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Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
4 months ago
NEIGHBOUR JUST GOT COVID VAX
Quick one - I think. My neighbour, who helps me during these back issues, just got a Covid booster and Flu vax yesterday. Is it possible for her to transmit the virus to me? Is "immune compromised" the correct term for us PMR folk? Am I being paranoid? TIA
Quick one - I think. My neighbour, who helps me during these back issues, just got a Covid booster and Flu vax yesterday. Is it possible for her to transmit the virus to me? Is "immune compromised" the correct term for us PMR folk? Am I being paranoid? TIA
Missus835
in
PMRGCAuk
9 months ago
Ginkgo - possible adverse side effect: Nervous anxiety
It's me again. On about Ginkgo as usual... Having taken Ginkgo for over 6 months, and having planned relief from Tinnitus by doing so, I may have experienced a side effect. Recent bouts of nervous anxiety. This is not the kind of anxiety you might experience in a dentist waiting room. No, this is
It's me again. On about Ginkgo as usual... Having taken Ginkgo for over 6 months, and having planned relief from Tinnitus by doing so, I may have experienced a side effect. Recent bouts of nervous anxiety. This is not the kind of anxiety you might experience in a dentist waiting room. No, this is
Ray200
in
Tinnitus UK
2 months ago
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Covid - Beware Getting Treatment - An Update
So you will have all read about my ordeal regarding the acquisition of Anti Virals and my last post on Monday the 9th was that I had been contacted by a NHS Nurse who advised me that a Doctor would be calling me by 2.30pm that day. Well he did at 4.45pm went through the checks and advised me the local
So you will have all read about my ordeal regarding the acquisition of Anti Virals and my last post on Monday the 9th was that I had been contacted by a NHS Nurse who advised me that a Doctor would be calling me by 2.30pm that day. Well he did at 4.45pm went through the checks and advised me the local
Investigator1
in
Vasculitis UK
9 months ago
Hearing aids and work
Hi, I started using hearing aids earlier in the year (moderate to severe loss, with profound at the highest frequencies). I’m only in my mid 50s and have close to 10 years working left. As with a lot of office workers I’m now spending an awful lot of time on MS teams. I’m really struggling with headphones
Hi, I started using hearing aids earlier in the year (moderate to severe loss, with profound at the highest frequencies). I’m only in my mid 50s and have close to 10 years working left. As with a lot of office workers I’m now spending an awful lot of time on MS teams. I’m really struggling with headphones
GillyA
in
Tinnitus UK
2 months ago
FET next week but Follicles might have stopped that? Advice needed
so I’m having some issues. I’m a surrogate with 1 pregnancy under my belt from a frozen embryo transfer. The first time I used Progynova 2mg 3x a day. Then after the baseline scan, it was prog & cyclogest until the transfer day. Today I’m starting the process again and I have the same medication cycle
so I’m having some issues. I’m a surrogate with 1 pregnancy under my belt from a frozen embryo transfer. The first time I used Progynova 2mg 3x a day. Then after the baseline scan, it was prog & cyclogest until the transfer day. Today I’m starting the process again and I have the same medication cycle
SurrogateFriend
in
Fertility Network UK
2 months ago
Scientists Offer a New Explanation for Long Covid
https://www.nytimes.com/2023/10/16/health/long-covid-serotonin.html?campaign_id=7&emc=edit_mbae_20231016&instance_id=105359&nl=morning-briefing%3A-asia-pacific-edition®i_id=138732216&segment_id=147501&te=1&user_id=521e6fb33d8cd5099db772394e0d2157 “A team of scientists is proposing a new explanation
https://www.nytimes.com/2023/10/16/health/long-covid-serotonin.html?campaign_id=7&emc=edit_mbae_20231016&instance_id=105359&nl=morning-briefing%3A-asia-pacific-edition®i_id=138732216&segment_id=147501&te=1&user_id=521e6fb33d8cd5099db772394e0d2157 “A team of scientists is proposing a new explanation
LAJ12345
in
Cure Parkinson's
9 months ago
InkMune clinical trial goes on: second cohort is being treated
In phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy In its announcement on Monday, INmune said it successfully completed nine INKmune administrations in the outpatient setting within the first cohort in the trial. None of the patients who have received INKmune so far have
In phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy In its announcement on Monday, INmune said it successfully completed nine INKmune administrations in the outpatient setting within the first cohort in the trial. None of the patients who have received INKmune so far have
Maxone73
in
Advanced Prostate Cancer
2 months ago
Stopped Methotrexate being screened for Adalimumab
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
Amandaazz
in
NRAS
5 months ago
COVID vaccine - old stock in use in the UK
Apparently, in order to save money, the British government decided to use the old stock of COVID vaccines, and they were doing so until a week (or so) ago. Hence, more than 2.3 million older and immunosuppressed people received the vaccine that does not match the dominant strain (XBB ), including people
Apparently, in order to save money, the British government decided to use the old stock of COVID vaccines, and they were doing so until a week (or so) ago. Hence, more than 2.3 million older and immunosuppressed people received the vaccine that does not match the dominant strain (XBB ), including people
flamboyant_hawking
in
MPN Voice
9 months ago
Better after covid
I've had PMR for more that two years, am now down to 2.5 mg. A month ago I also had covid, like a very bad cold plus diarrhea. It lasted two weeks. Now I'm recovered from the covid I feel better than I have in more than a year. That dragging feeling of weakness and fatigue I've had for months has gone
I've had PMR for more that two years, am now down to 2.5 mg. A month ago I also had covid, like a very bad cold plus diarrhea. It lasted two weeks. Now I'm recovered from the covid I feel better than I have in more than a year. That dragging feeling of weakness and fatigue I've had for months has gone
Janbay46
in
PMRGCAuk
9 months ago
Severe insomnia and limited meds to take while on Hydroxy.
Hi all, first timer on this thread. I’ve been on Plaquenil for 5-years to treat RA and also on antidepressant Celexa (10mg) for the last 10 years. In 2022, my primary dr suddenly alarmed me that I can no longer take Celexa due to IQ heart issues that was found during the Covid pandemic when so many
Hi all, first timer on this thread. I’ve been on Plaquenil for 5-years to treat RA and also on antidepressant Celexa (10mg) for the last 10 years. In 2022, my primary dr suddenly alarmed me that I can no longer take Celexa due to IQ heart issues that was found during the Covid pandemic when so many
Mialuke
in
NRAS
9 months ago
Appointments Scheduled
Today I scheduled my next Covid Vaccine online today to get my next Covid vaccine at Walmart tomorrow. My cousin will take me as she doesn't have school tomorrow. Next week, when I go for my physical I will get my annual flu shot. Rather not risk a reaction of getting the 2 together. My Neuro appt
Today I scheduled my next Covid Vaccine online today to get my next Covid vaccine at Walmart tomorrow. My cousin will take me as she doesn't have school tomorrow. Next week, when I go for my physical I will get my annual flu shot. Rather not risk a reaction of getting the 2 together. My Neuro appt
bxrmom
in
My MSAA Community
9 months ago
First bout of Covid
Well controlled 74 year old Asthmatic on Relvar Ellipta. Recently became ill whilst on holiday in Sunny Spain. Peak flow down to 350 normally 550 night of return to UK. Seen in respiratory clinic day after peak flow improved to 425 crackles on lung prescribed Antibiotics and 40mg prednisolone for 5 days
Well controlled 74 year old Asthmatic on Relvar Ellipta. Recently became ill whilst on holiday in Sunny Spain. Peak flow down to 350 normally 550 night of return to UK. Seen in respiratory clinic day after peak flow improved to 425 crackles on lung prescribed Antibiotics and 40mg prednisolone for 5 days
Noddy66
in
Asthma Community Forum
9 months ago
Hide Covid ad
This may sound silly, but I am very excited because I figured out how to hide the Covid ad that pops up after every initial post. Covid was the cause of my major anxiety, and every time I looked at the ad it would remind me of what makes me anxious. I'm not sure why they allowed this kind of an ad
This may sound silly, but I am very excited because I figured out how to hide the Covid ad that pops up after every initial post. Covid was the cause of my major anxiety, and every time I looked at the ad it would remind me of what makes me anxious. I'm not sure why they allowed this kind of an ad
punkster
in
Anxiety and Depression Support
9 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
NRAS
5 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
FieryBones - RA Community
5 months ago
just to say thanks
thanks everyone who replied to me , about my Painful Knee, it’s lovely to know there’s help when u need it, still struggling, all over flare now , just come home from hospital after having all over steroid injection, hope it works, should be starting new drug soon, thank u all once again Kate x
thanks everyone who replied to me , about my Painful Knee, it’s lovely to know there’s help when u need it, still struggling, all over flare now , just come home from hospital after having all over steroid injection, hope it works, should be starting new drug soon, thank u all once again Kate x
Kate2628
in
NRAS
5 months ago
Home again!
My trip overseas was very hot and the river cruise was great-no cooking for nearly a month! The downside is that after I travel home in the giant aluminium tube that recirculates air for about 800+ travellers, I managed to get Covid. No probs, got the anti virals and wondered why I wasn't getting better
My trip overseas was very hot and the river cruise was great-no cooking for nearly a month! The downside is that after I travel home in the giant aluminium tube that recirculates air for about 800+ travellers, I managed to get Covid. No probs, got the anti virals and wondered why I wasn't getting better
Ozchick
in
Hughes Syndrome APS Forum
9 months ago
Adalimumab and covid vaccine
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
Amb1xkr
in
NRAS
9 months ago
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