Relapsing and a positive attitude - My MSAA Community

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Relapsing and a positive attitude

Sandydemop profile image
31 Replies

Hi MSers,

I hope you who are reading this are feeling as good as possible. Me, not so much. Last night i forgot my Ampyra and am having trouble getting around inside today. I believe i am having a flare up. Yes, i have an appointment with my neurologist. Yes, I exercise every day, drink water, take acupuncture 2x/week, take chinese herbs, eat anti-inflammatory and had a recent MRI which showed no change. What I really need is prayer. Yours and mine. My attitude is very irritable when I can't walk properly. I need to stay positive but that is a big struggle for me. Thanks in advance for your help. Warmly, Sandy

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Sandydemop profile image
Sandydemop
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31 Replies
Boxofchocolates profile image
Boxofchocolates

Prayers coming your way sandydemop! Sometimes no matter how much we do with exercise, diet, water, medicine, Acupunture....sometimes MS just kicks us anyway. It's not your fault!

Hoping you feel better soon.

Sandydemop profile image
Sandydemop in reply to Boxofchocolates

thanks Boxofchocolates for the prayers. Sometimes MS just kicks us no matter what.

jimeka profile image
jimeka

It sounds as though you are doing everything to help yourself, but unfortunately I have found that ms has a mind of its own. Hang in there you’re doing great 🤗🙏

Sandydemop profile image
Sandydemop in reply to jimeka

Hi jimeka thanks for the prayers. I always love and admire your positive attitude.

Sandydemop profile image
Sandydemop in reply to Sandydemop

How do you do it?

Coffee69 profile image
Coffee69

Right there with you it sucks to wake and not have your limbs working... MS a gift that keeps on giving...I am sending light and love your way and praying that you regain your base line of mobility back. ❤️🌟❤️

Sandydemop profile image
Sandydemop

Hi Coffee69 Appreciating the warm thoughts and prayers. Unfortunately you can relate. Thanks again. I will never take walking for granted again. It's on my gratitude list every day.

Coffee69 profile image
Coffee69 in reply to Sandydemop

Mine too... though some days I would appreciate a wheel chair to lesson the pain. Keep on keeping on... with grace and ease love with grace and ease🌟

Sandydemop profile image
Sandydemop in reply to Coffee69

sounds good. Grace and ease. I am dreading the day I need a wheel chair but it is necessary in some cases. Wish you well. Can you get one from the MS society?

in reply to Sandydemop

Have you tried PT?

I am starting Monday, to see if it helps.

in reply to

Prayers 🙏 dear

Sandydemop profile image
Sandydemop in reply to

It will help

Sandydemop profile image
Sandydemop in reply to

Thanks.

Sandydemop profile image
Sandydemop in reply to

PT is great. I feel stronger after 8 sessions.

Tulip77 profile image
Tulip77

Praying

Sandydemop profile image
Sandydemop in reply to Tulip77

Thanks Tulip77 for keeping me in your prayers. Prayer works.

in reply to Sandydemop

Yes, prayers work

Disneycde profile image
Disneycde

Sending thoughts and prayers

Amore55 profile image
Amore55

I understand how you feel about the wheelchair situation. I finally had to break down and get an electric one, as I am no longer strong enough to push a regular one. It has been like magic during the bad part of my days! I only use when I feel completely unable to move. But my goodness, it is wonderful! So, if you ever need one, please do not be ashamed. It CAN be part of this for some, but not all. You are in my prayers. Love, Kelly

Sandydemop profile image
Sandydemop in reply to Amore55

Thanks Kelly, I was just talking to someone today about this. Not being "confined" to a wheel chair but being able to get around more.

2littletime profile image
2littletime

Prayers coming your way. Hang in there...🙏🙏🙏🙏🌹

Sandydemop profile image
Sandydemop in reply to 2littletime

Thanks very much

falalalala profile image
falalalala

Will do :)

Sandydemop profile image
Sandydemop in reply to falalalala

:)

twooldcrows profile image
twooldcrows

this is the pits and we all have been here ourselves ...don't give up ...stay strong...prayers for help ...love and much happiness...hang stuff...

twooldcrows profile image
twooldcrows

sorry about that it was to say stay strong...we are all here for you ...laugh smile and more laughs ...

Sandydemop profile image
Sandydemop in reply to twooldcrows

thanks twooldcrows for the laughter. We could all use some more of that.

rjoneslaw profile image
rjoneslaw

Wow I wish I had known this sooner when I dm'd u

I hope things worked out

Sandydemop profile image
Sandydemop in reply to rjoneslaw

Hi rjoneslaw just seeing this now. things are working out the way they are supposed to. I have to make peace with it. thanks, Sandy

cindyrn68 profile image
cindyrn68

🙏🏼🙏🏼🙏🏼

Sandydemop profile image
Sandydemop in reply to cindyrn68

thanks cindyrn68 for your good wishes and prayers. sending love back at ya.

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