Ampyra: Does anyone take ampyra? How is it? - My MSAA Community

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Ampyra

Neworleanslady profile image
14 Replies

Does anyone take ampyra? How is it?

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Neworleanslady profile image
Neworleanslady
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14 Replies
mrsmike profile image
mrsmike

I take Ampyra, it has helped me since I have drop foot. I do know it doesn't help everyone. You have to try it and judge for yourself.

Neworleanslady profile image
Neworleanslady in reply to mrsmike

Thank you. Im about to start it

Kenu profile image
Kenu

I tried it about ten years ago and didn’t help any 😔. Ken 🐾🐾

carolek572 profile image
carolek572CommunityAmbassador

I tried it about 7 years ago, and it didn’t work as well as I thought that it would. My neurologist told me that it has a 22% chance of working so she wasn’t surprised that it wasn’t effective on me. Just remember, Neworleanslady , it addresses the symptoms of walking with difficulty, but it doesn’t fix the cause. :-D

Neworleanslady profile image
Neworleanslady in reply to carolek572

If it helps with this walking symptom I’ll be thrilled until somebody somewhere comes up with a cure for the cause! Thanks for your reply!!

starlight5 profile image
starlight5

I started it this year. After a few weeks, I felt it was helping. Not as much anymore. That may be because of progression? I would have to stop taking it to see if it makes a difference.

Neworleanslady profile image
Neworleanslady in reply to starlight5

ok thanls. My doc told me that may happen. that some people found that they didn’t notice how much it was helping until they missed a dose

Nana5B profile image
Nana5B

Yes, I’ve taken it since it became available. It helps me tremendously with my foot drop. I can definitely tell if I miss a dose.

1575 profile image
1575

I have been taking ampyra or now the generic for years as usual it effects each person differently the drug helps me dramaticly in the morning helping with spaticity with my legs like every other MS drug my neurologist has prescribed some have helped and some have not but ampyra has certainly helped me.

Ohmywhynot profile image
Ohmywhynot

I took it for several years after it came out. I really never noticed a difference. I quit a year ago or so, mostly due to high cost, even though my copay was covered by patient assistance, lack of noticeable improvement also a factor. But everyone is different, I wish the best for you, good luck! 🥰

Neworleanslady profile image
Neworleanslady

Thank you for those replies!

rjoneslaw profile image
rjoneslaw

I take but the key is you must practice your walking as well

Neworleanslady profile image
Neworleanslady in reply to rjoneslaw

I do notice improvement when im walking regularly

rjoneslaw profile image
rjoneslaw in reply to Neworleanslady

the more you walk and build strength the better your gait

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