CLL treatment and hair loss: Hi everyone I am... - CLL Support

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CLL treatment and hair loss

Nour80Leen2011 profile image
12 Replies

Hi everyone I am about to start treatment for CLL soon and most probably the treatment will be FCR meaning a mix of chemotherapy, are am I going to lose my hair? Can anyone share his/her experience with me, thanks.

Firas

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Nour80Leen2011 profile image
Nour80Leen2011
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12 Replies
rcknow profile image
rcknow

Hi. I had FCR over year ago and did not have hair loss, just some very minor thinning. I've heard that hair loss is generally not an issue with FCR. Good luck with everything!!

-Richard

Nour80Leen2011 profile image
Nour80Leen2011 in reply torcknow

Thanks a lot

Marie-54 profile image
Marie-54

I finished my FCR in February of this year and did not have hair loss. FCR does not cause hair loss in most CLL patients. So don't run out and dye your hair in weird colours expecting it to fall out, as it probably will not. It could happen, but I doubt it.

I asked this exact question about a month ago. Surprisingly the unanimous consensus was I won't lose my hair. Which is becoming a problem cause my wife keeps telling me I have to cut my mop head....but I dunno...I kinda am liking the mop look lately.

Link here healthunlocked.com/cllsuppo...

Scott

Still imitating a mop

thb4747 profile image
thb4747

Extremely unlikely. I’ve had 11 rounds of FCR over a 5-year period with no hair issues.

Nour80Leen2011 profile image
Nour80Leen2011 in reply tothb4747

Thanks dear but why 11 rounds your remission was short or what happened?

thb4747 profile image
thb4747

Four years in between. 5 rounds in 2008/9 and 6 in 2013 - the latter as much for AIHA as for CLL.

Nour80Leen2011 profile image
Nour80Leen2011 in reply tothb4747

Wish you the best and long remission

thb4747 profile image
thb4747 in reply toNour80Leen2011

Thank you. I hope your treatment goes well for you.

sunnycroft profile image
sunnycroft

Hi, My experience is similar to those above. Diagnosed age 41, FCR aged 44 - didn't lose hair but had some thinning. Good luck with treatment.

Nour80Leen2011 profile image
Nour80Leen2011 in reply tosunnycroft

Thanks a lot, kind regards

Nour80Leen2011 profile image
Nour80Leen2011 in reply tosunnycroft

Thanks for the reply, how long was your remission and how many sessions of FCR you took back in 2007, thanks

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