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Gallium 68 PSMA-11
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Still Frustrated
My prostrate cancer struggle continues. As I’ve posted, it began 5 months ago with higher PSA numbers in an annual physical. I live in San Diego where there is world class medical facilities and I’ve seen the most highly recommended doctors. Yet now , I’m diagnosed with a very aggressive (Gleason 9)
My prostrate cancer struggle continues. As I’ve posted, it began 5 months ago with higher PSA numbers in an annual physical. I live in San Diego where there is world class medical facilities and I’ve seen the most highly recommended doctors. Yet now , I’m diagnosed with a very aggressive (Gleason 9)
Willie51
in
Prostate Cancer And Gay Men
3 months ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
3 months ago
Psa level
Just came off degarlix as psa level was rising, now on xtadi apalutamide how long does it take for psa level to fall and by how much?
Just came off degarlix as psa level was rising, now on xtadi apalutamide how long does it take for psa level to fall and by how much?
littlemount
in
Advanced Prostate Cancer
3 months ago
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Update after 6 and a half years of treatment with triptolerin (Decapeptyl)
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
nereabg
in
Advanced Prostate Cancer
3 months ago
MRI from 3-30-2024.
I have been on active surveillance since 2016. Recently had a jump in PSA from 6.5 to 8.29. Had an MRI on Saturday and here are the results. Any thoughts or input are greatly appreciated. Impressions --No significant interval change in appearance of the prostate, with stable size and imaging appearance
I have been on active surveillance since 2016. Recently had a jump in PSA from 6.5 to 8.29. Had an MRI on Saturday and here are the results. Any thoughts or input are greatly appreciated. Impressions --No significant interval change in appearance of the prostate, with stable size and imaging appearance
Odnad
in
Prostate Cancer Network
3 months ago
Does Gleason score still apply after RP
Hi all. I have never been able to get this question answered. My Gleason was 3+3 before having my prostate removed. It was confirmed 3+3 after surgery. One open margin of less than 1mm. No sign of spreading anywhere locally or distant. My psa was in the .02-.03 range bouncing up and down for 8 years
Hi all. I have never been able to get this question answered. My Gleason was 3+3 before having my prostate removed. It was confirmed 3+3 after surgery. One open margin of less than 1mm. No sign of spreading anywhere locally or distant. My psa was in the .02-.03 range bouncing up and down for 8 years
LockItUp
in
Prostate Cancer Network
3 months ago
NCT04662580 - All about ARX517 as Monotherapy
Hello, Tomorrow I am going to participate in ARX517 as Monotherapy. Here is the clinical trial: https://www.clinicaltrials.gov/study/NCT04662580. Share your questions / positive comments. I will update here Special request to
Tall_Allen
- Please tell : what should I ask ? [
Hello, Tomorrow I am going to participate in ARX517 as Monotherapy. Here is the clinical trial: https://www.clinicaltrials.gov/study/NCT04662580. Share your questions / positive comments. I will update here Special request to
Tall_Allen
- Please tell : what should I ask ? [
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
stage 4 Mets in all his skeleton
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
Lakehouse32
in
Advanced Prostate Cancer
3 months ago
Bone pain, what next?
For over 2 years my scans show no radiographic progression despite a rising PSA, now at 43. However I am now experiencing periodic bone pain in the left hip area, mainly when I climb stairs. Tolerable but a worrying development. Even with lack of visible progression I think we need to change something
For over 2 years my scans show no radiographic progression despite a rising PSA, now at 43. However I am now experiencing periodic bone pain in the left hip area, mainly when I climb stairs. Tolerable but a worrying development. Even with lack of visible progression I think we need to change something
Ian99
in
Advanced Prostate Cancer
3 months ago
Prostrate Removed, PSA increasing
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
BlessedParchy
in
Advanced Prostate Cancer
3 months ago
Spot Radiation before Pluvicto?
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
spouse21
in
Advanced Prostate Cancer
3 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
3 months ago
after EBRT …monitoring?
I’m up to fraction 20, today, 8 to go. (YAY!) I’m sure my RO will fill me in in upcoming appointments, but was wondering what I could expect in terms of monitoring results of my treatments afterwards. I’d imagine routine blood panels, monitoring PSA, but should I expect another PSMA PET scan at some
I’m up to fraction 20, today, 8 to go. (YAY!) I’m sure my RO will fill me in in upcoming appointments, but was wondering what I could expect in terms of monitoring results of my treatments afterwards. I’d imagine routine blood panels, monitoring PSA, but should I expect another PSMA PET scan at some
Jpburns
in
Advanced Prostate Cancer
3 months ago
Erectile Leaking
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
Wakeyguy63
in
Prostate Cancer And Gay Men
3 months ago
Three month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8 Testosterone is 14.25 ng/dL Just had the blood draw 2 hours ago and results were pushed to my portal. Meet with my RO in 10 days.....I am THRILLED with the results!
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8 Testosterone is 14.25 ng/dL Just had the blood draw 2 hours ago and results were pushed to my portal. Meet with my RO in 10 days.....I am THRILLED with the results!
ToolBeltZia
in
Prostate Cancer Network
3 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
3 months ago
Uh... Oh... New Phase Awaits?
Dx 12/09, G4+3 Surgery 01/10 – Failed SRT 2nd quarter 2011 – Failed. Avodart worked for awhile. Eventually HT (Lupron + Casodex) in mid 2013. Worked great. Since then lengthy HT vacations 12/19/22-6/22/23 ---Orgovyx. Worked well so was able to stop...BUT NOW Starting to look like castrate resistance
Dx 12/09, G4+3 Surgery 01/10 – Failed SRT 2nd quarter 2011 – Failed. Avodart worked for awhile. Eventually HT (Lupron + Casodex) in mid 2013. Worked great. Since then lengthy HT vacations 12/19/22-6/22/23 ---Orgovyx. Worked well so was able to stop...BUT NOW Starting to look like castrate resistance
compiler
in
Advanced Prostate Cancer
3 months ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
3 months ago
PSMA Pet Scan results
My Dad has been on Abiraterone, Prednisone and Lupron for 2.5 years. He already had back in 2021 radiation to prostate, lymph nodes and 2 ribs. His PSA started going up and we just got the results from PSMA Pet Scan: “Highly PSMA positive tumor in the left prostate gland, increased in intensity and spatial
My Dad has been on Abiraterone, Prednisone and Lupron for 2.5 years. He already had back in 2021 radiation to prostate, lymph nodes and 2 ribs. His PSA started going up and we just got the results from PSMA Pet Scan: “Highly PSMA positive tumor in the left prostate gland, increased in intensity and spatial
Simonapo
in
Advanced Prostate Cancer
3 months ago
Final Pluvicto shot and things OK
I just had my 6th, and final, injection. Feeling well but everyone concerned with kidney function dropping -- hopefully transient and not an on-going trend, on the plus side this is the last time it has to deal with all that radioactive liquid. Chugging water and peeing like a champ! To review:
I just had my 6th, and final, injection. Feeling well but everyone concerned with kidney function dropping -- hopefully transient and not an on-going trend, on the plus side this is the last time it has to deal with all that radioactive liquid. Chugging water and peeing like a champ! To review:
Miccoman
in
Advanced Prostate Cancer
3 months ago
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