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Aromatic L‐Amino Acid Decarboxylase Gene Therapy Enhances Levodopa Response in Parkinson's Disease
Of the 15 Parkinsons participants in the PD‐1101 clinical trial (evaluating Gene therapy candidate VY‐AADC01), 13 participated in a substudy aimed at determining timing & magnitude of motor response to intravenous levodopa. Results: https://onlinelibrary.wiley.com/doi/full/10.1002/mds.27993
Of the 15 Parkinsons participants in the PD‐1101 clinical trial (evaluating Gene therapy candidate VY‐AADC01), 13 participated in a substudy aimed at determining timing & magnitude of motor response to intravenous levodopa. Results: https://onlinelibrary.wiley.com/doi/full/10.1002/mds.27993
Farooqji
in
Cure Parkinson's
5 years ago
Interesting new gene therapy approach
This is kinda mad but it's an interesting read. https://parkinsonsnewstoday.com/2020/03/04/new-gene-therapy-technique-gets-past-blood-brain-barrier-mouse-study-shows/
This is kinda mad but it's an interesting read. https://parkinsonsnewstoday.com/2020/03/04/new-gene-therapy-technique-gets-past-blood-brain-barrier-mouse-study-shows/
Parkinsonjisung
in
Cure Parkinson's
5 years ago
The Quality of Posts Has Not Diminished
I have seen posts and comments suggesting that the quality of other people's posts and comments are no longer as insightful or helpful as they once were. I'm not sure that is true. When I first came to this site, I knew very little about Parkinson's except that it progressively gets worse, there is
I have seen posts and comments suggesting that the quality of other people's posts and comments are no longer as insightful or helpful as they once were. I'm not sure that is true. When I first came to this site, I knew very little about Parkinson's except that it progressively gets worse, there is
jimcaster
in
Cure Parkinson's
5 years ago
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Neuropathic pain everywhere!
Hi everyone, I haven't posted in a long time. 3.5 years ago i had chemotherapy and radiation treatments for cervical cancer and now for the last 18 months ive had nerve pain that seems to be spreading all over my body. Im taking 100mgs lyrica, 300mgs nupentin, 10mgs endep for nerve pain and I also have
Hi everyone, I haven't posted in a long time. 3.5 years ago i had chemotherapy and radiation treatments for cervical cancer and now for the last 18 months ive had nerve pain that seems to be spreading all over my body. Im taking 100mgs lyrica, 300mgs nupentin, 10mgs endep for nerve pain and I also have
Alwaysblue
in
Pain Concern
5 years ago
Restless Legs tonight
Has anyone took endep to wean them selves off pramipexole. I was prescribed it yesterday cause l have Augmented from been on Pramipexole 0.125 for 3 years February next month. I missed it tonight cause l havent been sleeping. So l can at least see if l sleep Thursday night Aust time. Its been a hell
Has anyone took endep to wean them selves off pramipexole. I was prescribed it yesterday cause l have Augmented from been on Pramipexole 0.125 for 3 years February next month. I missed it tonight cause l havent been sleeping. So l can at least see if l sleep Thursday night Aust time. Its been a hell
Boss15
in
Restless Legs Syndrome
5 years ago
Gene therapy clinical trial review
Nice overview of gene therapy trials in Parkinson's. It's from may but its mostly still applicable. https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd199001
Nice overview of gene therapy trials in Parkinson's. It's from may but its mostly still applicable. https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd199001
Parkinsonjisung
in
Cure Parkinson's
5 years ago
Whipple procedure
Previously informed you I was to have the Whipple procedure Recently out of hospital Stopped rivaroxiban 48 hours before admission on 18th November 6 hour operation on 18th then another couple of hours opened up again due to complications some 4 days later Developed a superbug so was isolated in HDU
Previously informed you I was to have the Whipple procedure Recently out of hospital Stopped rivaroxiban 48 hours before admission on 18th November 6 hour operation on 18th then another couple of hours opened up again due to complications some 4 days later Developed a superbug so was isolated in HDU
R1100S1
in
British Liver Trust
5 years ago
New ray of hope for people living with Parkinson’s disease
https://www.thehealthsite.com/news/new-ray-of-hope-for-people-living-with-parkinsons-disease-723790/ Parkinson's disease affects millions across the world. A non-invasive technique may soon come to the rescue. A non-invasive technique which could be used later to treat Parkinson’s disease has been discovered
https://www.thehealthsite.com/news/new-ray-of-hope-for-people-living-with-parkinsons-disease-723790/ Parkinson's disease affects millions across the world. A non-invasive technique may soon come to the rescue. A non-invasive technique which could be used later to treat Parkinson’s disease has been discovered
John_morris71
in
Cure Parkinson's
5 years ago
Gene Therapy: It's very early, but encouraging!
Two Parkinson’s patients treated with AXO-Lenti-PD, an investigative gene therapy, in an ongoing clinical trial continue to show improvement 12 months later, Axovant, the therapy’s developer, said in a release. These findings at one year after treatment are important because this timepoint allows
Two Parkinson’s patients treated with AXO-Lenti-PD, an investigative gene therapy, in an ongoing clinical trial continue to show improvement 12 months later, Axovant, the therapy’s developer, said in a release. These findings at one year after treatment are important because this timepoint allows
jimcaster
in
Cure Parkinson's
5 years ago
Gene Therapy
Hi all! Any research or information on gene therapy for PD? Any information would be great! Thank you and happy holidays!
Hi all! Any research or information on gene therapy for PD? Any information would be great! Thank you and happy holidays!
MissRita
in
Cure Parkinson's
5 years ago
Those with (mostly Ashkenazi) GBA1 gene mutation will be interested to know of gene therapy targeting this.
Research is being done by Prevail Therapeutics in NYC. (I have the mutation and so does my boss's husband. Hopefully he will get into the study and I will try to report on the results) From https://www.prevailtherapeutics.com/our-science/ Parkinson's Disease with GBA1 Mutation We are developing a broad
Research is being done by Prevail Therapeutics in NYC. (I have the mutation and so does my boss's husband. Hopefully he will get into the study and I will try to report on the results) From https://www.prevailtherapeutics.com/our-science/ Parkinson's Disease with GBA1 Mutation We are developing a broad
pmmargo
in
Cure Parkinson's
5 years ago
Procedure Booked
Hi all Had meeting with consultant today I have finished all pre op tests and have been judged fit for the op. So Monday I am booked in for the Whipple operation Will be a quiet Christmas this year, but hopefully lead to a better year than this has been X
Hi all Had meeting with consultant today I have finished all pre op tests and have been judged fit for the op. So Monday I am booked in for the Whipple operation Will be a quiet Christmas this year, but hopefully lead to a better year than this has been X
R1100S1
in
British Liver Trust
5 years ago
New Gene Therapy Delivery Method May Work Well for Parkinson's Disease
“We believe that the new synthetic [lab-made] virus we succeeded in creating would be very well suited for gene therapy for Parkinson’s disease, for example, and we have high hopes that these virus vectors will be able to be put into clinical use,” Tomas Björklund, PhD, Lund University, Sweden, said
“We believe that the new synthetic [lab-made] virus we succeeded in creating would be very well suited for gene therapy for Parkinson’s disease, for example, and we have high hopes that these virus vectors will be able to be put into clinical use,” Tomas Björklund, PhD, Lund University, Sweden, said
jimcaster
in
Cure Parkinson's
5 years ago
Very sad mother of a young boy
Hello everybody I am new here. I am a carrier ALD female, I am 32 years old and I have a son, Jan, he is 4 years old and he is a carrier ALD too :( I live in the south of France so, please, excuse my very bad English, I do my best to be understandable. Since I knew this diagnosis I feel very sad and
Hello everybody I am new here. I am a carrier ALD female, I am 32 years old and I have a son, Jan, he is 4 years old and he is a carrier ALD too :( I live in the south of France so, please, excuse my very bad English, I do my best to be understandable. Since I knew this diagnosis I feel very sad and
Mimi31500
in
AMN EASIER
5 years ago
Autologous IP Stem Cell Update
🔬 “Aspen Neuroscience looks to combine its expertise in stem cell biology, genomics and neurology to offer the first autologous cell therapy for Parkinson’s disease—while others in the space have pursued allogeneic routes, or therapies derived from donors other than the patient. “We can say without
🔬 “Aspen Neuroscience looks to combine its expertise in stem cell biology, genomics and neurology to offer the first autologous cell therapy for Parkinson’s disease—while others in the space have pursued allogeneic routes, or therapies derived from donors other than the patient. “We can say without
PDConscience
in
Cure Parkinson's
5 years ago
The Future Is Now: Cell & Gene Therapy Webinar 12.12
The future is now for cell & #genetherapy #clinicaltrials. Join our free webinar on 12.12 at 12 Noon EST for insights and highlights from our panel of industry experts. https://ciscrp.my.webex.com/ciscrp.my/j.php?RGID=r87e770e76d6242d0eaf0aeefaa6c9bc
The future is now for cell & #genetherapy #clinicaltrials. Join our free webinar on 12.12 at 12 Noon EST for insights and highlights from our panel of industry experts. https://ciscrp.my.webex.com/ciscrp.my/j.php?RGID=r87e770e76d6242d0eaf0aeefaa6c9bc
ciscrp_official
Partner
in
Understanding Clinical Trials
5 years ago
20 Questions: Cell & Gene Therapy Clinical Trials Webinar
If you're considering participating in cell & #genetherapy #clinicaltrials, there are 20 questions you need to ask. Join our webinar with industry experts on 12.12 at 12 Noon EST to learn this and more. http://healinggenes.org/understanding-cell-gene-therapy-clinical-trials-webinar/
If you're considering participating in cell & #genetherapy #clinicaltrials, there are 20 questions you need to ask. Join our webinar with industry experts on 12.12 at 12 Noon EST to learn this and more. http://healinggenes.org/understanding-cell-gene-therapy-clinical-trials-webinar/
ciscrp_official
Partner
in
Understanding Clinical Trials
5 years ago
Desperate
Buckle up for a long one. My mum is 57 and has suffered with RLS since she was a child but it got really bad when she was around 30 and pregnant. I think it settled down after my sister was born but has gradually gotten worse. I know probably over the last 2-3 years she has been really struggling and
Buckle up for a long one. My mum is 57 and has suffered with RLS since she was a child but it got really bad when she was around 30 and pregnant. I think it settled down after my sister was born but has gradually gotten worse. I know probably over the last 2-3 years she has been really struggling and
adeleoliver
in
Restless Legs Syndrome
5 years ago
Cell-based Gene Therapy Represents ‘Hope’ for X-ALD Patients, Review Study Suggests
Definitely hopeful for the future of ALD/AMN! https://adrenoleukodystrophynews.com/2019/11/12/cell-based-gene-therapy-represents-hope-x-ald-patients/?fbclid=IwAR07pHNJeXpl3-UlDZhoyIFSsJs4z3L0seB7GOfGg0A4td3AZukew6pHX-c
Definitely hopeful for the future of ALD/AMN! https://adrenoleukodystrophynews.com/2019/11/12/cell-based-gene-therapy-represents-hope-x-ald-patients/?fbclid=IwAR07pHNJeXpl3-UlDZhoyIFSsJs4z3L0seB7GOfGg0A4td3AZukew6pHX-c
KennyInPA
in
AMN EASIER
5 years ago
Ginger extract
Hi, I've been doing some research for my husband who's just finished 37 sessions of radiotherapy. He can't take Turmeric as he has Gallstones but I've read some good things about Ginger. Does anyone take this? Can't find any posts so don't know if I'm missing something. Also not sure how long to leave
Hi, I've been doing some research for my husband who's just finished 37 sessions of radiotherapy. He can't take Turmeric as he has Gallstones but I've read some good things about Ginger. Does anyone take this? Can't find any posts so don't know if I'm missing something. Also not sure how long to leave
Fdccs
in
Advanced Prostate Cancer
5 years ago
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