Search
Search
About
Log in
Join
Experiences with
Gaucher disease
Posts
Communities
43,714 public posts
Filter results
please help
hello I’ve been on here a few times now, at first it started being my TSH and T3 suggesting hyperthyroidism, I was then referred to an endocrinologist and retested and that was then fine however my cortisol was low at 220 so I had a SST yesterday and the results have come back as below which they have
hello I’ve been on here a few times now, at first it started being my TSH and T3 suggesting hyperthyroidism, I was then referred to an endocrinologist and retested and that was then fine however my cortisol was low at 220 so I had a SST yesterday and the results have come back as below which they have
Lollipop93
in
Thyroid UK
2 months ago
Considering a change of dialysis centers
So, my nephrologist just up and left. I'm sure there was more going on behind the scenes than I'm aware of, but it was so sudden for me. He was also the consulting MD at the dialysis clinic. I'm not worried about finding another nephro, though. The nephrology department I deal with is a crack team
So, my nephrologist just up and left. I'm sure there was more going on behind the scenes than I'm aware of, but it was so sudden for me. He was also the consulting MD at the dialysis clinic. I'm not worried about finding another nephro, though. The nephrology department I deal with is a crack team
PeaB4YouGo
in
Kidney Dialysis
2 months ago
Integrating Network Pharmacology, Transcriptomics to Reveal Neuroprotective of Curcumin Activate PI3K / AKT Pathway in Parkinson's Disease
A mouse study, and just an abstract, but it is pro-curcumin and so am I so I am sharing it:
Integrating Network Pharmacology, Transcriptomics to Reveal Neuroprotective of Curcumin Activate PI3K / AKT Pathway in Parkinson's Disease 2024
https://pubmed.ncbi.nlm.nih.gov/39006191/
Background:
A mouse study, and just an abstract, but it is pro-curcumin and so am I so I am sharing it:
Integrating Network Pharmacology, Transcriptomics to Reveal Neuroprotective of Curcumin Activate PI3K / AKT Pathway in Parkinson's Disease 2024
https://pubmed.ncbi.nlm.nih.gov/39006191/
Background:
Bolt_Upright
in
Cure Parkinson's
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Stuff to Do Before Comprehensive Arthroscopic Shoulder Surgery
Hi all, I'm scheduling for aka Comprehensive Arthroscopic Shoulder Surgery (Rotator Cuff Repair, Subacromial Decompression, and Shoulder Tenotomy). Fun! I live alone. I've arranged for cleaning, for grocery and food delivery, for errand running. I will try to schedule physical therapy and gather meds
Hi all, I'm scheduling for aka Comprehensive Arthroscopic Shoulder Surgery (Rotator Cuff Repair, Subacromial Decompression, and Shoulder Tenotomy). Fun! I live alone. I've arranged for cleaning, for grocery and food delivery, for errand running. I will try to schedule physical therapy and gather meds
Jimmber
in
PMRGCAuk
2 months ago
results of nail biopsy
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
artydutch
in
MPN Voice
2 months ago
Stem Cell Therapy For Parkinson's Disease - Ozzy Osbourne experience
Ozzy Osbourne has been plagued with a number of health problems in the last several years, including a Parkinson's Disease diagnosis. On his radio show, the rock icon opened up about receiving stem cell therapy to help regulate the disease. “I’ve just come back from the doctor after having some stem
Ozzy Osbourne has been plagued with a number of health problems in the last several years, including a Parkinson's Disease diagnosis. On his radio show, the rock icon opened up about receiving stem cell therapy to help regulate the disease. “I’ve just come back from the doctor after having some stem
Farooqji
in
Cure Parkinson's
2 months ago
just diagnosed with cirrhosis
I was just diagnosed with cirrhosis 6 weeks ago. My fibroscan score was 14.1 The endoscopy , blood tests and ultrasound did not show bad results. I started getting these aches in my liver area after I had the fibroscan. Is this normal. Im afraid it started something.
I was just diagnosed with cirrhosis 6 weeks ago. My fibroscan score was 14.1 The endoscopy , blood tests and ultrasound did not show bad results. I started getting these aches in my liver area after I had the fibroscan. Is this normal. Im afraid it started something.
Maddog2024
in
British Liver Trust
2 months ago
Question
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
Was diagnosed with stage 4 metastatic prostate cancer with several mets to the bones and a Gleason score of 10. This was in January 2023. I have been on darolutamide and relugolix since then and also 6 rounds of docetaxol. Everything was good until recently with an increase in PSA from non detectable
lovepockets
in
Advanced Prostate Cancer
2 months ago
One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
2 months ago
adrenal insufficiency
hi I have a question about changing medication. I have GCA (3 years) but doing well and have reduced pred to 3mg. My endocrinologist wants to change the prednisilone to cortisone twice a day, 10mg am and 5mg pm in order to help kick start the adrenals. I've had the short Synacthen test twice now and
hi I have a question about changing medication. I have GCA (3 years) but doing well and have reduced pred to 3mg. My endocrinologist wants to change the prednisilone to cortisone twice a day, 10mg am and 5mg pm in order to help kick start the adrenals. I've had the short Synacthen test twice now and
Luciejane
in
PMRGCAuk
2 months ago
Exercise therapy developed by Korean Organization
Researchers in Korea have developed an at-home exercise program to help patients suffering from Parkinson’s disease improve their motor function and reduce depression. The National Institute of Health of the Korea Disease Control and Prevention Agency said Tuesday that the safety and suitability
Researchers in Korea have developed an at-home exercise program to help patients suffering from Parkinson’s disease improve their motor function and reduce depression. The National Institute of Health of the Korea Disease Control and Prevention Agency said Tuesday that the safety and suitability
Farooqji
in
Cure Parkinson's
3 months ago
Pluvicto and Renal Issues
I have had normal physical impact from my 4 previous Pluvicto injections: fatigue, reduced appitite, and additional sleep requirements. My fifth injection, 10 days ago, however, resulted in me being bedridden most of the time, no appetite, excessive sleep, stomach pain, and, and what I believe, severe
I have had normal physical impact from my 4 previous Pluvicto injections: fatigue, reduced appitite, and additional sleep requirements. My fifth injection, 10 days ago, however, resulted in me being bedridden most of the time, no appetite, excessive sleep, stomach pain, and, and what I believe, severe
GDG1
in
Advanced Prostate Cancer
3 months ago
Metastatic Prostate Cancer
Just started Zytiga, prednisone and hormone shots for recurrent prostate cancer that has returned and spread to lungs. Just wondering if anyone else is taking these drugs and what their experience has been with side effects the first month or so. Thanks.
Just started Zytiga, prednisone and hormone shots for recurrent prostate cancer that has returned and spread to lungs. Just wondering if anyone else is taking these drugs and what their experience has been with side effects the first month or so. Thanks.
wpeebles
in
Advanced Prostate Cancer
3 months ago
What treatment next as PSA increasing on Daroludamide & Lupron
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
My PSA is increasing after a year on Daroludamide and Lupron.
Questions:
1) can the Daroludamide be increased?
2) what is the next treatment after this to reduce PSA?
Sincere thanks.
mklc
in
Advanced Prostate Cancer
3 months ago
Researchers discover new cellular mechanisms in Parkinson’s disease (technical)
“Our studies show that multiple pathways are perturbed in the disease and so we think that rescuing multiple pathways at once is essential for disease modification.” “We’re not saying that [alpha-synuclein aggregation] is not important, but we’re showing that there are other proteins and RNA inclusions
“Our studies show that multiple pathways are perturbed in the disease and so we think that rescuing multiple pathways at once is essential for disease modification.” “We’re not saying that [alpha-synuclein aggregation] is not important, but we’re showing that there are other proteins and RNA inclusions
jeffreyn
in
Cure Parkinson's
3 months ago
recent cirrhosis diagnosis scared
Hi I’m new to this so not sure I can post this here , yesterday I received bad news about my liver , having cirrhosis NAFL metabolic dysfunction related liver disease I haven’t been given a prognosis however I am so scared , I am an alcoholic and morbidly obese , I have been given guidance ( brief
Hi I’m new to this so not sure I can post this here , yesterday I received bad news about my liver , having cirrhosis NAFL metabolic dysfunction related liver disease I haven’t been given a prognosis however I am so scared , I am an alcoholic and morbidly obese , I have been given guidance ( brief
Charlotteb1991
in
British Liver Trust
3 months ago
Sacituzumab govitecan, an anti-Trop-2 antibody-drug conjugate, for treating cerebral metastasized castration-resistant prostate cancer.
Improved survival rates have been observed in castration-resistant prostate cancer (CRPC) due to advancements in treatment options. However, individuals with brain metastases still have limited therapeutic options and an unfavorable prognosis. Therefore, there is an urgent need to explore new therapeutic
Improved survival rates have been observed in castration-resistant prostate cancer (CRPC) due to advancements in treatment options. However, individuals with brain metastases still have limited therapeutic options and an unfavorable prognosis. Therefore, there is an urgent need to explore new therapeutic
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
What a difference a year makes!
This is probably a post for those who are fairly new to the site, I still consider myself one of those people. This isn’t a post about reversing cirrhosis. Or some miracle I’ve experienced. It’s purely to provide my experience, the questions I had at the start, the complete hopeless feelings I experienced
This is probably a post for those who are fairly new to the site, I still consider myself one of those people. This isn’t a post about reversing cirrhosis. Or some miracle I’ve experienced. It’s purely to provide my experience, the questions I had at the start, the complete hopeless feelings I experienced
DaveQ67
in
British Liver Trust
3 months ago
Good news from Korea - Stem cell-based therapy being developed by S.Biomedics
TED-A9 is an investigational therapy consisting of dopaminergic neuron precursors derived from human embryonic stem cells. These precursors are generated in a laboratory and have the potential to differentiate into various cell types under appropriate conditions. The therapy is surgically implanted
TED-A9 is an investigational therapy consisting of dopaminergic neuron precursors derived from human embryonic stem cells. These precursors are generated in a laboratory and have the potential to differentiate into various cell types under appropriate conditions. The therapy is surgically implanted
Farooqji
in
Cure Parkinson's
3 months ago
Slight PSA rise and MO discontinuing ADT due to fatigue
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Superbfloor
in
Advanced Prostate Cancer
3 months ago
1
...
17
18
19
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5727 results
British Liver Trust
4582 results
Advanced Prostate Cancer
4542 results
View top 10 communities
Sort by
Most Relevant
Newest