Search
Search
About
Log in
Join
Experiences with
Fludarabine
Posts
Communities
801 public posts
Filter results
CLL Remission
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
Kmegood
in
CLL Support
5 years ago
CLL Tracker - Patient Data
Age 63. 2002 Oral
Fludarabine
. June 04 and Jan 05 4 weeks of Rituxan. Oct 05/Feb 06 monthly Rituxan and Chlorambucil. July/Dec 08 RFC. June 2012 Bendamustine and Ofatumumab, but changed to Rituxan. 2014 to date IVIG. Jan 2017 Ibrutinib.
Age 63. 2002 Oral
Fludarabine
. June 04 and Jan 05 4 weeks of Rituxan. Oct 05/Feb 06 monthly Rituxan and Chlorambucil. July/Dec 08 RFC. June 2012 Bendamustine and Ofatumumab, but changed to Rituxan. 2014 to date IVIG. Jan 2017 Ibrutinib.
RobertCLL
in
CLL Support
5 years ago
CLL
I was diagnosed with CLL in 2010. In October 2013 I started Chemo FCR finishing in March 2014. I became stable but had some bad side effects like eczema and mouth ulcers and some other issues I was hospitalized 2 times for about a week each time after I finished the chemo. After about one year from the
I was diagnosed with CLL in 2010. In October 2013 I started Chemo FCR finishing in March 2014. I became stable but had some bad side effects like eczema and mouth ulcers and some other issues I was hospitalized 2 times for about a week each time after I finished the chemo. After about one year from the
Kmegood
in
CLL Support
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Has anyone been on the combination therapy of Venetoclax, Ibrutinib and Obinutuzumab?
I was wondering if I could hear from someone who has had the combination of Venetoclax, Ibrutinib and Obinutuzumab (Gazyva). My CLL is completely resistant to Chemo and actually continued to spread while I was on FCR. Basically I have a rare c-myc mutation for CLL that has a poor prognosis. I have
I was wondering if I could hear from someone who has had the combination of Venetoclax, Ibrutinib and Obinutuzumab (Gazyva). My CLL is completely resistant to Chemo and actually continued to spread while I was on FCR. Basically I have a rare c-myc mutation for CLL that has a poor prognosis. I have
Time17
in
CLL Support
5 years ago
Ibrutinib. To take or not?
Hello, I was diagnosed will CLL 9 years ago & immediately put on FCR, after being given 2 red blood transfusions. 3 years later I had one cycle of Bendamustine & Rituximab & after another 3 years another cycle of Bendamustine & Rituximab. My only symptoms are increased white count & lymphocytes which
Hello, I was diagnosed will CLL 9 years ago & immediately put on FCR, after being given 2 red blood transfusions. 3 years later I had one cycle of Bendamustine & Rituximab & after another 3 years another cycle of Bendamustine & Rituximab. My only symptoms are increased white count & lymphocytes which
Benny12
in
CLL Support
5 years ago
Due to start treatment but confused!!!
I am due to start treatment soon and have all the right markers for FCR. Would it be better to go into the Flair trial? This whole chemo thing scares me. If I was chosen for the Ibrutinib and it stopped working would I still be able to have chemo?
I am due to start treatment soon and have all the right markers for FCR. Would it be better to go into the Flair trial? This whole chemo thing scares me. If I was chosen for the Ibrutinib and it stopped working would I still be able to have chemo?
Racing1961
in
CLL Support
5 years ago
Aching muscles
Hi guys can anyone help or at least let me know we are not alone with this My husband completed 6 months of FCR chemo FOR CLL finishing last November. Treatment was successful however he now complains on aching joints and muscles especially his shoulders. Is or has anyone else experienced this and
Hi guys can anyone help or at least let me know we are not alone with this My husband completed 6 months of FCR chemo FOR CLL finishing last November. Treatment was successful however he now complains on aching joints and muscles especially his shoulders. Is or has anyone else experienced this and
Sailormoon11
in
CLL Support
5 years ago
New to this community - CLL diagnosis Feb 2018
I was diagnosed with CLL in February 2018, following a period of feeling very tired, low Hb, shortness of breath and night sweats. After numerous blood tests, CT scan, gastroscopy and colonoscopy (to rule out any bleeding) I was given my diagnosis and told that I needed chemo treatment, due to symptoms
I was diagnosed with CLL in February 2018, following a period of feeling very tired, low Hb, shortness of breath and night sweats. After numerous blood tests, CT scan, gastroscopy and colonoscopy (to rule out any bleeding) I was given my diagnosis and told that I needed chemo treatment, due to symptoms
Kingfisher20
in
CLL Support
5 years ago
11q deletion, my experience and short story
I just finished reading a post concerning an 11q deletion being mutated or not. I have the 11q deletion, and have had it since first diagnosed in 2009 at age 60. 11q was not a big deal back then, as not as much was known about it 10 years ago. 17p was always the bad marker, and I always dreaded that
I just finished reading a post concerning an 11q deletion being mutated or not. I have the 11q deletion, and have had it since first diagnosed in 2009 at age 60. 11q was not a big deal back then, as not as much was known about it 10 years ago. 17p was always the bad marker, and I always dreaded that
steve5441
in
CLL Support
5 years ago
Antioxidants: good, bad or indifferent...
Resveratrol a stilbenoids, has been looked at in CLL, and seems to have some sinergy with
fludarabine
... [i]Antioxidants and their putative beneficial effects on health have been in the medical news for as long as I can remember. Antioxidants act as ‘free – radical scavengers’.
Resveratrol a stilbenoids, has been looked at in CLL, and seems to have some sinergy with
fludarabine
... [i]Antioxidants and their putative beneficial effects on health have been in the medical news for as long as I can remember. Antioxidants act as ‘free – radical scavengers’.
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Ibrutinib Partial Response
I have been on Ibrutinib a little over a year now Male currently 49 yrs. old my WBC count was as high as 350k now hovering at 85k. I am now on my second oncologist first one was adamant about FCR which I refused since I wanted a chemo free treatement. I have read so much about the new combination Venetoclax
I have been on Ibrutinib a little over a year now Male currently 49 yrs. old my WBC count was as high as 350k now hovering at 85k. I am now on my second oncologist first one was adamant about FCR which I refused since I wanted a chemo free treatement. I have read so much about the new combination Venetoclax
Litevibe
in
CLL Support
5 years ago
What do all these Acronyms mean?
Is there a post that explains all these acronyms you all seem to know? I am having trouble understanding many of the posts because I have no idea what they mean. I am new to this forum and it all sounds like alphabet soup to me. What is ALC ? IhGV? FRC or is it FCR? Clearly there is a lot to learn, but
Is there a post that explains all these acronyms you all seem to know? I am having trouble understanding many of the posts because I have no idea what they mean. I am new to this forum and it all sounds like alphabet soup to me. What is ALC ? IhGV? FRC or is it FCR? Clearly there is a lot to learn, but
t2aa
in
CLL Support
5 years ago
Worried mum
Hi I am fairly new hear and haven’t posted before. But I have read many posts and been really greatful to be amongst people who get it. My daughter has been unwell and has low platelets. I have been told that CLL can be “slightly “ hereditary- and to be honest even the thought of my child going through
Hi I am fairly new hear and haven’t posted before. But I have read many posts and been really greatful to be amongst people who get it. My daughter has been unwell and has low platelets. I have been told that CLL can be “slightly “ hereditary- and to be honest even the thought of my child going through
Lexi1205
in
CLL Support
5 years ago
What is a non chemotherapy treatment regimen to treat CLl
I have just had my regular 6 week visit to my oncologist/haematologist .My readings have jumped after being stable since last November. ALC 84. Has been at 69 since last April. Dx 2016 Alc 21 has gradually increased . However my eGFR has dropped to 44 reference no is > 59. Creatinine is 139.above the
I have just had my regular 6 week visit to my oncologist/haematologist .My readings have jumped after being stable since last November. ALC 84. Has been at 69 since last April. Dx 2016 Alc 21 has gradually increased . However my eGFR has dropped to 44 reference no is > 59. Creatinine is 139.above the
Joffre1
in
CLL Support
5 years ago
Prof Fegan talks from ASH 2018 | Telomere length can predict the outcome of FCR chemoimmunotherapy in CLL
Here, Christopher Fegan, MB, MD, FRCP, FRCPath, of Cardiff University, Cardiff, UK, introduces telomere length as a key determinant of telomere function, before presenting exciting data that suggests telomere length is a powerful predictor of outcome following
fludarabine
, cyclophosphamide and rituximab
Here, Christopher Fegan, MB, MD, FRCP, FRCPath, of Cardiff University, Cardiff, UK, introduces telomere length as a key determinant of telomere function, before presenting exciting data that suggests telomere length is a powerful predictor of outcome following
fludarabine
, cyclophosphamide and rituximab
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Question - how many different varieties of antibodies can B-cells make? Hint - it's hypermutation (IGHV mutation) that makes it possible
Answer, 1 quintillion or 1,000,000,000,000,000,000 or 10^18 according to[i] a team led by Drs. Bryan Briney and Dennis R. Burton at Scripps Research examined antibody-producing B cells isolated from blood samples of 10 people between the ages of 18 and 30. ... Additional studies are needed to more accurately
Answer, 1 quintillion or 1,000,000,000,000,000,000 or 10^18 according to[i] a team led by Drs. Bryan Briney and Dennis R. Burton at Scripps Research examined antibody-producing B cells isolated from blood samples of 10 people between the ages of 18 and 30. ... Additional studies are needed to more accurately
AussieNeil
Partner
in
CLL Support
5 years ago
Chemo-Free Treatment Best Option for CLL Patients Under 70
Results of the phase III ECOG trial found that the combination of ibrutinib (Imbruvica) plus rituximab (Rituxan) came out superior to the chemotherapy and immunotherapy (chemoimmunotherapy) grouping of
fludarabine
, cyclophosphamide, and rituximab, known as FCR.
Results of the phase III ECOG trial found that the combination of ibrutinib (Imbruvica) plus rituximab (Rituxan) came out superior to the chemotherapy and immunotherapy (chemoimmunotherapy) grouping of
fludarabine
, cyclophosphamide, and rituximab, known as FCR.
GlennSabin
in
CLL Support
6 years ago
Chemo-Free Treatment Best Option for CLL Patients Under 70
Results of the phase III ECOG trial found that the combination of ibrutinib (Imbruvica) plus rituximab (Rituxan) came out superior to the chemotherapy and immunotherapy (chemoimmunotherapy) grouping of
fludarabine
, cyclophosphamide, and rituximab, known as FCR.
Results of the phase III ECOG trial found that the combination of ibrutinib (Imbruvica) plus rituximab (Rituxan) came out superior to the chemotherapy and immunotherapy (chemoimmunotherapy) grouping of
fludarabine
, cyclophosphamide, and rituximab, known as FCR.
GlennSabin
in
CLL America Support
6 years ago
Please ask your friends and famly to give blood this holiday season
https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2141.2010.08444.x Previous posts on HU... https://healthunlocked.com/cllsupport/posts/717532/had-
fludarabine
-you-can-only-have-irradiated-blood...for-life. https://healthunlocked.com/cllsupport/posts/628770/do-you-know-about-
fludarabine
-and-the-lifelong-need-for-irradiated-blood
https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2141.2010.08444.x Previous posts on HU... https://healthunlocked.com/cllsupport/posts/717532/had-
fludarabine
-you-can-only-have-irradiated-blood...for-life. https://healthunlocked.com/cllsupport/posts/628770/do-you-know-about-
fludarabine
-and-the-lifelong-need-for-irradiated-blood
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Chemo Finished
At long last my final cycle of FCR has been completed, and looking back on the last six months it has been a pretty eventful journey, but I will say to all of you that are about to begin FCR treatment and those already mid treatment I do believe it has been a journey worth taking. The low points passing
At long last my final cycle of FCR has been completed, and looking back on the last six months it has been a pretty eventful journey, but I will say to all of you that are about to begin FCR treatment and those already mid treatment I do believe it has been a journey worth taking. The low points passing
dandelup
in
CLL Support
5 years ago
1
...
12
13
14
...
41
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
CLL Support
777 results
CLL America Support
7 results
Leukaemia Support
6 results
View top 10 communities
Sort by
Most Relevant
Newest