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Hello. Low grade Serous
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
GoldieH
in
My Ovacome
8 months ago
colonoscopy and ct scan
recently had colonoscopy and then 3 weeks later Ct scan on colon. Both of these procedures I had to take bowel prep. So with in 3 weeks 2 lots of bowel prep. Now, nearly 3 weeks on I keep getting stomach pains and feeling nauseous. Anyone else had this?
recently had colonoscopy and then 3 weeks later Ct scan on colon. Both of these procedures I had to take bowel prep. So with in 3 weeks 2 lots of bowel prep. Now, nearly 3 weeks on I keep getting stomach pains and feeling nauseous. Anyone else had this?
jsee
in
IBS Network
7 months ago
Vitamin B12 produced by gut bacteria modulates cholinergic signalling
I simply can't help but think that this has some relevance to Pernicious Anaemia. But goodness knows what! And the lack of access precludes reading it all to try to find out. Seems such an odd bit of genetics that we developed an incredibly complex system to grab a tiny bit of B12 from our food, which
I simply can't help but think that this has some relevance to Pernicious Anaemia. But goodness knows what! And the lack of access precludes reading it all to try to find out. Seems such an odd bit of genetics that we developed an incredibly complex system to grab a tiny bit of B12 from our food, which
helvella
in
Pernicious Anaemia Society
6 months ago
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Worried about blood
Hi all Since September ish I have been suffering with constipation. I went to my doctors and was prescribed laxido. This helped and I was able to go toilet with no pain. I stopped taking it as I didn't want to be dependant on it but the constipation returned. I do about 90% of the time have bright red
Hi all Since September ish I have been suffering with constipation. I went to my doctors and was prescribed laxido. This helped and I was able to go toilet with no pain. I stopped taking it as I didn't want to be dependant on it but the constipation returned. I do about 90% of the time have bright red
Stomachsufferer
in
IBS Network
6 months ago
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
8 months ago
Prostate cancer in liver
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Parscore
in
Advanced Prostate Cancer
8 months ago
Thank you all
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
Justme153
in
SHARE Metastatic Breast Cancer
8 months ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
3 months ago
Can’t cope anymore
To make a long story short, im having panic attacks because me and my gf broke up recently and we both agreed to stay friends bc we are attached, but i feel so hurt and scared of messing things up moving forward. On top of my normal mental health which was already doing poor, i don’t know what to do
To make a long story short, im having panic attacks because me and my gf broke up recently and we both agreed to stay friends bc we are attached, but i feel so hurt and scared of messing things up moving forward. On top of my normal mental health which was already doing poor, i don’t know what to do
catbones0421
in
Anxiety and Depression Support
3 months ago
Symptoms query
Hi all My specialist feels like I have IBS. I have had constant bloating for 7 months; eating makes it worse and my stomach is always distended regardless of whether I eat anything. Had colonoscopy and results were fine. I am waiting on results of CT scan as final check. Is it normal to have a constantly
Hi all My specialist feels like I have IBS. I have had constant bloating for 7 months; eating makes it worse and my stomach is always distended regardless of whether I eat anything. Had colonoscopy and results were fine. I am waiting on results of CT scan as final check. Is it normal to have a constantly
TwoPlusTwo24
in
IBS Network
6 months ago
Iron, estrogen & RLS
Just wondering if anyone is aware of any connection between iron & estrogen (from an RLS perspective)? I'm a 73 year-old male, and I've had high-ish estrogen levels for at least the last 7 years (42-49; normal level should be below 41). I think there is some correlation between high estrogen and high
Just wondering if anyone is aware of any connection between iron & estrogen (from an RLS perspective)? I'm a 73 year-old male, and I've had high-ish estrogen levels for at least the last 7 years (42-49; normal level should be below 41). I think there is some correlation between high estrogen and high
707twitcher
in
Restless Legs Syndrome
6 months ago
German tara
Hi everyone I've being getting a tube off biogenesis gel for dry mouth last night was the first dry mouth since afore xmas it was great I woke up at 2 my mouth completely dry no moisture at all in mouth tongue could off used it for sanding that rough had some water but still abit dry but
Hi everyone I've being getting a tube off biogenesis gel for dry mouth last night was the first dry mouth since afore xmas it was great I woke up at 2 my mouth completely dry no moisture at all in mouth tongue could off used it for sanding that rough had some water but still abit dry but
Germantara
in
Lung Conditions Community Forum
6 months ago
Blood in Stool
I have found some blood in stool. I had a postive Qfit Test but just postive at 14. My GP said he was not overly concerned. I have an external hemorrid. I was referred and saw a Gastronelogist today he did a rectal exam and said there was not concerning. I did tell him that I was concerned of
I have found some blood in stool. I had a postive Qfit Test but just postive at 14. My GP said he was not overly concerned. I have an external hemorrid. I was referred and saw a Gastronelogist today he did a rectal exam and said there was not concerning. I did tell him that I was concerned of
Shanlissanna
in
Colon Cancer Connected
8 months ago
Constipation from PARPS
Hello, I had a recurrence last year after being in remission for over 6 years. I was diagnosed as being a 3C and am BRAC2. I did really well with the chemo and now I have been taking Olaparib for a little less than 3 weeks. It's been rough especially at the beginning. They had to wait a few extra
Hello, I had a recurrence last year after being in remission for over 6 years. I was diagnosed as being a 3C and am BRAC2. I did really well with the chemo and now I have been taking Olaparib for a little less than 3 weeks. It's been rough especially at the beginning. They had to wait a few extra
Chanterelle
in
My Ovacome
6 months ago
Advice for chronic constipation
My symptoms are so much better since my laparoscopy 9 months ago but I’m still constipated all. the. time. My surgeon has told me repeatedly that he’s very confident he removed all present endo and that there was none on my bowel. I’ve had a colonoscopy and MRI which have come back fine, aside from
My symptoms are so much better since my laparoscopy 9 months ago but I’m still constipated all. the. time. My surgeon has told me repeatedly that he’s very confident he removed all present endo and that there was none on my bowel. I’ve had a colonoscopy and MRI which have come back fine, aside from
Sunflower117
in
Endometriosis UK
6 months ago
I am desperately in need of help!
Hi everyone, I have been suffering from IBS for 8 years now, but over the last year my condition has gotten much worse. My main symptoms are heartburn, acid reflux, indigestion, bloating, and gut spasms. I am now at a stage where I can get through the first 9 hours of the day feeling fairly OK, but
Hi everyone, I have been suffering from IBS for 8 years now, but over the last year my condition has gotten much worse. My main symptoms are heartburn, acid reflux, indigestion, bloating, and gut spasms. I am now at a stage where I can get through the first 9 hours of the day feeling fairly OK, but
Crescendo251
in
IBS Network
6 months ago
Xeloda
This may be long! Moms journey with mbc started in 2020 . At the time lung Mets . She started ibrance and femara which worked great untill it didn’t this summer 2023. The cancer had spread to bones and 2 small liver and lesion and tiny brain lesion . Which was been taken care of with radiation and
This may be long! Moms journey with mbc started in 2020 . At the time lung Mets . She started ibrance and femara which worked great untill it didn’t this summer 2023. The cancer had spread to bones and 2 small liver and lesion and tiny brain lesion . Which was been taken care of with radiation and
Flower1513
in
SHARE Metastatic Breast Cancer
8 months ago
Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
8 months ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
My Ovacome
8 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
6 months ago
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