Search
Search
About
Log in
Join
Experiences with
Fampyra
Posts
Communities
74 public posts
Filter results
Starting Mavenclad Today
Edit: I have gone back and added in some details that I've remembered that might be helpful, so if you've read this in the past few days you may notice some changes. You are not crazy. A quick disclaimer: I'm sure everyone realizes that I may have made mistakes, and that recommendations for taking
Edit: I have gone back and added in some details that I've remembered that might be helpful, so if you've read this in the past few days you may notice some changes. You are not crazy. A quick disclaimer: I'm sure everyone realizes that I may have made mistakes, and that recommendations for taking
CatsandCars
in
My MSAA Community
25 days ago
Walking Speed
I know our bodies are different, but we all have something in common. Has anyone done or tried something besides ampyra that increased the speed that you walk? I've tried ampyra, dysport and I'm still moving like a turtle. My legs still feel very heavy! I'm still hoping to be walking normal again!
I know our bodies are different, but we all have something in common. Has anyone done or tried something besides ampyra that increased the speed that you walk? I've tried ampyra, dysport and I'm still moving like a turtle. My legs still feel very heavy! I'm still hoping to be walking normal again!
Diva1976
in
My MSAA Community
6 months ago
No more spaghetti or jelly legs!
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
I recently posted a question just prior to my neurology visit about my gate being off and got some really good answers however after visiting my neurologist I was put on a medication called ampyra. You have to get it from a specialty pharmacy and my copay is 47$ a month but it is ms specific. It takes
Mark1499
in
My MSAA Community
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Ampyra
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
whwiechm
in
My MSAA Community
1 year ago
paradoxical dalfampridine/Ampyra effects?
so I took my first doses yesterday, felt like I was moving faster, my balance was significantly affected but I slept really well 👍 and then today, I was very lethargic and my balance and spasticity were horrible. (Not likely a relapse because I haven’t had a relapse x the 1980s and after skipping 1
so I took my first doses yesterday, felt like I was moving faster, my balance was significantly affected but I slept really well 👍 and then today, I was very lethargic and my balance and spasticity were horrible. (Not likely a relapse because I haven’t had a relapse x the 1980s and after skipping 1
erash
in
My MSAA Community
1 year ago
???s @ dalfampridine/Ampyra
saw Neuro yesterday. She’s prescribing Ampyra. I’m hopeful 🤞 but wondered what others experiences were? What benefits, side effects? Insomnia? Thanks! 😊
saw Neuro yesterday. She’s prescribing Ampyra. I’m hopeful 🤞 but wondered what others experiences were? What benefits, side effects? Insomnia? Thanks! 😊
erash
in
My MSAA Community
1 year ago
Gratitude
Hey MS friends, i want to start by saying i have a lot to be grateful for. And some days are better than others. Today i forgot to take my ampyra/dalfampridine until the afternoon so i was stiff like a board in the morning. so here i am trying to find the good in life. Feel free to share what you're
Hey MS friends, i want to start by saying i have a lot to be grateful for. And some days are better than others. Today i forgot to take my ampyra/dalfampridine until the afternoon so i was stiff like a board in the morning. so here i am trying to find the good in life. Feel free to share what you're
Sandydemop
in
My MSAA Community
2 years ago
Dalfampridine or Ampyra
hi group! i could use some support around this issue. My insurance refuses to pay for this mediclne anymore so it will have to be appealed. I think/believe it is retribution because they had to pay for my mavenclad (we won the appeal) am i being paranoid? Anybody have a stash of Ampyra you're not using
hi group! i could use some support around this issue. My insurance refuses to pay for this mediclne anymore so it will have to be appealed. I think/believe it is retribution because they had to pay for my mavenclad (we won the appeal) am i being paranoid? Anybody have a stash of Ampyra you're not using
Sandydemop
in
My MSAA Community
2 years ago
Day 27/31
Hi All, In the US, March is MS Awareness month. I plan to spend this month in prayer, over myself - yes, and for all who are affected by MS. If you don't believe in a higher power, please be respectful and move on from these posts. But if you would like to, please read and join in with me in lifting
Hi All, In the US, March is MS Awareness month. I plan to spend this month in prayer, over myself - yes, and for all who are affected by MS. If you don't believe in a higher power, please be respectful and move on from these posts. But if you would like to, please read and join in with me in lifting
hopeandgrace
in
My MSAA Community
3 years ago
fampyra order
can you tell me please where i can buy
fampyra
except mod4all that i made an order before two weeks and there is no response?
can you tell me please where i can buy
fampyra
except mod4all that i made an order before two weeks and there is no response?
gk5700
in
AMN EASIER
3 years ago
We are cured, again (again)
It was on the website, myelin.org (now defunct), that I first learned about Sobetrirome and it's role in upregulating ABCD2. I believe myelin.org was run by Lorenzo Odone's parents. It was there that I first read about Ampyra as well. But, I digress. It was originally envisaged that sobetirome
It was on the website, myelin.org (now defunct), that I first learned about Sobetrirome and it's role in upregulating ABCD2. I believe myelin.org was run by Lorenzo Odone's parents. It was there that I first read about Ampyra as well. But, I digress. It was originally envisaged that sobetirome
monkeybus
in
AMN EASIER
4 years ago
Approved for generic Ampyra.
Starting the generic of Ampyra on Monday. GoodRx was a HUGE help in getting the cost very reasonable. For the ones on it, when did you notice any changes?
Starting the generic of Ampyra on Monday. GoodRx was a HUGE help in getting the cost very reasonable. For the ones on it, when did you notice any changes?
Coslet
in
AMN EASIER
4 years ago
Ampyra?
Who’s tried it and how have the results been?
Who’s tried it and how have the results been?
Coslet
in
AMN EASIER
4 years ago
Relapsing and a positive attitude
Hi MSers, I hope you who are reading this are feeling as good as possible. Me, not so much. Last night i forgot my Ampyra and am having trouble getting around inside today. I believe i am having a flare up. Yes, i have an appointment with my neurologist. Yes, I exercise every day, drink water, take acupuncture
Hi MSers, I hope you who are reading this are feeling as good as possible. Me, not so much. Last night i forgot my Ampyra and am having trouble getting around inside today. I believe i am having a flare up. Yes, i have an appointment with my neurologist. Yes, I exercise every day, drink water, take acupuncture
Sandydemop
in
My MSAA Community
4 years ago
Ampyra
I would say it’s always a good idea to check with your neurologist before ever switching the duration. If it says every 12 hours, then their may be a great reason why. Also, I have learned to check data from a website and not to just assume it’s accurate. Thank you so much everyone .
I would say it’s always a good idea to check with your neurologist before ever switching the duration. If it says every 12 hours, then their may be a great reason why. Also, I have learned to check data from a website and not to just assume it’s accurate. Thank you so much everyone .
positiveness
in
My MSAA Community
4 years ago
Is it more optimal to take Ampyra every 8 hours instead of 12?
Hi everyone! I have been taking Ampyra for about ten years every 12 hours, but I see now by reading an article that it may be optimal to take the medication every 8 hours. Does anyone take this medication like this and do you see benefits?
Hi everyone! I have been taking Ampyra for about ten years every 12 hours, but I see now by reading an article that it may be optimal to take the medication every 8 hours. Does anyone take this medication like this and do you see benefits?
positiveness
in
My MSAA Community
4 years ago
Ampyra Positive effect
I’ve taken ampyra 5 days now and when i walked with my husband yesterday and our dogs he (husband) said it looked like my foot was dragging less!! It was still hard to walk right but i started noticing that it was easier to walk without foot drop! Im sure my shoes appreciate that too 😁 When my alarm
I’ve taken ampyra 5 days now and when i walked with my husband yesterday and our dogs he (husband) said it looked like my foot was dragging less!! It was still hard to walk right but i started noticing that it was easier to walk without foot drop! Im sure my shoes appreciate that too 😁 When my alarm
Neworleanslady
in
My MSAA Community
4 years ago
Another question about ampyra
Does anyone think generic ampyra works just as well for them as name brand?
Does anyone think generic ampyra works just as well for them as name brand?
Neworleanslady
in
My MSAA Community
4 years ago
1st dose
Just took my 1st ampyra pill
Just took my 1st ampyra pill
Neworleanslady
in
My MSAA Community
4 years ago
Ampyra
Does anyone take ampyra? How is it?
Does anyone take ampyra? How is it?
Neworleanslady
in
My MSAA Community
4 years ago
1
2
...
4
Next page
Filter results
Clear filters
Posted in
All communities
My MSAA Community
61 results
AMN EASIER
10 results
Lung Conditions Community Forum
1 result
View top 10 communities
Sort by
Most Relevant
Newest