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Gallbladder and bile duct diseases
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How do you contact your Rheumatologist?
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
CecilyParsley
in
LUPUS UK
3 months ago
borderline tumor
Hi, my consultant can see a 2.2cm cyst on my ovary that he said might be a borderline tumor. Needless to say I am worried, what are the chances of the tumor being actual cancer? Does anyone know how accurate an ultrasound is? They are doing an MRI soon but I am going out of my mind with worry.
Hi, my consultant can see a 2.2cm cyst on my ovary that he said might be a borderline tumor. Needless to say I am worried, what are the chances of the tumor being actual cancer? Does anyone know how accurate an ultrasound is? They are doing an MRI soon but I am going out of my mind with worry.
Scared-88
in
My Ovacome
3 months ago
Abdomen pain - IBS
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
Wobbies
in
IBS Network
5 months ago
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Flare or Adrenal Crisis
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
Belfastman
in
PMRGCAuk
6 months ago
Faslodex et ses effets secondaire
J'ai été opérée d'un cancer du sein en 2018 et traitée par chimio et radiothérapie ensuite, j'ai reçu de l'anastrozol pour 7 ans. Malheureusement, j'ai rechuté au bout de 5 ans, j'ai de nombreuses métastases osseuses sur la colonne, le bassin et la voute crânienne. Au départ j'ai eu Verzenios pendant
J'ai été opérée d'un cancer du sein en 2018 et traitée par chimio et radiothérapie ensuite, j'ai reçu de l'anastrozol pour 7 ans. Malheureusement, j'ai rechuté au bout de 5 ans, j'ai de nombreuses métastases osseuses sur la colonne, le bassin et la voute crânienne. Au départ j'ai eu Verzenios pendant
irisF
in
SHARE Metastatic Breast Cancer
3 months ago
Bilateral frontal calvarial metastases
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
kklott01
in
Advanced Prostate Cancer
3 months ago
Herceptin Perjeta and Faslodex advice?? And sadly bye bye Ibrance
Hi ladies , I’m reposting a briefer message from yesterday since it has 0 replies . Ibrance stopped working and I’m going on those 3 combinations - ty for all the earlier comments/tips I’ve read about Faslodex shots I’m looking for anyone who has done these three combinations and your symptoms . Guessing
Hi ladies , I’m reposting a briefer message from yesterday since it has 0 replies . Ibrance stopped working and I’m going on those 3 combinations - ty for all the earlier comments/tips I’ve read about Faslodex shots I’m looking for anyone who has done these three combinations and your symptoms . Guessing
Georgelila
in
SHARE Metastatic Breast Cancer
3 months ago
Full circle with this disease
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
AbbVie announces EU availability of Parkinson's therapy
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
LuckyLuke
in
Cure Parkinson's
6 months ago
Supplements to help liver
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
Catsaresocute
in
British Liver Trust
6 months ago
xeloda
I take 3000 a day and I weigh 135 lbs. My regime is 7 days on and 7 days off. However I started with 3500 and that really affected my hands and they lowered my dosage. I am still having challenges with my hands but it’s not bad. They get extremely dry and crack, so I try to keep them moisturized
I take 3000 a day and I weigh 135 lbs. My regime is 7 days on and 7 days off. However I started with 3500 and that really affected my hands and they lowered my dosage. I am still having challenges with my hands but it’s not bad. They get extremely dry and crack, so I try to keep them moisturized
Kofipuppy
in
SHARE Metastatic Breast Cancer
3 months ago
Temporary stoppage of Ibrutinib
I need to stop IB one week pre/post surgery. Today is day 3. Has anyone started feeling reversal symptoms? I’m feeling more fatigued. Hoping my lymph nodes issues don’t return. Just curious.
I need to stop IB one week pre/post surgery. Today is day 3. Has anyone started feeling reversal symptoms? I’m feeling more fatigued. Hoping my lymph nodes issues don’t return. Just curious.
CoBubby
in
CLL Support
3 months ago
Advice? Anyone taking Herceptin Perjeta and Faslodex? And bye Ibrance
Hi everyone. My onc switched me off ibrance and Exemastane bc initial breast tumor is growing and has become resistant to these meds. I knew like all of us here that first line of treatment would end sometime (almost 4 years) but I’m really nervous about this new normal I’m entering into with 3 week
Hi everyone. My onc switched me off ibrance and Exemastane bc initial breast tumor is growing and has become resistant to these meds. I knew like all of us here that first line of treatment would end sometime (almost 4 years) but I’m really nervous about this new normal I’m entering into with 3 week
Georgelila
in
SHARE Metastatic Breast Cancer
3 months ago
Fibroscan
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
kingsnorth
in
PBC Foundation
6 months ago
Princess of Wales
Many of you will have seen the Princess of Wales is having preventative chemotherapy for cancer. It must have been very difficult for her to speak about when still trying to digest the information herself. I rarely tell anyone I am suffering from a cancer, I usually say I have a bone marrow disease.
Many of you will have seen the Princess of Wales is having preventative chemotherapy for cancer. It must have been very difficult for her to speak about when still trying to digest the information herself. I rarely tell anyone I am suffering from a cancer, I usually say I have a bone marrow disease.
lizzziep
in
MPN Voice
3 months ago
Stating and underactive thyroid
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
shazzafloyd
in
Thyroid UK
8 months ago
7 years plus
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
1EPXiii
in
Kidney Dialysis
6 months ago
Elevated Liver Enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Mhalpha
in
British Liver Trust
6 months ago
SOC & PSA
Three months post RT, my RO ordered a non-ultrasensitive PSA test with a lower limit of "<.1". I see posts of folks considering an increase from .02 to .06 a PSA doubling - obviously which would not be observable with my PSA test. This makes me wonder why: 1) Is there any good reason why an ultrasensitive
Three months post RT, my RO ordered a non-ultrasensitive PSA test with a lower limit of "<.1". I see posts of folks considering an increase from .02 to .06 a PSA doubling - obviously which would not be observable with my PSA test. This makes me wonder why: 1) Is there any good reason why an ultrasensitive
SCreader
in
Advanced Prostate Cancer
6 months ago
I am the delivery man these days! Optimizing existing therapies!
The study explores a new method for cancer treatment combining light-activated therapy with a special drug that targets low-oxygen areas in tumors. This approach uses tiny tiny tiny capsules to deliver both the light-sensitive agent and the drug directly to the tumor, enhancing the treatment's effectiveness
The study explores a new method for cancer treatment combining light-activated therapy with a special drug that targets low-oxygen areas in tumors. This approach uses tiny tiny tiny capsules to deliver both the light-sensitive agent and the drug directly to the tumor, enhancing the treatment's effectiveness
Maxone73
in
Advanced Prostate Cancer
3 months ago
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