SSDI Approved in 5 Months : This... - Cure Parkinson's

Cure Parkinson's

25,855 members27,162 posts

SSDI Approved in 5 Months

pdpatient profile image
14 Replies

This information is relevant for US members :

I am glad to announce that I was approved for SSDI (Social Security Disability Benefits) in less than 5 months. It would probably have been approved in 3 months if I had responded to additional information promptly. Note that this was approved through the general process without a request for expedite or the condition listed in the CAL list.

Apparently, Parkinson's is not on the Fast Track list, otherwise known as Compassionate Allowances (CAL) list. Social Security Disability Benefits have come a long way after 2022. They even have a program where just a diagnosis of some diseases can allow a patient with some conditions to immediately receive payments while waiting for approval. This is called presumptive eligibility. We can petition to get Parkinson's on the list for even faster approvals.

Written by
pdpatient profile image
pdpatient
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Hilo64 profile image
Hilo64

congrats on the SSDI. Did you use a disability attorney to help you? I’ve been told most of the time it’s necessary.

pdpatient profile image
pdpatient in reply to Hilo64

No. All that nonsense is out the window now. In fact, they told me that my case would take about 6 more months in March when I responded to their request for additional information. I only verbally told them that I was in great pain and difficulty and I was having trouble just filling out the forms, so to please process my case in an expedited manner.

It turns out that you can actually make the request in writing proactively.

They will also call you when more information is needed.

MomoP profile image
MomoP in reply to Hilo64

I was denied and appealed 3 times. I finally got an attorney and had a hearing. I was finally approved and consider myself lucky that they went back to my initial diagnosis date which made me eligible for Medicare

Juliegrace profile image
Juliegrace in reply to MomoP

I thought you had to be on it for 2 years to be eligible for Medicare.

MomoP profile image
MomoP in reply to Juliegrace

You do, but it depends on what date they determine that your disability began. There were a few years in between my application and numerous denials and finally approved. ( it ended up including the two years)

staceysack profile image
staceysack

Yes - did you need an attorney?

pdpatient profile image
pdpatient in reply to staceysack

No. Just took a few days to organize the paperwork and double and triple check the forms with the help of my wife before submitting.

staceysack profile image
staceysack in reply to pdpatient

Thank you

Hilo64 profile image
Hilo64

that’s very helpful. Thank you

busters_dad profile image
busters_dad

What state? Even though it's federal money, SS is administered by the state. I'm in WA and my husband replied promptly to every request and it took them 9 months to deny him. A friend who lost his sight 12 years ago said that it helps to go in person and talk to the claims person working your case. I laughed and said that was before COVID. There was never a chance to go in person. We never even got to talk to the case worker. Any time we called we always got someone else in their office and had to leave a message. Then we'd just get a letter in reply. I swear they are avoiding any actual contact to make it easier to deny you. We're in process of appealing the decision. They said the reason for denial was he had worked at one time as a mail clerk in an office and could still do that. Show me a mailroom job description that doesn't say "must be able to lift and move 50lbs". Or that lets you make your own hours because you only have maybe 4 hours a day when your meds are really "on" and who knows when that will be. I'm going to have his neurologist write something that lets them know how his symptoms have been getting worse over the last year and he can't reliably commit to work at certain times let alone drive to work if his meds are "off".

pdpatient profile image
pdpatient in reply to busters_dad

Good point,   busters_dad . I am in California. Also, now that I think about it I believe my age might have something to do with it? I am going to be 60 in September. I am eligible to retire with social security at 62 at reduced rates. Maybe they figured that they would have to give me the money anyway in 2 years, so why bother.

These are helpful resources :

ssa.gov/compassionateallowa...

ssa.gov/disability

pdpatient profile image
pdpatient in reply to busters_dad

   busters_dad

I also wanted to mention that the quality of the medical records kept by the doctor or doctors and how strongly they advocate for you and that matters a lot. .

Both my primary care doctor and my MDS keep detailed records and sent everything to the SSA along with the results of a thorough evaluation done prior to my application. They also wrote strong letters to the SSA on my behalf. I also waited for 2 years after losing my job to apply.

Maybe all these factored into the fast track? BTW, you can appeal to the SSA yourself I dont believe that you need to pay for an attorney, but I don't know how much they would charge you. It would have been unaffordable for me if I had to use one

bassofspades profile image
bassofspades

Congratulations! It can be a nerve wracking process. took me 3 tries for a total of 18 months. Then they gave me a phat check for the whole time since I applied. Unfortunately, I had to pay it all to the company that was giving me disability insurance through my former job. It was in the contract, so easy come easy go. Then the IRS took their chunk. Kind of a roller coaster ride for a while, there.

gomelgo profile image
gomelgo

Congrats to you! I couldn't even really apply because I had not officially worked enough in the last 5 years. So sad because now I can't work. I tried, but my nervous system is fried. :(

You may also like...

Why is Ambroxol not approved by the FDA?

Why is Ambroxol not approved by the FDA when it is readily available in Europe in countries with...

5 Questions For The Forum Regarding CBD Products

states? 2. If you have found benefit from CBD products, what benefit have you found related to PD...

Annovis Bio Announces Approval for EU Clinical Trial Sites for the Phase 3 Study of Buntanetap for the Treatment of Parkinson's Disease

have not listed the EU sites yet....

FDA Approves Focused Ultrasound Treatment for Parkinson’s Disease

fusfoundation.org/news/fda-approves-focused-ultrasound-treatment-for-parkinsons-disease...

Increasing my dose of B1 after 4 years and 7 months

EDITING TO ADD:...