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Flolan
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Unexplained rash after 2week flolan infusion
How come i picked up chicken pox while on antibiotics & a
flolan
infusion. The rash is even in my scalp. I am going to see my gp 2mro. I have an ENT appointment 2mro and a Bulimimab infusion on Tuesday.
How come i picked up chicken pox while on antibiotics & a
flolan
infusion. The rash is even in my scalp. I am going to see my gp 2mro. I have an ENT appointment 2mro and a Bulimimab infusion on Tuesday.
ijeasike
in
LUPUS UK
6 years ago
Update to my treatment & A question
Recently switched Treatment center to A small Huntsman affiliated clinic in Rexburg Idaho. The first thing they did was to order an Auxuman Scan and the results were so good they stopped my ADT2 treatments to try & help my QOL and energy level. The statement from the scan read “mildly increased metabolic
Recently switched Treatment center to A small Huntsman affiliated clinic in Rexburg Idaho. The first thing they did was to order an Auxuman Scan and the results were so good they stopped my ADT2 treatments to try & help my QOL and energy level. The statement from the scan read “mildly increased metabolic
Billash
in
Advanced Prostate Cancer
6 years ago
Flomax and orthostatic hypotension
I have been on Lupron now for 4 months and Just completed my five treatment SBRT radiation. I started Flomax a little more than a week ago and stopped three days ago because of the fairly rare but documented side effect of orthostatic hypotension— starting anytime I moved from a prone or seated position
I have been on Lupron now for 4 months and Just completed my five treatment SBRT radiation. I started Flomax a little more than a week ago and stopped three days ago because of the fairly rare but documented side effect of orthostatic hypotension— starting anytime I moved from a prone or seated position
FrankH
in
Prostate Cancer And Gay Men
6 years ago
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Persisting burning sensation and fatigue following LDBT
My husband has now hit the 10 days mark of this low dose brachytherapy. A total of 114 seeds were implanted in his prostate. He initially experienced frequent urinary trips to the bathrooms which were resolved by taking two Flomax a day. Now that his trips to the bathrooms have been greatly reduced,
My husband has now hit the 10 days mark of this low dose brachytherapy. A total of 114 seeds were implanted in his prostate. He initially experienced frequent urinary trips to the bathrooms which were resolved by taking two Flomax a day. Now that his trips to the bathrooms have been greatly reduced,
anthonyq
in
Advanced Prostate Cancer
6 years ago
Frequent urination post Brachytherapy
Hi Everyone, The doctor prescribed my husband 0.4 mg (once a day) flomax to take around bedtime to relax the bladder. However, it does not work. My husband has been taking this for about 10 days now and since the Brachy (last Friday) his urination routine has gotten out of control having to go the restroom
Hi Everyone, The doctor prescribed my husband 0.4 mg (once a day) flomax to take around bedtime to relax the bladder. However, it does not work. My husband has been taking this for about 10 days now and since the Brachy (last Friday) his urination routine has gotten out of control having to go the restroom
anthonyq
in
Advanced Prostate Cancer
6 years ago
Here I go... LDR Brachy seed guys say HEY!
Hi all. Been a few months... Having LDR seed procedure at MSK tomorrow with Dr. Zelefsky. I had another MRI which showed the tumor unchanged from the MRI in October, but evidence of prostatitis, which I could have told them! I wonder if this was from the biopsy? Who knows. Bloodwork and chest Xray fine
Hi all. Been a few months... Having LDR seed procedure at MSK tomorrow with Dr. Zelefsky. I had another MRI which showed the tumor unchanged from the MRI in October, but evidence of prostatitis, which I could have told them! I wonder if this was from the biopsy? Who knows. Bloodwork and chest Xray fine
PianoMan212
in
Prostate Cancer And Gay Men
6 years ago
Stomach, ribs, breast & ear (all in one)
My fingers became very painful, i had diarrhoea, so i contacted my dr who immediately asked me to come into hospital and be admitted for a
flolan
infusion. I already had an appointment to have the infusion at the day unit (SMDU) Manchester.
My fingers became very painful, i had diarrhoea, so i contacted my dr who immediately asked me to come into hospital and be admitted for a
flolan
infusion. I already had an appointment to have the infusion at the day unit (SMDU) Manchester.
ijeasike
in
LUPUS UK
6 years ago
New to all this. Not even sure what to ask.
Hi all, I am 52, just diagnosed in February with AdvancedPC. My PSA shot from 3 to 130 in less than 12 months; Gleason 9. Lymph nodes in pelvic area; negative in bone scan. Started immediately (early March) with Bicalutamide and Lupron shot 2 weeks later. I am taking Bicalutamide and Flomax daily (in
Hi all, I am 52, just diagnosed in February with AdvancedPC. My PSA shot from 3 to 130 in less than 12 months; Gleason 9. Lymph nodes in pelvic area; negative in bone scan. Started immediately (early March) with Bicalutamide and Lupron shot 2 weeks later. I am taking Bicalutamide and Flomax daily (in
chillywilly
in
Advanced Prostate Cancer
6 years ago
Please i need advice
I have been very unwell nearly a month and am waiting patiently for my
flolan
infusion. But am struggling so much with my dry mouth down to my throat is dry, painful and tight. This mean that i have lost my voice. The voice loss can come anything. But lately under my neck is swollen.
I have been very unwell nearly a month and am waiting patiently for my
flolan
infusion. But am struggling so much with my dry mouth down to my throat is dry, painful and tight. This mean that i have lost my voice. The voice loss can come anything. But lately under my neck is swollen.
ijeasike
in
LUPUS UK
6 years ago
Slow recovery from Chemo, Round 4, Session 2
PSA 1124, Age 59, Stage 4, Dx 3-22-16 So after watching my PSA slowly climb from the nadir at 1.45 on 12/19/16, 2017 was a year of steady increases and a bunch of therapies tried, and failed. After my first chemo session of 6 cycles from 7/18/16 thru 10/31/16, along with 3 month Lupron shots and Zometa
PSA 1124, Age 59, Stage 4, Dx 3-22-16 So after watching my PSA slowly climb from the nadir at 1.45 on 12/19/16, 2017 was a year of steady increases and a bunch of therapies tried, and failed. After my first chemo session of 6 cycles from 7/18/16 thru 10/31/16, along with 3 month Lupron shots and Zometa
ontheroad589
in
Advanced Prostate Cancer
6 years ago
Not the best of times
I really want and to get the
flolan
because i am increasingly incapable of helping myself. I dont want to be an inpatient. I have had the worse experiences as inpatient. Most time the nurses (especially those on night duty) have no clue of
flolan
.
I really want and to get the
flolan
because i am increasingly incapable of helping myself. I dont want to be an inpatient. I have had the worse experiences as inpatient. Most time the nurses (especially those on night duty) have no clue of
flolan
.
ijeasike
in
LUPUS UK
6 years ago
Flolan
Hi can anybody help With the
Flolan
treatment I have just had a five day course at the local hospital as a inpatient The Question i have ' is Does anybody have this as a outpatient . Its all pretty new to me . The first year of Crest and Raynaurds.
Hi can anybody help With the
Flolan
treatment I have just had a five day course at the local hospital as a inpatient The Question i have ' is Does anybody have this as a outpatient . Its all pretty new to me . The first year of Crest and Raynaurds.
Psg83
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Worried sick about my PIP mobility rate been taken
Then i went into hospital for a four night
flolan
infusion ( it was a hurrible experience but i will share it in my next post). After i had finished my infusion course ended friday night, my Doctors said that if the last infusion finished i could go home on saturday.
Then i went into hospital for a four night
flolan
infusion ( it was a hurrible experience but i will share it in my next post). After i had finished my infusion course ended friday night, my Doctors said that if the last infusion finished i could go home on saturday.
ijeasike
in
LUPUS UK
7 years ago
Flolan infusion
Has anyone had
flolan
infusion to dilate blood vessels, and if so how effective is this treatment.
Has anyone had
flolan
infusion to dilate blood vessels, and if so how effective is this treatment.
Marthab
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
First post, take it easy on the new guy
Greetings. Diagnosed in March 2016 with S4 PSA 658. Since diagnosis, have been through quarterly Lupron and Zometa treatments, 6 rounds of chemo which ended Halloween 2016 and saw the PSA hit a nadir of 1.59. Since then, it doubled and tripled until it hit 226 in May 2017 - so MO put me on Zytiga/Prednisone
Greetings. Diagnosed in March 2016 with S4 PSA 658. Since diagnosis, have been through quarterly Lupron and Zometa treatments, 6 rounds of chemo which ended Halloween 2016 and saw the PSA hit a nadir of 1.59. Since then, it doubled and tripled until it hit 226 in May 2017 - so MO put me on Zytiga/Prednisone
ontheroad589
in
Advanced Prostate Cancer
7 years ago
SLL 13q deleted and prostrate issues
I'm on w/w for about 15 months. My hemo/oncologist thinks I may not need treatment for a couple of years at least, but...... My nodes are all swollen but have seemed to have stabilized. All my blood work is good. My issue is that I developed urinary retention about 12 months ago and am on flomax to
I'm on w/w for about 15 months. My hemo/oncologist thinks I may not need treatment for a couple of years at least, but...... My nodes are all swollen but have seemed to have stabilized. All my blood work is good. My issue is that I developed urinary retention about 12 months ago and am on flomax to
Awksom
in
CLL Support
7 years ago
WANT TO FEEL WELL AGAIN - WORRIED & PAIN
I shouldn't even be online since I have touch of OCD and remain anxious and distraught and was told by relatives to NOT do any research. 61 y.o just relocate away from family and now in Fla. Medical care quite different down here than up North. But, health issues before I arrived here and urologists
I shouldn't even be online since I have touch of OCD and remain anxious and distraught and was told by relatives to NOT do any research. 61 y.o just relocate away from family and now in Fla. Medical care quite different down here than up North. But, health issues before I arrived here and urologists
rickym1
in
Advanced Prostate Cancer
7 years ago
Progress Stalled , what to do ?
Hi all, DX in oct of 2016, Gleason 9 or 8 in all 8 samples from detailed 3D MRI guided biopsy. Grade of T3b l1 m0 , considered inoperable due to size & seminal vesicle involvement as well as Hydronephrosis in right Kidney. PSA at DX was 7.3, started 50mg Casodex immediately & then Eligard shots. Dec
Hi all, DX in oct of 2016, Gleason 9 or 8 in all 8 samples from detailed 3D MRI guided biopsy. Grade of T3b l1 m0 , considered inoperable due to size & seminal vesicle involvement as well as Hydronephrosis in right Kidney. PSA at DX was 7.3, started 50mg Casodex immediately & then Eligard shots. Dec
Billash
in
Advanced Prostate Cancer
7 years ago
Annoying experience in nhs
I had a
flolan
infusion which i stay for 5nights. This is not the 1st time am going into hospital for this infusion so am a regular in this ward. This last infusion was horrible, the way
flolan
is administered the infusions is very continous.
I had a
flolan
infusion which i stay for 5nights. This is not the 1st time am going into hospital for this infusion so am a regular in this ward. This last infusion was horrible, the way
flolan
is administered the infusions is very continous.
ijeasike
in
LUPUS UK
7 years ago
Iloprost
. & couldn't tolerate Iloprost so I get
Flolan
infusion instead I get it for 6 hours for 5 days & it is much easier to tolerate. I now get it every 3 months for my Raynauds & Scleroderma.
. & couldn't tolerate Iloprost so I get
Flolan
infusion instead I get it for 6 hours for 5 days & it is much easier to tolerate. I now get it every 3 months for my Raynauds & Scleroderma.
Gdonnelly
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
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