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After Lupron I have been having seizures
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
darrylw
in
Advanced Prostate Cancer
2 months ago
White Button Mushroom Extract
Hello everyone, Has anyone who has Metastatic Prostate Cancer taken White Button Mushroom Extract at the same time as getting Standard Of Care Treatments? Was this helpful. Thank you in advance.
Hello everyone, Has anyone who has Metastatic Prostate Cancer taken White Button Mushroom Extract at the same time as getting Standard Of Care Treatments? Was this helpful. Thank you in advance.
spolyu
in
Advanced Prostate Cancer
2 months ago
What is the difference between pre-TT Graves' and post-TT Graves?
Hi all, thank you again for all the helpful comments on my last post. I'm really glad to be a part of this community - I only wish I'd known about it a little over 5 years ago, but perhaps that's a post for another day. I wanted to ask if anyone had any insight on what happens to the body when one's
Hi all, thank you again for all the helpful comments on my last post. I'm really glad to be a part of this community - I only wish I'd known about it a little over 5 years ago, but perhaps that's a post for another day. I wanted to ask if anyone had any insight on what happens to the body when one's
lau99
in
Thyroid UK
2 months ago
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Surprising TRT research results in PCa patients
I’ve been researching the implications of testosterone replacement therapy (TRT) as it relates to the odds of biochemical recurrence with prostate cancer. I went down this path because my prostatectomy surgeon, who is very well respected in the field (200+ papers) and has performed over 5000 surgeries
I’ve been researching the implications of testosterone replacement therapy (TRT) as it relates to the odds of biochemical recurrence with prostate cancer. I went down this path because my prostatectomy surgeon, who is very well respected in the field (200+ papers) and has performed over 5000 surgeries
ManuteBol1
in
Advanced Prostate Cancer
2 months ago
AST to ALT ratio has become greater than 1 after decades of elevated levels
My ALT and AST have been elevated for decades. For second time in a row now, my AST has becomevhigher than ALT ; they are currently in 60ish range. A very nice article i read on the DiRitiis ratio from around 2013 says my new current ratio of 1.1 suggests fibrosis and ir bad prognosis to cirrhosis
My ALT and AST have been elevated for decades. For second time in a row now, my AST has becomevhigher than ALT ; they are currently in 60ish range. A very nice article i read on the DiRitiis ratio from around 2013 says my new current ratio of 1.1 suggests fibrosis and ir bad prognosis to cirrhosis
SkinNBones
in
British Liver Trust
2 months ago
Cirrhosis and very scared - please help!
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
puddy68
in
Liver4Life
2 months ago
RB-190 - A drug repurposed - for Parkinsons
There is hope! A drug repurposed for Parkinsons may become a game changer. Dr. Jonathan Sackner-Bernstein is working on a clinical trial (stage 2) for a repurposed drug for Parkinsons patients. He says, and all Parkinson's neurologists know that Parkinsons patients have little dopamine in their brains
There is hope! A drug repurposed for Parkinsons may become a game changer. Dr. Jonathan Sackner-Bernstein is working on a clinical trial (stage 2) for a repurposed drug for Parkinsons patients. He says, and all Parkinson's neurologists know that Parkinsons patients have little dopamine in their brains
Osteopathic
in
Cure Parkinson's
2 months ago
PSA Rising and Falling during Chemo
I have been receiving chemotherapy since November 2023. Started with Docetaxel until it failed after 7 cycles. Switched to Cabazitaxel and currently on the 5th cycle. Since starting the Cabazitaxil my PSA has been raising and lowering. I am currently having some scans done to confirm if there is progression
I have been receiving chemotherapy since November 2023. Started with Docetaxel until it failed after 7 cycles. Switched to Cabazitaxel and currently on the 5th cycle. Since starting the Cabazitaxil my PSA has been raising and lowering. I am currently having some scans done to confirm if there is progression
Islandboy2021
in
Advanced Prostate Cancer
2 months ago
Visual issues; feedback on meetings with the RNIB. 1 good and 2 bad.
Contacted the RNIB and arranged two phone meetings, one with an optometrist and the other with a sight technology expert. Lets start with the bad, visual conditions. The RNIB have no expertise with visual issues after a brain injury. The page on their site about visual issues after stroke is just for
Contacted the RNIB and arranged two phone meetings, one with an optometrist and the other with a sight technology expert. Lets start with the bad, visual conditions. The RNIB have no expertise with visual issues after a brain injury. The page on their site about visual issues after stroke is just for
pinkvision
in
Headway
2 months ago
New fatty liver diagnosis
Hi All, today I had a fibro scan which revealed that my liver has no scarring with a score of 3.9kpa which was good news, however, the cap score was 307 which was worrying. I gave up alcohol 6 months ago following an attack of acute pancreatitis and being hospitalised for 4 days, this event was enough
Hi All, today I had a fibro scan which revealed that my liver has no scarring with a score of 3.9kpa which was good news, however, the cap score was 307 which was worrying. I gave up alcohol 6 months ago following an attack of acute pancreatitis and being hospitalised for 4 days, this event was enough
WalterFred
in
British Liver Trust
2 months ago
Which supplements are members using for advanced prostate? I take curcumin and others. I want to know more.
I am diagnosed stage 4 adeno carcinoma of prostate. Receiving Erleada and injections of Leuprolide. I want to supplement with everything known to fight this thing. Who has a list?
I am diagnosed stage 4 adeno carcinoma of prostate. Receiving Erleada and injections of Leuprolide. I want to supplement with everything known to fight this thing. Who has a list?
Cebubob
in
Advanced Prostate Cancer
2 months ago
Short fuse temper and mood swings
Sorry to ask for help but some days I am at my wits end caring for my hubby, he has been home about 3 weeks after 10 weeks in hospital and this week we went to Kidney specialist they are of the opinion he may not need simultaneous kidney as well as Liver transplant after biopsy they are erring on the
Sorry to ask for help but some days I am at my wits end caring for my hubby, he has been home about 3 weeks after 10 weeks in hospital and this week we went to Kidney specialist they are of the opinion he may not need simultaneous kidney as well as Liver transplant after biopsy they are erring on the
MilliganHorse
in
British Liver Trust
2 months ago
Laxido and acid reflux
I swear every time I take this stuff I end up with really bad regurgitation and heartburn. Coincidence? I am on other medications.
I swear every time I take this stuff I end up with really bad regurgitation and heartburn. Coincidence? I am on other medications.
Spaceboy_60
in
IBS Network
8 months ago
Really good news
I just wanted to share my story in case it helps others. In December last year I had an ultrasound scan and the results were probable cirrhosis, portal vein hypertension and varices. There were also "suspicious lesions". Fast Forward to a biopsy I had last month (following over six months of abstinence
I just wanted to share my story in case it helps others. In December last year I had an ultrasound scan and the results were probable cirrhosis, portal vein hypertension and varices. There were also "suspicious lesions". Fast Forward to a biopsy I had last month (following over six months of abstinence
Ruthless247
in
British Liver Trust
2 months ago
Potential Unified Prevention Strategy for Parkinson’s Disease Unveiled: Insights from ScienceAlert
https://theubj.com/uae/science/122035/potential-unified-prevention-strategy-for-parkinsons-disease-unveiled-insights-from-sciencealert/ Investigations into the causes of Parkinson’s disease suggest that our environment could play a key role, opening up possibilities for the prevention of a significant
https://theubj.com/uae/science/122035/potential-unified-prevention-strategy-for-parkinsons-disease-unveiled-insights-from-sciencealert/ Investigations into the causes of Parkinson’s disease suggest that our environment could play a key role, opening up possibilities for the prevention of a significant
pvw2
in
Cure Parkinson's
2 months ago
Does this sound right? Any advice appreciated.
My dad, 82 yo male had a previous PSA score that hovered around 3 and then went up to 5. Had MRI/CT which came up clear last year and a prostate biopsy (11 samples, noted prostatitis and BPH) in September last year which was also clear. Took PSA again in December 2023, it jumped to 15. Took PSA in February
My dad, 82 yo male had a previous PSA score that hovered around 3 and then went up to 5. Had MRI/CT which came up clear last year and a prostate biopsy (11 samples, noted prostatitis and BPH) in September last year which was also clear. Took PSA again in December 2023, it jumped to 15. Took PSA in February
Biddity
in
Advanced Prostate Cancer
2 months ago
Rasagiline and Mucuna together?
My MDS is a huge fan of rasagiline and I’ve taken it for almost 3 years, and want to continue to take Mucuna and carbidopa as needed along with it. I've read that Mucuna should not be taken with rasagiline. Is there any truth to this? I’m not going to stop taking rasagiline, and I’d rather not start
My MDS is a huge fan of rasagiline and I’ve taken it for almost 3 years, and want to continue to take Mucuna and carbidopa as needed along with it. I've read that Mucuna should not be taken with rasagiline. Is there any truth to this? I’m not going to stop taking rasagiline, and I’d rather not start
Ob6842
in
Cure Parkinson's
2 months ago
DO YOU TRUST YOUR DOCTOR : Free registration at https://malecare.org/trust-in-healthcare
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Malecare and Prostate Cancer Research (UK) Virtual Conference: TRUST AND HEALTHCARE WEDNESDAY, JUNE 26, 2024 on Youtube.com/Malecare 12 PM ET to 6:10 PM ET (New York time) Register with your email for free at https://malecare.org/trust-in-healthcare Prostate Cancer Research (PCR) is a patient-centric
Darryl
Partner
in
Advanced Prostate Cancer
2 months ago
Just a quick question.
Hi everyone and thanks for all your help so far. As the chemo has now stopped working for Martin we are looking for any other options that might be available to give him more time. His MO has organised a liquid biopsy to see if there are any mutations that could be treated, which might help. We
Hi everyone and thanks for all your help so far. As the chemo has now stopped working for Martin we are looking for any other options that might be available to give him more time. His MO has organised a liquid biopsy to see if there are any mutations that could be treated, which might help. We
Believeit
in
Advanced Prostate Cancer
2 months ago
SSDI Approved in 5 Months
This information is relevant for US members : I am glad to announce that I was approved for SSDI (Social Security Disability Benefits) in less than 5 months. It would probably have been approved in 3 months if I had responded to additional information promptly. Note that this was approved through
This information is relevant for US members : I am glad to announce that I was approved for SSDI (Social Security Disability Benefits) in less than 5 months. It would probably have been approved in 3 months if I had responded to additional information promptly. Note that this was approved through
pdpatient
in
Cure Parkinson's
2 months ago
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