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Has anybody experienced or read about the problems of recurrent infections following FCR in spite of all blood test results being normal?
Having gone through the pain of FCR from August to December last year, I am now in remission with normal blood test results. However, I have suffered from recurrent infections, some more debilitating than others, since March. Sputum tests have identified Haemophilius influenza (spelling might be wrong
Having gone through the pain of FCR from August to December last year, I am now in remission with normal blood test results. However, I have suffered from recurrent infections, some more debilitating than others, since March. Sputum tests have identified Haemophilius influenza (spelling might be wrong
Bisto
CLLSA
in
CLL Support
11 years ago
Chlorambucil may be a more reasonable choice for elderly CLL patients than fludarabine.
Interaction effects of
fludarabine
versus chlorambucil by age group showed that among patients younger than 70 years, PFS and OS was improved with
fludarabine
over chlorambucil , but not in older adults.
Interaction effects of
fludarabine
versus chlorambucil by age group showed that among patients younger than 70 years, PFS and OS was improved with
fludarabine
over chlorambucil , but not in older adults.
AussieNeil
Partner
in
CLL Support
11 years ago
Does anyone have info about fr (fludarabine and ritux) as frontline treatment?
LAinNYC
in
CLL Support
11 years ago
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How to Plan Your Long-Term CLL Treatment Journey - Patient Power - Professor Peter Hillmen
Patient Power’s latest Andrew Schorr video broadcast just hit my inbox How to Plan Your Long-Term CLL Treatment Journey http://www.patientpower.info/video/how-to-plan-your-cll-treatment-journey-long-term/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-EU-2013-005-25&utm_content
Patient Power’s latest Andrew Schorr video broadcast just hit my inbox How to Plan Your Long-Term CLL Treatment Journey http://www.patientpower.info/video/how-to-plan-your-cll-treatment-journey-long-term/?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=CLL-EU-2013-005-25&utm_content
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
Starting treatment FCR on Monday, what should I expect for side effects?
In Canada saying no to chemo is only an option once you have received chemo and failed. Wondering if anyone has words of wisdom to get prepared for chemo, this coming Monday?
In Canada saying no to chemo is only an option once you have received chemo and failed. Wondering if anyone has words of wisdom to get prepared for chemo, this coming Monday?
Musicguy
in
CLL Support
11 years ago
Is this the right time to recieve treatment with Chemo?
My Oncologist has recommended that I begin treatment in July with FCR. My numbers are 30 WBC and I have enlarged lymph nodes The change is my spleen is slightly enlarged. My only symptom is my fungus affected toes keep getting infected, and I have to take antibiotics. My preference is a clinical
My Oncologist has recommended that I begin treatment in July with FCR. My numbers are 30 WBC and I have enlarged lymph nodes The change is my spleen is slightly enlarged. My only symptom is my fungus affected toes keep getting infected, and I have to take antibiotics. My preference is a clinical
Musicguy
in
CLL Support
11 years ago
Finished FCR - precautions until blood counts stabilise?
Husband is just finishing 6th FCR treatment and doing very well, no complications so far. Diagnosed Jan, started treatment immediately as had large nodes, spleen, weight loss, fatigue, WBC climbing fast, at 90 000. Nodes and spleen normal so far, counts all good, one more round of treatment. What
Husband is just finishing 6th FCR treatment and doing very well, no complications so far. Diagnosed Jan, started treatment immediately as had large nodes, spleen, weight loss, fatigue, WBC climbing fast, at 90 000. Nodes and spleen normal so far, counts all good, one more round of treatment. What
mklukas
in
CLL Support
11 years ago
Genmab Announces Top-Line Phase II Results for Ofatumumab Combined with Bendamustine in Untreated and Relapsed CLL
It is approved for use in
fludarabine
refractory CLL, in the US and EU
It is approved for use in
fludarabine
refractory CLL, in the US and EU
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Post treatment check ups
I am interested to know what tests people get when they have checkups after FCR treatment? So, for my first checkup, three months after treatment i had CT scan, blood tests and bone marrow biopsy. I believe next checkup in June i'll only have blood test. Blood tests i have report 15 different
I am interested to know what tests people get when they have checkups after FCR treatment? So, for my first checkup, three months after treatment i had CT scan, blood tests and bone marrow biopsy. I believe next checkup in June i'll only have blood test. Blood tests i have report 15 different
Oleboyredw-uk
in
CLL Support
11 years ago
I am due a CT scan shortly after 6 rounds of FCR. My response was good and blood is ok.
Considering a CT scan is equivalent to 400 X Rays would it make more sense to leave it for further down the line?
Considering a CT scan is equivalent to 400 X Rays would it make more sense to leave it for further down the line?
keepfit123
in
CLL Support
11 years ago
Any experience with Chinese or Alternative therapy (Green tea EGCG) for CLL/SLL results
CLL/SLL found during prostate cancer surgery at Jan 2009 Now facing therapy because increased lymph size and WBC 17300 and decrease of HGB 11.3 +PLT=84000 ZAP70+ & CD38 FISH 13q -55% & 11q =35% No night sweating or fever Was recommended for light FCR or from other MD Bendamustine
CLL/SLL found during prostate cancer surgery at Jan 2009 Now facing therapy because increased lymph size and WBC 17300 and decrease of HGB 11.3 +PLT=84000 ZAP70+ & CD38 FISH 13q -55% & 11q =35% No night sweating or fever Was recommended for light FCR or from other MD Bendamustine
jacobbarnea
in
CLL Support
11 years ago
Human carcinogens to treat CLL?
http://ntp.niehs.nih.gov/ntp/roc/twelfth/profiles/Cyclophosphamide.pdf http://ntp.niehs.nih.gov/ntp/roc/twelfth/profiles/Chlorambucil.pdf Even
Fludarabine
...has carcinogenic potential....
http://ntp.niehs.nih.gov/ntp/roc/twelfth/profiles/Cyclophosphamide.pdf http://ntp.niehs.nih.gov/ntp/roc/twelfth/profiles/Chlorambucil.pdf Even
Fludarabine
...has carcinogenic potential....
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
I had a pre chemo blood check ahead of cycle 5 of FCR (F and C at half dose) All results o,k except WBC 1.1 , ALC 0.22, ANC 0.17
Treatment was put off for a week. Any comments and advice please ? Cheers, keepfit 123
Treatment was put off for a week. Any comments and advice please ? Cheers, keepfit 123
keepfit123
in
CLL Support
11 years ago
Start of my journey on FCR.
Day 2 of treatment (
Fludarabine
) arrived around 8:30am and was back home around 11:30am. Day 3 (Cyclophosphamide) again arrived around 8:30am and was back home around 12:00. For 2 or 3 days after the final treatment I felt very tired and kind of strange, all most like the worst hangover ever.
Day 2 of treatment (
Fludarabine
) arrived around 8:30am and was back home around 11:30am. Day 3 (Cyclophosphamide) again arrived around 8:30am and was back home around 12:00. For 2 or 3 days after the final treatment I felt very tired and kind of strange, all most like the worst hangover ever.
davey57
in
CLL Support
11 years ago
Anyone out there experienced problems with their sodium levels while on FCR? Anyone stopped after 2 courses, how has their prognosis been?
I started FCR in March this year and have just had my second treatment. I didn't react too well to the first treatment - only half the Rituximab was given, I was too unwell on day two to continue. I was shaking, experiencing tingling in hands, weakness, vomiting violently and have uncontrollable diarohhea
I started FCR in March this year and have just had my second treatment. I didn't react too well to the first treatment - only half the Rituximab was given, I was too unwell on day two to continue. I was shaking, experiencing tingling in hands, weakness, vomiting violently and have uncontrollable diarohhea
jules33x
in
CLL Support
11 years ago
Chemo brain research shows promise of finding answers - and some help
While this article is not specific to CLL, many of us do experience what is colloquially termed "Chemo Brain" after chemotherapy, a reduced ability to remember and reason. The article covers some promising research that could explain why this distressing symptom may occur and which will hopefully lead
While this article is not specific to CLL, many of us do experience what is colloquially termed "Chemo Brain" after chemotherapy, a reduced ability to remember and reason. The article covers some promising research that could explain why this distressing symptom may occur and which will hopefully lead
AussieNeil
Partner
in
CLL Support
11 years ago
Richter's in a Nut Shell
Development of rituximab (Rituxan)-containing intensive chemotherapy regimens and chemo-immunotherapy regimens (eg, R-HyperCVAD [rituximab plus hyperfractionated cyclophosphamide, doxorubicin, vincristine, and dexamethasone] or OFAR [oxaliplatin (Eloxatin),
fludarabine
, and ara-C]) have improved response
Development of rituximab (Rituxan)-containing intensive chemotherapy regimens and chemo-immunotherapy regimens (eg, R-HyperCVAD [rituximab plus hyperfractionated cyclophosphamide, doxorubicin, vincristine, and dexamethasone] or OFAR [oxaliplatin (Eloxatin),
fludarabine
, and ara-C]) have improved response
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
In the Words of Marvin Gaye - What's going on ........??
Just thought I would update myself since the last time I wrote. I finished my FCR in September 2012 and in the October was told "You're in Haematological Remission" ... Brilliant - so I thought until last week. Three weeks ago I became ill with what I thought was a 48 hour diarrheoa episode. 8 days
Just thought I would update myself since the last time I wrote. I finished my FCR in September 2012 and in the October was told "You're in Haematological Remission" ... Brilliant - so I thought until last week. Three weeks ago I became ill with what I thought was a 48 hour diarrheoa episode. 8 days
Nicebaps
in
CLL Support
11 years ago
Any advice about starting FCR?
Following all my tests and lymph node biopsy, I'm starting FCR on 20th March and feeling very nervous. Any advice out there on things that may help body and mind prior and during chemo? Any advice on reassuring an anxious 13 year old daughter and my husband? Jules
Following all my tests and lymph node biopsy, I'm starting FCR on 20th March and feeling very nervous. Any advice out there on things that may help body and mind prior and during chemo? Any advice on reassuring an anxious 13 year old daughter and my husband? Jules
jules33x
in
CLL Support
11 years ago
Treat to Zero? Bone marrow shows zero CLL cells but flow cytometry shows 0.06 residual CLL cells. Doc wants to continue FCR treatments?
irish828
in
CLL Support
11 years ago
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