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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Holiday relief
First post on here but have been enjoying the discussions for a while. Based in the UK but had a holiday in Spain recently. Normally take 6 half-Sinemet CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every
First post on here but have been enjoying the discussions for a while. Based in the UK but had a holiday in Spain recently. Normally take 6 half-Sinemet CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every
buzbyc
in
Cure Parkinson's
6 years ago
Start FCR next week advice please
Starting
FCR
next week, any words of advice would be much appreciated! I plan to work during treatment,really do hope its not wishful thinking and I can do it need the money. I know everyone is different, is there anyone out there that pulled up ok after treatment or is it as scary as i think??
Starting
FCR
next week, any words of advice would be much appreciated! I plan to work during treatment,really do hope its not wishful thinking and I can do it need the money. I know everyone is different, is there anyone out there that pulled up ok after treatment or is it as scary as i think??
Shirty78
in
CLL Support
6 years ago
FCR treatment - anyone else had burning sensation in bowels?
Hi my partner as just started
FCR
treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning sensation in his bowel. Hi this caused by treatment [i] [/i] [i]Title changed for easier search access - Admin[/i]
Hi my partner as just started
FCR
treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning sensation in his bowel. Hi this caused by treatment [i] [/i] [i]Title changed for easier search access - Admin[/i]
Angus1953
in
CLL Support
6 years ago
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A little news to share ....
Two years ago today I began
FCR
. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've been busy at work, booked a holiday and feel very grateful for the poison that , so far so good, did a decent job.
Two years ago today I began
FCR
. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've been busy at work, booked a holiday and feel very grateful for the poison that , so far so good, did a decent job.
Bethan49
in
CLL Support
6 years ago
Anyone taking Madopar cr?
I was do 2013, resisted meds until now. I'm beginning to think I need to take it. Has anyone taken MadaparCR? This is what my neurologist recommend. Does anyone have any experience of this drug? Thank you.
I was do 2013, resisted meds until now. I'm beginning to think I need to take it. Has anyone taken MadaparCR? This is what my neurologist recommend. Does anyone have any experience of this drug? Thank you.
Nutbeam
in
Cure Parkinson's
6 years ago
Ibrutinib and NHSE current position.
I have already gone through first line treatment with
FCR
. After the third treatment i was hospitalised for 3 days as o had a reaction. Fortunately through good care I was able to continue. However, I was so ill after the 5th treatment i could not continue.
I have already gone through first line treatment with
FCR
. After the third treatment i was hospitalised for 3 days as o had a reaction. Fortunately through good care I was able to continue. However, I was so ill after the 5th treatment i could not continue.
Mick491
in
CLL Support
6 years ago
FCR-12 months on.
Finished 6 cycles of
FCR
June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a full time job but struggling to cope Anyone out there experiencing this? Thanks in advance, Robbie
Finished 6 cycles of
FCR
June 2017 and bloods are all great. Am 51 an feel severely fatigued. Is this normal? I have a full time job but struggling to cope Anyone out there experiencing this? Thanks in advance, Robbie
rsw147
in
CLL Support
6 years ago
Neutrophils level
Hi guys my husbands
FCR
treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Hi guys my husbands
FCR
treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Sailormoon11
in
CLL Support
6 years ago
Race for life - for all of you
And that I could die during my soon to come
FCR
! I choose not to let this drag me down. I’m living today and today was for every and each one of you. Loads of love Flabal
And that I could die during my soon to come
FCR
! I choose not to let this drag me down. I’m living today and today was for every and each one of you. Loads of love Flabal
Flabal
in
CLL Support
6 years ago
Just Finished my First Round FCR!
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
GMa27
in
CLL Support
6 years ago
CLL: FLAIR Trial site list and update to design
We have now recruited the number of patients we need to assess the original comparison of
FCR
+ IR. We had planned to continue either IR or I into the final stage of the trial alongside
FCR
and I+V.
We have now recruited the number of patients we need to assess the original comparison of
FCR
+ IR. We had planned to continue either IR or I into the final stage of the trial alongside
FCR
and I+V.
AdrianUK
in
Leukaemia Support
6 years ago
Manuka Honey
Or any ideas as how to get levels up as it’s delaying 2nd round
FCR
for my husband
Or any ideas as how to get levels up as it’s delaying 2nd round
FCR
for my husband
Sailormoon11
in
CLL Support
6 years ago
Medical update
We discussed having
FCR
but he's against that for a number of reasons. The plan is to get me through to August when there maybe a new trial of a combination of drugs one of which is Ibrutinib. So I am to continue with this trio of drugs.
We discussed having
FCR
but he's against that for a number of reasons. The plan is to get me through to August when there maybe a new trial of a combination of drugs one of which is Ibrutinib. So I am to continue with this trio of drugs.
Mick491
in
CLL Support
6 years ago
Cold
Hi guys I think I’m taking a cold or something how can I help to try and save giving this to my husband who’s having
FCR
treatment ???
Hi guys I think I’m taking a cold or something how can I help to try and save giving this to my husband who’s having
FCR
treatment ???
Sailormoon11
in
CLL Support
6 years ago
CLL treatment and hair loss
Hi everyone I am about to start treatment for CLL soon and most probably the treatment will be
FCR
meaning a mix of chemotherapy, are am I going to lose my hair? Can anyone share his/her experience with me, thanks. Firas
Hi everyone I am about to start treatment for CLL soon and most probably the treatment will be
FCR
meaning a mix of chemotherapy, are am I going to lose my hair? Can anyone share his/her experience with me, thanks. Firas
Nour80Leen2011
in
CLL Support
6 years ago
what happens after treatment of CLL ?
After treatment of CLL through
FCR
and getting into remission hopefully, how will the life of the CLL patient be, I mean do I have to do regular tests yearly or every 3 months to check if CLL is gone or came back, can anyone shed the light on this issue please, thanks. Firas
After treatment of CLL through
FCR
and getting into remission hopefully, how will the life of the CLL patient be, I mean do I have to do regular tests yearly or every 3 months to check if CLL is gone or came back, can anyone shed the light on this issue please, thanks. Firas
Nour80Leen2011
in
CLL Support
6 years ago
** NHSE and NICE Ibrutinib update **
He will be talking about his CLL and the fight to get the right treatment, Ibrutinib, following his relapse after
FCR
treatment. This battle is not over, there is a lot going on and more people are getting involved. This is an unlocked post.
He will be talking about his CLL and the fight to get the right treatment, Ibrutinib, following his relapse after
FCR
treatment. This battle is not over, there is a lot going on and more people are getting involved. This is an unlocked post.
Jm954
Administrator
in
CLL Support
6 years ago
Yet another side effect after FCR
It’s 3 weeks since first
FCR
. The antibiotics i’m taking list a rash as a possible side effect. Has anyone else suffered this? No raised welts, just an annoying mildly itchy unattractive rash. 🙁
It’s 3 weeks since first
FCR
. The antibiotics i’m taking list a rash as a possible side effect. Has anyone else suffered this? No raised welts, just an annoying mildly itchy unattractive rash. 🙁
Mandy56
in
CLL Support
6 years ago
Alcohol
Hi guys can anyone tell me if they had a few beers when on the
FCR
Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Hi guys can anyone tell me if they had a few beers when on the
FCR
Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Sailormoon11
in
CLL Support
6 years ago
Thoughts on CLL treatment and watch and wait
Why
FCR
may still be best for some patients? There’s a good reason we are still running a trial in the uk which compares
FCR
to ibrutinib alone or in combination: we don’t yet know what is best for everyone.
FCR
is chemo. But it is not as harsh as some chemo.
Why
FCR
may still be best for some patients? There’s a good reason we are still running a trial in the uk which compares
FCR
to ibrutinib alone or in combination: we don’t yet know what is best for everyone.
FCR
is chemo. But it is not as harsh as some chemo.
AdrianUK
in
CLL Support
6 years ago
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