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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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What kind of research can we trust?
(Meanwhile we live in hope that for those of us that needed
FCR
treatment, that chemotherapy regime may indeed extend our lives and for a few with the right genetics, even cure us of CLL. Plus there are all the new non chemo treatments that we have a high expectation will be game changers.)
(Meanwhile we live in hope that for those of us that needed
FCR
treatment, that chemotherapy regime may indeed extend our lives and for a few with the right genetics, even cure us of CLL. Plus there are all the new non chemo treatments that we have a high expectation will be game changers.)
AussieNeil
Administrator
in
CLL Support
10 years ago
Video, Dr George Follows discusses CLL treatment choices and side effects
Q1) many patients have heard about potential treatments such as “
FCR
” and “BR”, how do you choose which therapy they should receive? Q2) the side effects of CLL treatments can be significant, are CLL patient’s monitored carefully? http://www.youtube.com/watch?v=oiQrBTbckNM
Q1) many patients have heard about potential treatments such as “
FCR
” and “BR”, how do you choose which therapy they should receive? Q2) the side effects of CLL treatments can be significant, are CLL patient’s monitored carefully? http://www.youtube.com/watch?v=oiQrBTbckNM
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Generic Drugs
I have been taking the same drugs for a few years. I take Stalevo, Ropinerole, Trihexyphenidyl and half Sinemet CR. These have worked well for me. However, my GP has advised that they intend to change my Ropinirole tablet with a tablet called Repinex XL This appears to be the generic trade name and
I have been taking the same drugs for a few years. I take Stalevo, Ropinerole, Trihexyphenidyl and half Sinemet CR. These have worked well for me. However, my GP has advised that they intend to change my Ropinirole tablet with a tablet called Repinex XL This appears to be the generic trade name and
Court
in
Cure Parkinson's
10 years ago
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UK 'OK to ask' patient empowerment campaign encourages patients to take part in research & FLAIR 1st line CLL trial commences + others.
FLAIR: Front-Line therapy in CLL: Assessment of Ibrutinib + Rituximab to asses whether IR is superior to
FCR
in terms of progression-free survival Participants will be randomised on a 1:1 basis to receive either
FCR
or Ibrutinib+R.
FLAIR: Front-Line therapy in CLL: Assessment of Ibrutinib + Rituximab to asses whether IR is superior to
FCR
in terms of progression-free survival Participants will be randomised on a 1:1 basis to receive either
FCR
or Ibrutinib+R.
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Sore mouth and tongue
Diagnosed CLL 2009 then needed the full chemo
FCR
2010. Hospitalised twice afterwards with a chest fungal infection but since then,3 years + down the line, my bloods have been satisfactory.My Haematologist even put me on 6 month visits this April !
Diagnosed CLL 2009 then needed the full chemo
FCR
2010. Hospitalised twice afterwards with a chest fungal infection but since then,3 years + down the line, my bloods have been satisfactory.My Haematologist even put me on 6 month visits this April !
defconSkipton
in
CLL Support
10 years ago
CLL specialists ?
My
FCR
treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford.
My
FCR
treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending on what my haematologist has to say in due course, I may request another opinion with a CLL specialist. I am in Hereford.
Haileybury
in
CLL Support
10 years ago
CLL Medical Alert Tags
I think those on
FCR
wear bracelets with warnings of no-live vaccines etc. In my case I'm still (just) on "Watch and Wait" / "Active Management and Care" (however best that is put), so I'm not sure what if anything I'd put on the card, except perhaps "CLL".
I think those on
FCR
wear bracelets with warnings of no-live vaccines etc. In my case I'm still (just) on "Watch and Wait" / "Active Management and Care" (however best that is put), so I'm not sure what if anything I'd put on the card, except perhaps "CLL".
Ernest2
in
CLL Support
10 years ago
Ibrutinib as a monotherapy
I have CLL/SLL and after 6 cycles of
FCR
(which gave me just over a year's remission) I'm now two weeks into starting on Ibrutinib as a mono therapy. So far no side effects.
I have CLL/SLL and after 6 cycles of
FCR
(which gave me just over a year's remission) I'm now two weeks into starting on Ibrutinib as a mono therapy. So far no side effects.
SycamoreN
in
CLL Support
10 years ago
Fluid in my lungs and heart slightly enlarged
Could this have been caused by the
FCR
drugs or is it something completely separate. I am assuming my chemo will be paused until the heart problem is controlled. I am now on Furosemide diuretic pills. Has anyone had experience of this with
FCR
? David
Could this have been caused by the
FCR
drugs or is it something completely separate. I am assuming my chemo will be paused until the heart problem is controlled. I am now on Furosemide diuretic pills. Has anyone had experience of this with
FCR
? David
Haileybury
in
CLL Support
10 years ago
Low neutrophils
I have been prescribed another 8, G-CSF twice weekly and was told that if these didn't work then my next step would be
FCR
. I have remained stable for two years and feel that
FCR
is an extreme step to take when other options may be available to correct my neutrophils.
I have been prescribed another 8, G-CSF twice weekly and was told that if these didn't work then my next step would be
FCR
. I have remained stable for two years and feel that
FCR
is an extreme step to take when other options may be available to correct my neutrophils.
Hidden
in
CLL Support
10 years ago
Help, FCR OR BR?
My oncologist has telephoned me today giving me an option of either
FCR
or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now.
My oncologist has telephoned me today giving me an option of either
FCR
or BR. As I am 11q del I thought I had only one option! She told me that the FLAIR trial will be starting in 6-8 weeks time but as my WBC is at 387 and my Hg is 95 she would like me to start treatment now.
flutterbye
in
CLL Support
10 years ago
That's it then FCR here we come
11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs 94.39 Been waiting for the call to the cocktail bar and got it today after concern about Nuets fortunately no problems with genome results so should have no problem with
FCR
11) HCT 0.34 MCV 101.3 MCH 32.9 MCHC 325 RDW 15.4 PLT 15.4 Neut percent 0.9 Lymph percent 79.6 Absolute Nuets 1.02 Absolute Lmphs 94.39 Been waiting for the call to the cocktail bar and got it today after concern about Nuets fortunately no problems with genome results so should have no problem with
FCR
Cammie
in
CLL Support
10 years ago
Got a question about test results for Susan Le Clair?
So take a shot, and send your questions for Susan to: questions@patientpower.info Best Wishes, Andrew Schorr dx'ed 4/96
FCR
in 2000 still in remission.[/i] Neil
So take a shot, and send your questions for Susan to: questions@patientpower.info Best Wishes, Andrew Schorr dx'ed 4/96
FCR
in 2000 still in remission.[/i] Neil
AussieNeil
Administrator
in
CLL Support
10 years ago
Curcumin and CoQ10
My husband has PSP and is taking the drugs sinemet CR, Apo-levocarb, gabapentin, tyrazodone and magnesium glycinate. Is it safe to take curcumin and CoQ10 along with these drugs?
My husband has PSP and is taking the drugs sinemet CR, Apo-levocarb, gabapentin, tyrazodone and magnesium glycinate. Is it safe to take curcumin and CoQ10 along with these drugs?
Hidden
in
PSP Association
10 years ago
LATE ONSET NEUTROPENIA MAY BE A COMPLICATION OF FCR (or rituximab, obinutuzumab or other anti-CD20 monoclonal antibody infusions - Admin)
Here's another EHA abstract on the under-recognized issue of late-onset neutropenia as a result of
FCR
. I thought that this might be interesting to those of us on this site that have undergone or may undergo
FCR
. See the graph above.
Here's another EHA abstract on the under-recognized issue of late-onset neutropenia as a result of
FCR
. I thought that this might be interesting to those of us on this site that have undergone or may undergo
FCR
. See the graph above.
zevkalman
in
CLL Support
10 years ago
Here's my experience of Day 1 of my 4th FCR Treatment. Think W&W is challenging? Let me tell you the time I spent Waiting.....
FCR
No.4 -Treatment Day 1.
FCR
No.4 -Treatment Day 1.
Bribin
in
CLL Support
10 years ago
How do I go about getting a second expert opinion without upsetting my haematologist consultant?
I have previously posted on being concerned about still having lumps in my neck during
FCR
treatment. I have now had 5 of the 6 cycles of treatment and the last treatment at best only reduced the lumps marginally.
I have previously posted on being concerned about still having lumps in my neck during
FCR
treatment. I have now had 5 of the 6 cycles of treatment and the last treatment at best only reduced the lumps marginally.
yorkie19
in
CLL Support
10 years ago
Husband's anemia (PRCA) interrupted FCR last fall; cyclosporin worked until it was discontinued. We're looking into next treatment steps...
any suggestions or guidance would be much appreciated!
any suggestions or guidance would be much appreciated!
LAinNYC
in
CLL Support
10 years ago
Low platelet count. How long before this recovers ?
However, my platelet count is now 68 and my consultant wants this to recover before my next
FCR
and has put me on Folic acid tablets. Does anyone know how long this might take ? I'm keen to get on with the treatment, feel well, played tennis yesterday and don't feel like a 75 year old ! David.
However, my platelet count is now 68 and my consultant wants this to recover before my next
FCR
and has put me on Folic acid tablets. Does anyone know how long this might take ? I'm keen to get on with the treatment, feel well, played tennis yesterday and don't feel like a 75 year old ! David.
Haileybury
in
CLL Support
10 years ago
Who's on what anti-sickness drugs?
Hi guys, I have just finished
FCR
chemo 4 of 6. Every chemo has knocked me sideways on the 5 days i take "c+r" but the sickness has just got worse and worse.
Hi guys, I have just finished
FCR
chemo 4 of 6. Every chemo has knocked me sideways on the 5 days i take "c+r" but the sickness has just got worse and worse.
grizzlebear
in
CLL Support
10 years ago
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