for a few years off and on I’ve always had bloating , pains in adomin ect. But now constantly everytime I wee I always need a poo but I’m always straining . Couple of weeks ago I had bright pink blood in my sick. And for a couple of weeks I had mucus and blood in my stool. Doctors want to do
Girlpower98
in
IBS Network
6 months ago
Test results advice please
I was diagnosed Type 2 hypothyroid about 10 years ago. I am currently on 150 mg levothyroxine. I am late 40s, and am on HRT daily: oestrogen 5 pumps, testosterone 1/8 packet; double cerelle ( progesterone ). I am absolutely shattered and feeling constantly unwell. I am struggling with everything - physically
I was diagnosed Type 2 hypothyroid about 10 years ago. I am currently on 150 mg levothyroxine. I am late 40s, and am on HRT daily: oestrogen 5 pumps, testosterone 1/8 packet; double cerelle ( progesterone ). I am absolutely shattered and feeling constantly unwell. I am struggling with everything - physically
strawberryflower
in
Thyroid UK
20 days ago
Hormone Therapy
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
debbiejayn
in
Advanced Prostate Cancer
21 days ago
The continuing saga of Scout and Coco, Not all change is welcome.
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
Scout4answers
in
Advanced Prostate Cancer
21 days ago
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