physio: I have been designated a RA physio …. What... - NRAS

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J1707- profile image
22 Replies

I have been designated a RA physio …. What !!! I hear you shout. Yes could have blown me down with a feather thought they were extinct.

She was lovely and understood me completely. Appointment was an hour and a half . I’m having multiple problems but she asked what I would like to concentrate on first . Walking! to be able to go for a walk without the fear of everything giving up and then I can’t get home. It doesn’t help that everything has deteriorated since the beginning of December when I stopped adalimumab and waiting for tests to confirm if it’s RA or PsA. Her personal opinion that it could be both 😱 she will contact rheumatologist.

My ankle is causing all my problems. She couldn’t believe the lack of movement. I also suffer with extreme muscle fatigue. My daily walk with Darcy are making things worse. So we are starting from the beginning. No walking Darcy until back on meds and things settled. I have a set of three exercises…. Wait for it only 2 reps of each concentration on technique. Said hardly worth it but I’ve got to do as I’m told . So impressed wasn’t expecting this kind of help.

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J1707- profile image
J1707-
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22 Replies
rmros profile image
rmros

That's great news. I've not had great experience with physiotherapists since PsA (they were great when I had sports injuries). None of them really seem to know what it is so just treat it like it's mild RA so I could really have benefitted from a specialist.

The biomechanics specialist who dealt with my Achilles problems was really good though, as was the hydrotherapy physio.

J1707- profile image
J1707- in reply to rmros

I’ve had all those therapies and a steroid injection into my Achilles.. it’s jut stubborn 🙄

sylvi profile image
sylvi

She sounds like a lady we could all go and see. Pleased for you. xxxx

J1707- profile image
J1707- in reply to sylvi

thanks Sylvi hope your recovering xx

springcross profile image
springcross

Glad to hear it J, hope it all goes well.

TheBoys profile image
TheBoys

that’s great news - we all need one lol.

J1707- profile image
J1707- in reply to TheBoys

I have put that in surveys . We should have umbrella care with many therapists

Gottarelax profile image
Gottarelax

That sounds really encouraging! I have my first rheumy physio appointment next week so hoping it’s helpful for me too. If I could get some mobility back in my shoulders it would be a great start. I am also struggling with dog walking but hopefully that won’t be banned as while it’s difficult, I do like to get out in the countryside. I like the idea of 2 rep exercises though.

J1707- profile image
J1707- in reply to Gottarelax

good luck.. 2 reps still hurt

Gottarelax profile image
Gottarelax in reply to J1707-

Thank you, I hope that the pain of your exercise is worth it!

Fruitandnutcase profile image
Fruitandnutcase

Wow! That is impressive. Sounds like you have got a real treasure there who is determined to get you back walking again. How many times a day do you have to do your two reps?

J1707- profile image
J1707- in reply to Fruitandnutcase

😂only 2 reps once a day . Still hurts

Fruitandnutcase profile image
Fruitandnutcase in reply to J1707-

Ouch! Do what the physio tells you and hopefully it won’t be long before you are walking that Darcy off her little feet.

Boxerlady profile image
Boxerlady

That's great news.My experience of physio (not RA related) is that I was surprised by the apparent ease of the exercises but also by the positive effect they had so I hope that it's equally productive for you 🤞

J1707- profile image
J1707- in reply to Boxerlady

thanks x

Runrig01 profile image
Runrig01

I’m fortunate to have a very experienced Rheumatology physio. I have AS but it also affects virtually every joint in my body. She will always focus on what I need for a better quality of life. Sometimes it may be my fused ribs, that make me feel they’re being crushed. Other times it may be my jaw. She always recommends little and often, rather than large number of reps. Hope you find you’re able to walk easier after her input. I’ve been seeing mine on and off for 6yr.

J1707- profile image
J1707- in reply to Runrig01

I feel very lucky as are you . I think they are rare as hens teeth these physios

Green230461 profile image
Green230461

You lucky thing! Hope it goes well ☘️

J1707- profile image
J1707- in reply to Green230461

thanks x

Mmrr profile image
Mmrr

Excellent news, do let us know how you get on?

J1707- profile image
J1707-

will do

I'm well jealous 😁

Hope it helps

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