Indwelling catheter placed again after 8 months of freedom( see bio)Acute urinary retention came on fast, despite double dose flomax & 5mg proscar. Is cancer progressing? don't know yet.
Given antibiotics, remove catheter in 2 weeks to see if I can void(fat chance)Onc. suggest NOT to take PSA test so soon suggesting results would be skewed from placing & removing catheter. Early on Tall Allen suggested TURP I had a urolift procedure 2 years ago which failed. In past had camera in my uretha was clear. I am hoping TURP is solution. Also had other test in past with no results because could not pee. Been on Lupron & Abiraterone about 2 years. Thanks for any suggestions or feedback
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wolverine11
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While I am new to urinary issues, I have a comment based off observations of my father. 30 years ago my dad became a paraplegic from his waist down. He suffered from a broken back after being hit by a car. One of the many issues he suffered from was incomplete bladder emptying. For many years he used self catherization. However, he would leave behind large residual urine volumes. His doctors tried experimental botulinum injections into his urinary sphincter muscle to relax the muscle. It was successful but everything has trade offs. Thereinafter, he used a condemn attached to a leg bag. He lived the remainder of his life with no further urinary issues.
Thanks for your reply. Sorry about your Dads accident. I believe your dad's cause of urinary retention is totally different from mine. However, self Catherization is a possibility
Thanks for your reply. Almost finished taking Ciprofloxacin. No radiation or surgery in past De novo Lupron & abiraterone.That is my thinking, is cancer blocking urethra.Thanks, I'll ask if FDG pet scan can be used, determine infection or cancer growth. My Doctors? oncologist City of Hope Torrance 3 month visits, I need to ask her more questions.Urologist ? I need more answers from...... Dana Farber? Thanks again
My RO ordered one and my SUV max value was 14 and I had cancer in 95% of my prostate gland.
I personally would definitely ask for the PSMA PET scan from the radiation oncologist (RO) and irradiate with SBRT MRI Linac if they find anything visible what could interfere with the urination.
Took last pill today was 2 a day Ciprofloxacin 500 mg for 5 days. Do not have RO. But I could ask my oncologist, she did say when my PSA goes up ( it has miniscule) 2 months 0.10 to 0.12 or had symptoms she would order PSMA pet scan. I'll call tomorrow. So did you have urinary retention?
If I would have your situation I would go to the RO specialized in SBRT and he could order the PSMA PET scan and decided what to do himself.
ROs know more than MO or the urologists. Why wouldn't you just consult one?
It is the best for you as a patient to have a team.
Your CT and nuclear medicine bone scan are a minimum.
It is really up to you, but don't expect that your MO will have a knowledge of an RO especially in radiation oncology. It really doesn't hurt to get opinion from RO if you have problems with urination and the only scan was a CT scan and a one week of antibiotics.
My second TURP (Aug 2022) was due to urine retention caused by cancer blocking the urethra and bladder neck. Required 3 weeks in Foley combined before and after.
My PSA had never been over 1, but was at 9 just before the TURP, and the Uro noted “catheter in place) on that test. I think the elevated PSA was from the trauma of cystoscopy, failed attempts by me and the nurse to use a coude, and the two weeks in the Foley.
Urinary symptoms aren’t good. Frequent urination and urgency still. Very slight occasional inconvenience, like just a few drops. Multiple times per night walking up to pee
I have just figured out in the last few weeks that I can make things a bit better by peeing twice every time I have to pee. Sounds weird, but what I do is pee until it stops and I no longer have the urge. Then if I wait a couple of minutes or walk around a bit, I can start a second stream that voids as much or even more than the first attempt even though there was no urge to urinate.
I’ve gone from waking every 60-90 minutes at night to every 3 hours or so.
I’m tempted to ask about a drug that treats overactive bladder.
Also hoping that when we can finally debulk the prostate it might help.
This is also heppening to me:"I have just figured out in the last few weeks that I can make things a bit better by peeing twice every time I have to pee. Sounds weird, but what I do is pee until it stops and I no longer have the urge. Then if I wait a couple of minutes or walk around a bit, I can start a second stream that voids as much or even more than the first attempt even though there was no urge to urinate."
Do you know what is behind that? Why is it possible to do it just couple of minutes later but not in one go? I would like to understand the reason behind that. Why it is like that?
I had a TURP back in august 4 months ago. Gleason 8, PSA 106, I had just received Lupron shot 10 days before that. No RT as of yet. 3 months in a catheter before that. 1 day in the hospital. I have been peeing like a 20-year-old since. I hope it holds up. Gleason 9 after that.
Thank You, Now that's encouraging. Since you had a catheter, does that mean you could not pee at all? Either way, appreciate. I hope to get similar results
That is correct, I could not pee at all. My kidneys were shutting down due to not peeing. Catheter was out the next day after surgery. It was hard the first 2 days peeing. bleeding about 3 weeks. no pain after 2 days. I peed like I did 30 years ago.
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