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3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
9 months ago
paxlovid and abiraterone
there may already be posts like this, and If there are I’m sorry, I couldn’t find them! my dad is covid positive (first time!). I read on here in the past some of you said that you can’t take paxlovid with abiraterone? He is on that, flomax and lupron. I know it’s better to take paxlovid before it
there may already be posts like this, and If there are I’m sorry, I couldn’t find them! my dad is covid positive (first time!). I read on here in the past some of you said that you can’t take paxlovid with abiraterone? He is on that, flomax and lupron. I know it’s better to take paxlovid before it
Ptripp2
in
Advanced Prostate Cancer
9 months ago
Low Dose Seed Brachytherapy Side Effects
I just finished low dose seed brachytherapy six days ago. Post op I’ve had severe urinary retention issues mainly in the middle of the night, usually for just a few hours. Not bad enough to go to the ER, but a few times I wondered if I might have to. For some reason, daytime is not so bad. I was previously
I just finished low dose seed brachytherapy six days ago. Post op I’ve had severe urinary retention issues mainly in the middle of the night, usually for just a few hours. Not bad enough to go to the ER, but a few times I wondered if I might have to. For some reason, daytime is not so bad. I was previously
electronics-guy
in
Prostate Cancer Network
9 months ago
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NOCTURIA POST RT 5-6 x Night, Orgovyx Finished TX one month ago -still having SE's.
Finished 20 TX IMRT & 4 months Orgovyzx I finished RT 3 months ago finished -4 mos of Orgovyx one month ago. RT-Now having Nocturia -getting up 5 x a night -taking 2 flomax a day -need tips how to reduce number of x going? a. how long does it generally take for the radiation inflamed uretha
Finished 20 TX IMRT & 4 months Orgovyzx I finished RT 3 months ago finished -4 mos of Orgovyx one month ago. RT-Now having Nocturia -getting up 5 x a night -taking 2 flomax a day -need tips how to reduce number of x going? a. how long does it generally take for the radiation inflamed uretha
JWS13
in
Advanced Prostate Cancer
10 months ago
RT, keep thy bladder full.
OK Middle of week 5 just finished 22 of 33. Having a hard time holding my bladder back for RT. I have no prostate, its just the bladder is telling me to go, but Im not completely full. So I put up with the urgency, and luckily there's a bathroom off the treatment room. No draining issue!! RT has
OK Middle of week 5 just finished 22 of 33. Having a hard time holding my bladder back for RT. I have no prostate, its just the bladder is telling me to go, but Im not completely full. So I put up with the urgency, and luckily there's a bathroom off the treatment room. No draining issue!! RT has
Hidden
in
Advanced Prostate Cancer
11 months ago
Has anyone had flolan infusion for raynauds being referred as no other medication worked
being referred as no other medication or iloprst infusion worked. Norther Ireland based not sure if it's day patient is it like iloprst 8hr drip over how many days? Wasn't given much info .Any info would be great, dread it to be honest, also suggested I go on steroid tablet not keen either, mixed connective
being referred as no other medication or iloprst infusion worked. Norther Ireland based not sure if it's day patient is it like iloprst 8hr drip over how many days? Wasn't given much info .Any info would be great, dread it to be honest, also suggested I go on steroid tablet not keen either, mixed connective
Deby177
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Infection or Cancer?
Hi everyone - Thanks for reading this. So grateful for the ability to share my story and learn from others. 57, with history of kidney stone disease and diagnosed BPH with very mild symptoms. [u]Timetable[/u] 2/22 PSA is 1.23 a rise from .9 a year earlier but 10 years of PSA tests before that
Hi everyone - Thanks for reading this. So grateful for the ability to share my story and learn from others. 57, with history of kidney stone disease and diagnosed BPH with very mild symptoms. [u]Timetable[/u] 2/22 PSA is 1.23 a rise from .9 a year earlier but 10 years of PSA tests before that
Thomas3857
in
Prostate Cancer Network
11 months ago
SBRT - 1 year after
TO ALL: I completed SBRT at NYU in NYC ("cyberknife") last May under the care of RO Dr Jonothan Haas. Overall, )beyond the testing, 2months of ADT and gold marker implants), not a terrible experience. Now, a year later, i would like to report: THE GOOD. my PSA is down to .3 and my T cell count
TO ALL: I completed SBRT at NYU in NYC ("cyberknife") last May under the care of RO Dr Jonothan Haas. Overall, )beyond the testing, 2months of ADT and gold marker implants), not a terrible experience. Now, a year later, i would like to report: THE GOOD. my PSA is down to .3 and my T cell count
chrisNYC
in
Prostate Cancer Network
11 months ago
urolift
had radiation in 1989. In the 2010s I had a urolift installed and regret every since. Worked maybe foe a month. Still on flomax. Every time I get CT o r MRi it creates artifacts and interferes with the test. I would not recommend it to anyone. I was first with radiation treatments to receive from my
had radiation in 1989. In the 2010s I had a urolift installed and regret every since. Worked maybe foe a month. Still on flomax. Every time I get CT o r MRi it creates artifacts and interferes with the test. I would not recommend it to anyone. I was first with radiation treatments to receive from my
Laun
in
Advanced Prostate Cancer
11 months ago
Finished IMRT 20 sessions 3 months Ago kishan & finished4 months Orgovyx UCLA.. Still getting up 5-6 times a night Nocturia..What to do?
Imrt 20 sessions - Finished 3months ago (kishan-ucla)- Orgovyx 4 months finish tomorrow- Still urinating 5-6 x per night. Still taking flomax and cialis 5 mg every day but no relief. Can I expect to get to 2 urination per night as the "burnt" prostate heals and SHRINKS! 4-3 Gleason 7- Psma -no
Imrt 20 sessions - Finished 3months ago (kishan-ucla)- Orgovyx 4 months finish tomorrow- Still urinating 5-6 x per night. Still taking flomax and cialis 5 mg every day but no relief. Can I expect to get to 2 urination per night as the "burnt" prostate heals and SHRINKS! 4-3 Gleason 7- Psma -no
JWS13
in
Prostate Cancer Network
11 months ago
Has anyone chosen SBRT despite preexisting urethritis?
Hello everyone, Thank you all for participating here The information so far has been invaluable. [I’m 58 and was diagnosed 5 weeks ago with Gleason 4+3, (9 of 16 cores positive, only two had 4+3. A few 3+4’s and the rest were either 3+3 or negative). Perineural invasion on both sides. Decipher
Hello everyone, Thank you all for participating here The information so far has been invaluable. [I’m 58 and was diagnosed 5 weeks ago with Gleason 4+3, (9 of 16 cores positive, only two had 4+3. A few 3+4’s and the rest were either 3+3 or negative). Perineural invasion on both sides. Decipher
SongofFred
in
Prostate Cancer Network
1 year ago
TURP Prior to Radiation: Opinions?
63yo, Gleason 4+4, PSA 0.055, 2 measurable mets in pelvic lymph nodes-right iliac chain I finished a round of 6 chemo treatments in mid-February. I'm currently on Lupron and Nubeqa. My last PSA was 0.055. I decided to take a break before I start radiation in August or September to do some travel and
63yo, Gleason 4+4, PSA 0.055, 2 measurable mets in pelvic lymph nodes-right iliac chain I finished a round of 6 chemo treatments in mid-February. I'm currently on Lupron and Nubeqa. My last PSA was 0.055. I decided to take a break before I start radiation in August or September to do some travel and
Peeffervescence
in
Advanced Prostate Cancer
1 year ago
Low blood pressure and pulse -Orgovyx and flomax -AND CIALIS?
I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per day to keep the muscle strong. I am now starting to have major fatigue from the ADT and Low BP 96/49 , and low pulse 48. (having headaches, and
I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per day to keep the muscle strong. I am now starting to have major fatigue from the ADT and Low BP 96/49 , and low pulse 48. (having headaches, and
JWS13
in
Prostate Cancer Network
1 year ago
Prostate Humor (because sometimes you just need a laugh
1. I signed up for ADT after the Urologist told me that the treatment would leave me impotent. I mean, who doesn’t want to be famous and admired? 2. My MO told me that my prostate cancer treatment might ruin me financially. I’m not sure what he was talking about. So far I’m saving bank on petroleum
1. I signed up for ADT after the Urologist told me that the treatment would leave me impotent. I mean, who doesn’t want to be famous and admired? 2. My MO told me that my prostate cancer treatment might ruin me financially. I’m not sure what he was talking about. So far I’m saving bank on petroleum
Carlosbach
in
Advanced Prostate Cancer
1 year ago
Input Needed.
Hi, Looking for some communal input from this knowledgeable forum. First, some bullet point history to help fine tune the responses: • I was diagnosed with advanced stage, mPC in mid-2020. I have a rare type of PC that does not exhibit elevated PSA. It’s very aggressive and difficult to treat. My PSA
Hi, Looking for some communal input from this knowledgeable forum. First, some bullet point history to help fine tune the responses: • I was diagnosed with advanced stage, mPC in mid-2020. I have a rare type of PC that does not exhibit elevated PSA. It’s very aggressive and difficult to treat. My PSA
Blue6199
in
Advanced Prostate Cancer
1 year ago
Having real tought time with the "Comfortable Bladder Requirement of IMRT (same as SBRT -bladder wise)
I am having a real tough time with the "comfortable bladder" thing with IMRT (same as SBRT w regards the bladder). I have very small bladder and they want it 90% full (they'll take 75-80) . I start drinking 45 minutes before the appointment and some days it's fine but some days it's only 50% and I have
I am having a real tough time with the "comfortable bladder" thing with IMRT (same as SBRT w regards the bladder). I have very small bladder and they want it 90% full (they'll take 75-80) . I start drinking 45 minutes before the appointment and some days it's fine but some days it's only 50% and I have
JWS13
in
Prostate Cancer Network
1 year ago
SETBACK
Indwelling catheter placed again after 8 months of freedom( see bio)Acute urinary retention came on fast, despite double dose flomax & 5mg proscar. Is cancer progressing? don't know yet. Given antibiotics, remove catheter in 2 weeks to see if I can void(fat chance)Onc. suggest NOT to take PSA test so
Indwelling catheter placed again after 8 months of freedom( see bio)Acute urinary retention came on fast, despite double dose flomax & 5mg proscar. Is cancer progressing? don't know yet. Given antibiotics, remove catheter in 2 weeks to see if I can void(fat chance)Onc. suggest NOT to take PSA test so
wolverine11
in
Advanced Prostate Cancer
1 year ago
REZUM?
Hello and thank you for all of your help in advance! I am 63 diagnosed 5 years ago with G6 score and have been on active surveillance for 5 years , PSA has gone from 5.75 and has gone up to 12.78 (a couple of points each year ... doctor is scheduling a biopsy (not a blind biopsy) to see if anything
Hello and thank you for all of your help in advance! I am 63 diagnosed 5 years ago with G6 score and have been on active surveillance for 5 years , PSA has gone from 5.75 and has gone up to 12.78 (a couple of points each year ... doctor is scheduling a biopsy (not a blind biopsy) to see if anything
jbsnv
in
Active Surveillance - Prostate Cancer
1 year ago
PSA has gone up and Rezum
Hello and thank you for all of your help in advance! I am 63 diagnosed 5 years ago with G6 score and have been on active surveillance for 5 years , PSA has gone from 5.75 and has gone up to 12.78 (a couple of points each year ... doctor is scheduling a biopsy (not a blind biopsy) to see if anything
Hello and thank you for all of your help in advance! I am 63 diagnosed 5 years ago with G6 score and have been on active surveillance for 5 years , PSA has gone from 5.75 and has gone up to 12.78 (a couple of points each year ... doctor is scheduling a biopsy (not a blind biopsy) to see if anything
jbsnv
in
Active Surveillance - Prostate Cancer
1 year ago
Flomax and Me
How do you know when you can go off of flomax? Long term side effects? I'm 3 months out from my radiation therapy at Kaiser. My flomax script was over at 6 weeks post radiation! Then, my urination was very painful, demanding and frequent. My doctor had no comment other than this was a result of the
How do you know when you can go off of flomax? Long term side effects? I'm 3 months out from my radiation therapy at Kaiser. My flomax script was over at 6 weeks post radiation! Then, my urination was very painful, demanding and frequent. My doctor had no comment other than this was a result of the
trregan
in
Prostate Cancer And Gay Men
2 years ago
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