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update on statins, Leflunomide & biphosphates
Up until 48 hours before I was determined to resist biphosphonates unless she could convince me I was in the area of osteoporosis, but some movement the previous day took me back to square 1 on the
fractures
- horrible pain, struggling to walk, so I had a different mindset!
Up until 48 hours before I was determined to resist biphosphonates unless she could convince me I was in the area of osteoporosis, but some movement the previous day took me back to square 1 on the
fractures
- horrible pain, struggling to walk, so I had a different mindset!
Japsquar
in
PMRGCAuk
2 months ago
Has anyone had positive results, low side effects with Foxamax?
Not talking about better DEXA scores...prevent
fractures
, less pain, etc. Thanks!
Not talking about better DEXA scores...prevent
fractures
, less pain, etc. Thanks!
Southerngirl2787
in
Bone Health and Osteoporosis UK
1 year ago
Taxotere
I am looking for any information regarding men with prostate cancer, who have had chemo using Taxotere. Please tell me what we should expect with the chemo treatments such as side effect and how it might effect him, how long did it take for PSA to decrease. My husband will have to start chemo for
I am looking for any information regarding men with prostate cancer, who have had chemo using Taxotere. Please tell me what we should expect with the chemo treatments such as side effect and how it might effect him, how long did it take for PSA to decrease. My husband will have to start chemo for
MsHope
in
Advanced Prostate Cancer
11 months ago
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Pluvicto
For you guys having treatment and experiencing tumor pain prior to treatment. Have you seen pain reduction after treatments. I finished my 3rd treatment a week ago and as of today the pain has increased 😩. I take Oxy already but my doctor has given me a fentanyl patch to see if that helps. I know
For you guys having treatment and experiencing tumor pain prior to treatment. Have you seen pain reduction after treatments. I finished my 3rd treatment a week ago and as of today the pain has increased 😩. I take Oxy already but my doctor has given me a fentanyl patch to see if that helps. I know
db1966
in
Advanced Prostate Cancer
11 months ago
After 2 Nuclear Ligand treatments should I still have severe bone pain in my lower back?
He has now had 2 nuclear Ligand treatments but still often has severe bone pain (he was diagnosed with stress
fractures
in his T12 and T9 just prior to his first Ligand treatment in Austria. He is due for his 2nd bone hardening treatment tomorrow plus bloodwork.
He has now had 2 nuclear Ligand treatments but still often has severe bone pain (he was diagnosed with stress
fractures
in his T12 and T9 just prior to his first Ligand treatment in Austria. He is due for his 2nd bone hardening treatment tomorrow plus bloodwork.
chuigk
in
Advanced Prostate Cancer
2 months ago
SharonY
Wondering if anyone has had dental extraction while on Actemra. I was told by my dentist that it affects the jaw and I would need to see a specialist since an extraction would be problematic? I am in the UK and have weekly Actemra injections. Thx
Wondering if anyone has had dental extraction while on Actemra. I was told by my dentist that it affects the jaw and I would need to see a specialist since an extraction would be problematic? I am in the UK and have weekly Actemra injections. Thx
WaltzG
in
PMRGCAuk
11 months ago
QoL and watercolour painting
I have been treated for metastatic PCa since 2004, and am currently on Xtandi. The side effects have been #!)@()($ awful, and I am currently on fentanyl patches to combat the pain caused by muscle rigidity and joint stiffness. My brain is so foggy that I have found it difficult at times to express myself
I have been treated for metastatic PCa since 2004, and am currently on Xtandi. The side effects have been #!)@()($ awful, and I am currently on fentanyl patches to combat the pain caused by muscle rigidity and joint stiffness. My brain is so foggy that I have found it difficult at times to express myself
BrentW
in
Advanced Prostate Cancer
1 year ago
advice re knee pain.
My gp sent me to A&E to rule out
fractures
of the spine or pelvis. Scan was clear, so sent home. over the weeks the pain has intensified and goes all the way from mid shin to my hip. I had an urgent mri on Sunday, and returned to A&E today for the resits.
My gp sent me to A&E to rule out
fractures
of the spine or pelvis. Scan was clear, so sent home. over the weeks the pain has intensified and goes all the way from mid shin to my hip. I had an urgent mri on Sunday, and returned to A&E today for the resits.
Runrig01
in
Arthritis Action
8 months ago
Disappointing news
Hello, I was first informed I had Osteoporosis 8 years ago after a Dexa at age 63. I was prescribed a few years of Alendronic Acid, and Adcal which I still takeI took steps to improve by taking up various activities and in 2022 started running regular 5ks. I eat healthily and enjoy lots of veg, in fact
Hello, I was first informed I had Osteoporosis 8 years ago after a Dexa at age 63. I was prescribed a few years of Alendronic Acid, and Adcal which I still takeI took steps to improve by taking up various activities and in 2022 started running regular 5ks. I eat healthily and enjoy lots of veg, in fact
Raisemeup
in
Bone Health and Osteoporosis UK
1 year ago
Declining psa #4
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Nfler
in
Advanced Prostate Cancer
1 year ago
PSA on the rise
Stage 3 prostate cancer. Radical prostatectomy and radiation in 2013. PSA has gone from 0 to 0.41. What’s likely to happen?  Thanks.Â
Stage 3 prostate cancer. Radical prostatectomy and radiation in 2013. PSA has gone from 0 to 0.41. What’s likely to happen?  Thanks.Â
Geno2853
in
Advanced Prostate Cancer
1 year ago
physio
I have been designated a RA physio …. What !!! I hear you shout. Yes could have blown me down with a feather thought they were extinct. She was lovely and understood me completely. Appointment was an hour and a half . I’m having multiple problems but she asked what I would like to concentrate on first
I have been designated a RA physio …. What !!! I hear you shout. Yes could have blown me down with a feather thought they were extinct. She was lovely and understood me completely. Appointment was an hour and a half . I’m having multiple problems but she asked what I would like to concentrate on first
J1707-
in
NRAS
1 year ago
Trainers
HiCan anyone help signpost or recommend some good running trainers, or a place to buy them from. My last pair were fab when I was 6stone lighter and my joints weren't as weak, but even fast paced walking is causing me considerable pain in my ankle, shins, knees and top of the foot. I don't know where
HiCan anyone help signpost or recommend some good running trainers, or a place to buy them from. My last pair were fab when I was 6stone lighter and my joints weren't as weak, but even fast paced walking is causing me considerable pain in my ankle, shins, knees and top of the foot. I don't know where
MissBoris
in
Couch to 5K
1 year ago
Rejoining the world - An update on my cancer experience as a patient with cirrhosis
I was having very painful time with back muscle cramps and had a fall which resulted in 3 compression
fractures
. While dealing with that I saw my PCP who identified that I was having a critical calcium event.
I was having very painful time with back muscle cramps and had a fall which resulted in 3 compression
fractures
. While dealing with that I saw my PCP who identified that I was having a critical calcium event.
nash2
Partner
in
Living with Fatty Liver and NASH
3 months ago
Understanding family history, osteoporosis and bone health #BoneMatters
Professor Stuart Ralston discusses the role of family history and genetics in increasing the risk of osteoporosis and
fractures
.
Professor Stuart Ralston discusses the role of family history and genetics in increasing the risk of osteoporosis and
fractures
.
ROSModerator
Partner
in
Bone Health and Osteoporosis UK
1 year ago
Filgrastim injections and pain
Any of you lovely ladies on Filgrastim? I am half way through my 2nd line chemo and on Carboplatin. Doing Ok with that but since Filgrastim injections I have been getting some soreness in the back of my neck and some aches down my right side where the main tumour is. I didn't get any symptoms from the
Any of you lovely ladies on Filgrastim? I am half way through my 2nd line chemo and on Carboplatin. Doing Ok with that but since Filgrastim injections I have been getting some soreness in the back of my neck and some aches down my right side where the main tumour is. I didn't get any symptoms from the
PlantPower
in
My Ovacome
1 year ago
Xtandi vs. Biktarby advice needed.
After Zytiga-prednisone-lupron failed, mostly by overwhelming SE from the first two. I received my second Lupron injection last week even though there's a slight PSA increase from .83 to 1.10 (they did not do a testosterone test, wich was climbing again) Oncologist mentioned we could start Xtandi but
After Zytiga-prednisone-lupron failed, mostly by overwhelming SE from the first two. I received my second Lupron injection last week even though there's a slight PSA increase from .83 to 1.10 (they did not do a testosterone test, wich was climbing again) Oncologist mentioned we could start Xtandi but
Blueribbon63
in
Advanced Prostate Cancer
1 year ago
Casodex after castration resistance?
After being undetectable on mono HT (Zoladex) for 67 months my dad's PSA started climbing in December 2022. In March it was 0.05. His testosterone level also rose from 0.6 to 1.2. The doctor recommended to add Casodex. After a month, in April his PSA was 0.024 and testosterone was 0.9. I have two questions
After being undetectable on mono HT (Zoladex) for 67 months my dad's PSA started climbing in December 2022. In March it was 0.05. His testosterone level also rose from 0.6 to 1.2. The doctor recommended to add Casodex. After a month, in April his PSA was 0.024 and testosterone was 0.9. I have two questions
Nestorian
in
Advanced Prostate Cancer
1 year ago
Back on ADT
Restarted ADT 3/15/23 with my Lupron shot followed quickly with Xtandi 160mg daily. My PSA peaked to 3.36 on 3/7/23 and then 4/3/23 1.65 5/1/23 .34 So hoping the trend continues downward. Not sure if a slow or quick drop is better on recurrence. My RO said, when asked, "lower is better". Its getting
Restarted ADT 3/15/23 with my Lupron shot followed quickly with Xtandi 160mg daily. My PSA peaked to 3.36 on 3/7/23 and then 4/3/23 1.65 5/1/23 .34 So hoping the trend continues downward. Not sure if a slow or quick drop is better on recurrence. My RO said, when asked, "lower is better". Its getting
treedown
in
Advanced Prostate Cancer
1 year ago
Knee Surgery and Xtandi
Hello everyone, I am scheduled for Knee surgery soon because of an injury pre cancer. The surgeon and the anesthesiologist asked the question about taking Xtandi during surgery etc. My MO said to take it until the day before and then stop for like 2 weeks. Xtandi has driven my PSA to Undetectable
Hello everyone, I am scheduled for Knee surgery soon because of an injury pre cancer. The surgeon and the anesthesiologist asked the question about taking Xtandi during surgery etc. My MO said to take it until the day before and then stop for like 2 weeks. Xtandi has driven my PSA to Undetectable
JD-guy
in
Advanced Prostate Cancer
1 year ago
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