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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Half Sinemet CR
I have only been taking meds for 3 months, Sinemet x 3 low dose. Worked wonders for lifting my energy level, removing anxiety and helping with rigidity and had no more freezing. Now neurologist feels I could benefit from adding Half Sinemet CR at night to help with minor tremor (whole of right hand side
I have only been taking meds for 3 months, Sinemet x 3 low dose. Worked wonders for lifting my energy level, removing anxiety and helping with rigidity and had no more freezing. Now neurologist feels I could benefit from adding Half Sinemet CR at night to help with minor tremor (whole of right hand side
Jeansm
in
Cure Parkinson's
8 years ago
So the party is just about to start!
Just to let you all know that after my appointment in Tuesday I begin
FCR
on Friday....tomorrow!! I was initially elated as previously have gone through the process to start chemo and then it's been decided to keep me on W&W .
Just to let you all know that after my appointment in Tuesday I begin
FCR
on Friday....tomorrow!! I was initially elated as previously have gone through the process to start chemo and then it's been decided to keep me on W&W .
Bethan49
in
CLL Support
8 years ago
MY SENSE OF HUMOUR TOOK TO ITS HEELS AND RAN AS FAST AS IT COULD!!!!
Well last Friday was th first round of
FCR
. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine.
Well last Friday was th first round of
FCR
. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine.
Bethan49
in
CLL Support
8 years ago
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TRIAL OR NOT TO TRIAL, THAT IS THE QUESTION?????
I have read so many positive things about
FCR
that now I feel uncertain about a trail. The other issue is we live at least two hours drive from the nearest hospital that will be taking part in the trial. What advice can you all give me?
I have read so many positive things about
FCR
that now I feel uncertain about a trail. The other issue is we live at least two hours drive from the nearest hospital that will be taking part in the trial. What advice can you all give me?
Bethan49
in
CLL Support
8 years ago
Severe pain so may have to stop Ibrutinib
FCR
I guess....unless I qualify for another trial...Feeling very fed up.
FCR
I guess....unless I qualify for another trial...Feeling very fed up.
romarin
in
CLL Support
8 years ago
So it looks like the roller coaster is about to begin...
Been given
fcr
info....so it begins... Part of me is relieved as I feel pretty rotten but there is the fear of the unknown. Any advice about anything please share!!!!
Been given
fcr
info....so it begins... Part of me is relieved as I feel pretty rotten but there is the fear of the unknown. Any advice about anything please share!!!!
Bethan49
in
CLL Support
8 years ago
New to this world of CLL
I had my first
FCR
treatment May 4-5...Am getting ready for the 2nd round June 1-3. I got terribly sick after the 1st round... Was given Zofran during the treatments. I ended up in ER for fluids. With this next round, they are changing the nausea meds.
I had my first
FCR
treatment May 4-5...Am getting ready for the 2nd round June 1-3. I got terribly sick after the 1st round... Was given Zofran during the treatments. I ended up in ER for fluids. With this next round, they are changing the nausea meds.
Jonidleo
in
CLL Support
8 years ago
FCR Rounds 5-6
Hi All, Having completed 4 rounds of
FCR
on the FLAIR trial I unfortunately been hospitalised on the last 2 occasions(rounds 3+4) with some some form of unspecified infection, temperature 38.2 on admission and subsequent blood results showing neutrophils at 0.2-0.4 on both admissions.
Hi All, Having completed 4 rounds of
FCR
on the FLAIR trial I unfortunately been hospitalised on the last 2 occasions(rounds 3+4) with some some form of unspecified infection, temperature 38.2 on admission and subsequent blood results showing neutrophils at 0.2-0.4 on both admissions.
jackhammer
in
CLL Support
8 years ago
Clinic Trail Decision: FCR vs. Ibrutinib/Rituximab
What criteria have others used to decide whether to participate in a trial; and/or to go with the
FCR
course of treatment. The idea of taking pills (Ibrutinib) for an unknown amount of time is not very appealing.
What criteria have others used to decide whether to participate in a trial; and/or to go with the
FCR
course of treatment. The idea of taking pills (Ibrutinib) for an unknown amount of time is not very appealing.
FarmerGirl00
in
CLL Support
8 years ago
Under 50 and had FCR?
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
Mnance
in
CLL Support
8 years ago
5 vs 6 rounds of FCR
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Mnance
in
CLL Support
8 years ago
My success with Imbruvica (ibrutinib
He immediately started me on
FCR
, but after two treatments my count went to 675 and I had severe reactions. So, he switched to weekly infusions of Rituxan. The same week that Imbruvica was approved for treatment of CLL, he put me on it. I've been on it since early March.
He immediately started me on
FCR
, but after two treatments my count went to 675 and I had severe reactions. So, he switched to weekly infusions of Rituxan. The same week that Imbruvica was approved for treatment of CLL, he put me on it. I've been on it since early March.
ohiojim
in
CLL Support
8 years ago
I'm short of a wee bit of sympathy, just a little.
Greetings all, 2014 September finished six rounds of
FCR
good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Greetings all, 2014 September finished six rounds of
FCR
good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Bribin
in
CLL Support
8 years ago
confused with CD4 at check-up
Just been for my check up (2yrs post
fcr
) all blood readings around the normalish level and stable to where they have been. Then the consultant says the "however" bit, my CD4 and potassium have plummeted.
Just been for my check up (2yrs post
fcr
) all blood readings around the normalish level and stable to where they have been. Then the consultant says the "however" bit, my CD4 and potassium have plummeted.
grizzlebear
in
CLL Support
8 years ago
weekly transfusions going on 4 months
My husband has CLL, just out of a 4 year remission post-
FCR
. His hemoglobin dropped in January to 8.5, has gone as low as 6.4 (for which he was hospitalized). He got 2 rounds of B+R, which shrunk his nodes right away but hgb remains hovering between 7-8, requiring weekly transfusions.
My husband has CLL, just out of a 4 year remission post-
FCR
. His hemoglobin dropped in January to 8.5, has gone as low as 6.4 (for which he was hospitalized). He got 2 rounds of B+R, which shrunk his nodes right away but hgb remains hovering between 7-8, requiring weekly transfusions.
Cathrun
in
CLL Support
8 years ago
Want to Hear From a Man Who Has Lived With CLL for 38 Years? Read Doyle's Story Here!
About 10 years ago I received Rutuxin, 2 courses, and about 5 years ago I received
FCR
via MDA protocol. Currently living in FL and being followed by Dr Chanan-Khan at Mayo, in Jacksonville. Still hanging in. Guessing if/when needed, I may see Ibrutinib.
About 10 years ago I received Rutuxin, 2 courses, and about 5 years ago I received
FCR
via MDA protocol. Currently living in FL and being followed by Dr Chanan-Khan at Mayo, in Jacksonville. Still hanging in. Guessing if/when needed, I may see Ibrutinib.
aking90
in
CLL America Support
8 years ago
Update before starting 2nd FCR treatment v
Today I start round 2 of
FCR
and feeling little apprehensive but reassured I will be monitored very closely. Xx
Today I start round 2 of
FCR
and feeling little apprehensive but reassured I will be monitored very closely. Xx
Louiej
in
CLL Support
8 years ago
Hot flushes
I had some chemotherapy (
FCR
) last year and now my bloods are improving all the time. The thing that reminds me that I've still got Cll is the hot flushes. Nobody ever seems to to have heard of hot flushes except as a symptom of the menopause which I'm sure mine is not.
I had some chemotherapy (
FCR
) last year and now my bloods are improving all the time. The thing that reminds me that I've still got Cll is the hot flushes. Nobody ever seems to to have heard of hot flushes except as a symptom of the menopause which I'm sure mine is not.
snowdroprose
in
CLL Support
8 years ago
Transferring treatment to another country
I've been told today that I need to start
FCR
treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife and I are planning to move back to her home country of Denmark in April.
I've been told today that I need to start
FCR
treatment soon for my CLL. This will be my first treatment having been diagnosed in Nov 2011. Trouble is, my wife and I are planning to move back to her home country of Denmark in April.
bendintheroad1
in
CLL Support
8 years ago
Out of remission?
I was Dx with CLL in 2012. 4 rounds of
FCR
in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise like they did in the last three months I will be out of normal range.
I was Dx with CLL in 2012. 4 rounds of
FCR
in 2013. In remission for almost three years. But for the last year my blood numbers have been trending up. White count now 8.2, ACL 3. If they rise like they did in the last three months I will be out of normal range.
Bama-Girl
in
CLL Support
8 years ago
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