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Any proof that removing a tumor off prostate bed by radiation or surgery is better than just systemic therapy ?
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Shorehousejam
in
Advanced Prostate Cancer
1 month ago
Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
2 months ago
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Unable to obtain MRI either NHS or through
I was watching a breaking news on SKY international channel. Rod Steward. the rock star who has been bitterly complaining of not being able to get MRI scan although he is adamant that he id prepared to pay any amount. Obviously he was advised by medics either his own G>P> or specialist. I had encountered
I was watching a breaking news on SKY international channel. Rod Steward. the rock star who has been bitterly complaining of not being able to get MRI scan although he is adamant that he id prepared to pay any amount. Obviously he was advised by medics either his own G>P> or specialist. I had encountered
nilmonisikdar40
in
British Heart Foundation
1 year ago
Am I going the wrong way? ⬇️
Morning lovely people, my GP lowered my Thyroxin to 75mg from 100mg a month ago in order to get my TSH levels up, which have barely moved in ten years and were at 0.01 for ages and ages. This happened after I was prescribed T3 by a specialist just over ten years ago who has now even struck off. I can
Morning lovely people, my GP lowered my Thyroxin to 75mg from 100mg a month ago in order to get my TSH levels up, which have barely moved in ten years and were at 0.01 for ages and ages. This happened after I was prescribed T3 by a specialist just over ten years ago who has now even struck off. I can
Jojozo
in
Thyroid UK
7 months ago
Progression
Hello ThriversI was diagnosed last year stage 4 de-nova at 49. Er,pr + her 2 negative, pik3ca mutation. I started on Tamoxifin, Riboclicib and Lextrozle with zoledex and deconsumb injections. I got more progression, I then went on my first clinical trial xeolda and had an oophorectomy so I could stop
Hello ThriversI was diagnosed last year stage 4 de-nova at 49. Er,pr + her 2 negative, pik3ca mutation. I started on Tamoxifin, Riboclicib and Lextrozle with zoledex and deconsumb injections. I got more progression, I then went on my first clinical trial xeolda and had an oophorectomy so I could stop
Cherry38
in
SHARE Metastatic Breast Cancer
7 months ago
Ovarian mass continued...
Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have repeated CEA and CA125 so should get those results tomorrow. Last time they said it was solid but this time they said it is not solid component. I don't
Hi all still in limbo. I got my results recently of MRI repeated in October last one was March. The mass has only increased marginally in size. I have repeated CEA and CA125 so should get those results tomorrow. Last time they said it was solid but this time they said it is not solid component. I don't
Ova104
in
My Ovacome
7 months ago
Recent blood work, raised eosinophil count!
I'm going for a nasal polyp removal operation next week (Private) and I needed a blood test and cardioelectrogram prior. There were some minor values 0.01 up or down on 2 or 3 values mostly inflammation indicators. However, Eosinophil count was 0.5 x10*3ul which was beyond range according to the pdf
I'm going for a nasal polyp removal operation next week (Private) and I needed a blood test and cardioelectrogram prior. There were some minor values 0.01 up or down on 2 or 3 values mostly inflammation indicators. However, Eosinophil count was 0.5 x10*3ul which was beyond range according to the pdf
Glen68
in
Asthma Community Forum
7 months ago
lymphedema from prostate cancer, any advice on how to manage?
One of my dad’s biggest issues with prostate cancer is severe lymphedema from the waist down. He used to just have it in his right leg from lymph node removal during RP. Since being on the lynparza in January both sides have swelled up as well as scrotum and everything else below the waist. He was told
One of my dad’s biggest issues with prostate cancer is severe lymphedema from the waist down. He used to just have it in his right leg from lymph node removal during RP. Since being on the lynparza in January both sides have swelled up as well as scrotum and everything else below the waist. He was told
LJGD
in
Advanced Prostate Cancer
3 months ago
Hormone Replacement for Surgical Menopause
Hi dear ladies, have any of you used HRT to cope with the horrors of surgical menopause resulting from OC treatment, if that diagnosis happened to you prior to natural menopause? I find that there’s no discussion or warning about the effects of surgical menopause prior to treatment and that no one seems
Hi dear ladies, have any of you used HRT to cope with the horrors of surgical menopause resulting from OC treatment, if that diagnosis happened to you prior to natural menopause? I find that there’s no discussion or warning about the effects of surgical menopause prior to treatment and that no one seems
Doggies221
in
My Ovacome
7 months ago
Advice please On thyroxine & HRT with abnormal very low oestrogen levels.
Feeling very exhausted of late, more than usual and very achy all over . I have fibromyalgia so symptoms all overlap so difficult to know what issue is causing these symptoms. Last thyroid results in June within range, no change in dose and still on 75mcg thyroxine. GP has since checked my Oestrogen
Feeling very exhausted of late, more than usual and very achy all over . I have fibromyalgia so symptoms all overlap so difficult to know what issue is causing these symptoms. Last thyroid results in June within range, no change in dose and still on 75mcg thyroxine. GP has since checked my Oestrogen
Maynan17
in
Thyroid UK
8 months ago
Prostrap & dry eye
Hello, I’m on month 5 of prostrap with tibolone whilst I await excision surgery for endometriosis. I’m experiencing the worst dry eye / blepharis. In having to cleanse my eyelids, hot flannel massage, eye rinse, and drops and then eyelid cream multiple times a day and it’s really getting me down.
Hello, I’m on month 5 of prostrap with tibolone whilst I await excision surgery for endometriosis. I’m experiencing the worst dry eye / blepharis. In having to cleanse my eyelids, hot flannel massage, eye rinse, and drops and then eyelid cream multiple times a day and it’s really getting me down.
CrochetCrayola
in
Endometriosis UK
8 months ago
Should my Thyroxine be put down?
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Hello all, I've just had my latest results and my doctor has lowered my Thyroxine from 100mg to 75mg. Does that seem right? I feel very unwell and I'm putting on weight despite suffering from severe nausea, so I am definitely not over-eating. I'm 49-year-old woman who was diagnosed with an underachieve
Jojozo
in
Thyroid UK
8 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Is there any order to when new medications or PARP inhibitor are tried?
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
Shorehousejam
in
Fight Prostate Cancer
5 months ago
Question, each month with rising PSA, when do I do a pet scan
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Am I Hypothyroid?
Hi, can anyone give me any feedback on the blood results I have received please? I am nearly 5 years into Surgical Menopause, Ovaries removed. More than likely I have Oestrogen Dominance which could be suppressing thyroid function as my Prolactin is currently very high (975miu/l) and soon to be investigated
Hi, can anyone give me any feedback on the blood results I have received please? I am nearly 5 years into Surgical Menopause, Ovaries removed. More than likely I have Oestrogen Dominance which could be suppressing thyroid function as my Prolactin is currently very high (975miu/l) and soon to be investigated
FrankyBanx
in
Thyroid UK
8 months ago
IVF - First Round Fail
Hello, This is my first time on a forum so please bear with me.. My partner and I have started our IVF journey in September this year; initially the baseline scan was good and AFC count relatively okay so we were excited when the time came to start the injections. We had decided that I was going to
Hello, This is my first time on a forum so please bear with me.. My partner and I have started our IVF journey in September this year; initially the baseline scan was good and AFC count relatively okay so we were excited when the time came to start the injections. We had decided that I was going to
BlueSimba
in
Fertility Network UK
8 months ago
Aromatase Inhibitor Use?
Hi, I was diagnosed as Stage 1B Grade 1 - ER/PR+ > 95%. I had the hysterectomy, bilateral oophorectomy etc.... in July. And, i just completed three treatments of brachy therapy. My doctor put me on letrozole for one year. Thoughts?
Hi, I was diagnosed as Stage 1B Grade 1 - ER/PR+ > 95%. I had the hysterectomy, bilateral oophorectomy etc.... in July. And, i just completed three treatments of brachy therapy. My doctor put me on letrozole for one year. Thoughts?
relap
in
SHARE Uterine Cancer Support
8 months ago
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