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Fabry disease
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AF - a wide range of different varieties?
I’m new to the Forum and wonder if my “type” of AF is common. I have several friends who have AF and they all seem to have different types. I am a fit 71 year old - playing sport several times a week. When I have an AF episode I usually can’t feel anything- I only became aware of my AF because of
I’m new to the Forum and wonder if my “type” of AF is common. I have several friends who have AF and they all seem to have different types. I am a fit 71 year old - playing sport several times a week. When I have an AF episode I usually can’t feel anything- I only became aware of my AF because of
Vernasca
in
Atrial Fibrillation Support
1 month ago
Reducing bisoprolol
After an ablation in early April I went into symptomatic AF after two days but have since had a successful cardioversion. I remain in NSR and on advice from the arrhythmia nurse have reduced my bisprolol from 5mg to 2.5 mg daily. I'm a week into the lower dose. My heart rate has increased, which doesn't
After an ablation in early April I went into symptomatic AF after two days but have since had a successful cardioversion. I remain in NSR and on advice from the arrhythmia nurse have reduced my bisprolol from 5mg to 2.5 mg daily. I'm a week into the lower dose. My heart rate has increased, which doesn't
JoDogBlue
in
Atrial Fibrillation Support
1 month ago
My anxiety
last year I have started smoking but noticed some changes in mouth doctor told me its smokers palate and immediately i switched smoking but now its been 1 month i feel very anxious that may be something is wrong with me i am feeling rough patches in my cheecks skin while touching with tongue and also
last year I have started smoking but noticed some changes in mouth doctor told me its smokers palate and immediately i switched smoking but now its been 1 month i feel very anxious that may be something is wrong with me i am feeling rough patches in my cheecks skin while touching with tongue and also
Curious_brat
in
Anxiety Support
6 months ago
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GP wants to put me on statins but reluctant to take due to underactive thyroid and liver issues
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
hi - I have an underactive thyroid / hashimotos. I’m on 100mg of Levothyroxine my latest results are TSH 0.034 FREE T3 4.6 FREE THYROXINE 17.7 My GP wanted to reduce my thyroxine but I actually feel good at the moment so he’s agreed to keep it at 100mg only after a bit of arguing and having
Fergus883782
in
Thyroid UK
3 months ago
Bisacodyl has been prescribed for me
I’ve been on laxido for constipation for the last two years or so. At first it was ok with very little side effects. However, recently over the last few months I’ve been suffering from bloating, trapped wind and excess gas which are side effects of laxido. I met with my gastroenterologist today and
I’ve been on laxido for constipation for the last two years or so. At first it was ok with very little side effects. However, recently over the last few months I’ve been suffering from bloating, trapped wind and excess gas which are side effects of laxido. I met with my gastroenterologist today and
Profound15
in
IBS Network
2 months ago
Change proposed to medication for epilepsy
I have asked for my Tegratol medication for epilepsy to be changed to something else as it interferes with use of simpler blood thinners. I am currently on Tegratol 200mg twice daily, 9mg warfarin and 10 mg Bisoprolol daily. It was also suggested I start on digoxin although my heart rate has not been
I have asked for my Tegratol medication for epilepsy to be changed to something else as it interferes with use of simpler blood thinners. I am currently on Tegratol 200mg twice daily, 9mg warfarin and 10 mg Bisoprolol daily. It was also suggested I start on digoxin although my heart rate has not been
Fannyphasbees
in
Atrial Fibrillation Support
2 months ago
Do you or someone you know have Atrial Fibrillation?
Atrial fibrillation is the most common arrhythmia affecting many individuals worldwide. AF can increase the risk of stroke. The irregular heart rhythm causes the blood to pool and this may cause a blood clot to form in the heart chambers which can then be carried to the small blood vessels in the brain
Atrial fibrillation is the most common arrhythmia affecting many individuals worldwide. AF can increase the risk of stroke. The irregular heart rhythm causes the blood to pool and this may cause a blood clot to form in the heart chambers which can then be carried to the small blood vessels in the brain
SamAdmin
Administrator
in
Atrial Fibrillation Support
2 months ago
Discoid lupus help please!
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Hello, I've posted before whilst waiting for dermatology appointment this June for suspected discoid lupus. My initial "thing" was a small scaley patch on my eyebrow, which isn't typical looking of discoid lupus and only came up following biopsy. Well now I have a rather bigger "thing" come up on my
Nome11
in
LUPUS UK
3 months ago
Another Update
Well following previous posts and still no results from Holter monitoring had letter from Cardiologist to say that due to misunderstanding I should be taking 100mcg of Losartan divided into two 50 in morning and 50 at night. I have only been taking 50 once a day as that’s what it looked like on the
Well following previous posts and still no results from Holter monitoring had letter from Cardiologist to say that due to misunderstanding I should be taking 100mcg of Losartan divided into two 50 in morning and 50 at night. I have only been taking 50 once a day as that’s what it looked like on the
JMF1
in
Atrial Fibrillation Support
2 months ago
default heart rate when in Afib?
Hi guys Long story short:third ablation failed in May. In between ablations (last 2 years) my afib has been permanent. Ive tried multiple drug combos but the only thing that makes my heart beat normally is an ablation. After latest failed I had a week’s reset after a public hospital cardioversion.
Hi guys Long story short:third ablation failed in May. In between ablations (last 2 years) my afib has been permanent. Ive tried multiple drug combos but the only thing that makes my heart beat normally is an ablation. After latest failed I had a week’s reset after a public hospital cardioversion.
swimminglove
in
Atrial Fibrillation Support
2 months ago
Coffee - links to autoimmune?
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
PAapr22
in
Pernicious Anaemia Society
3 months ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Help with vitamins
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
My ferritin and B12 keep going down despite the fact that I take supplements. Since being diagnosed with Hypothyroidism, Coeliac and SIBO they were steadily going up - I got my ferritin from 2 to 75, but in the last year it’s gone down to 39. My B12 is at 318 and was almost 500 a year ago. Does anyone
Flossiewestie2020
in
Thyroid UK
3 months ago
New experiences of diagnosis video for World Lupus Day
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
This World Lupus Day we're launching a new video with Khiry, Beth, and Maryann sharing their experiences of receiving a diagnosis of lupus. You can watch the video here: https://www.youtube.com/watch?v=7VxG2WbrsGI You can also read this blog article in which Khiry, Beth, and Maryann talk about their
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
Graves in couples
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
Kari55
in
Thyroid UK
6 months ago
loop recorder
I am being asked by an EP/ cardiologist to have them implant a loop recorder to monitor my heart for an extended period of time. This recorder will be recording continuous EKG readings that is transmitted to the treating cardiologist . It is expected that this will allow for better diagnosis and treatment
I am being asked by an EP/ cardiologist to have them implant a loop recorder to monitor my heart for an extended period of time. This recorder will be recording continuous EKG readings that is transmitted to the treating cardiologist . It is expected that this will allow for better diagnosis and treatment
execz1
in
Atrial Fibrillation Support
2 months ago
Article: Exciting time for biological use in Lupus
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
https://www.healio.com/news/rheumatology/20240425/exciting-time-biologic-use-in-moderate-to-severe-lupus-rose-45-since-2021?utm_source=selligent&utm_medium=email&utm_campaign=news
VeeWat
in
LUPUS UK
3 months ago
CAP score of 299, diagnosed with Cirrhosis
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
Carblover8
in
British Liver Trust
6 months ago
Ultrasound
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Chicob29
in
British Liver Trust
6 months ago
PET Brain Scans Find ‘Smoldering’ Inflammation in Multiple Sclerosis Patients
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
A new study from Brigham and Women’s Hospital suggests PET brain scans could reveal hidden inflammation in patients with multiple sclerosis (MS) who are being treated with highly effective treatments. The findings were published in Clinical Nuclear Medicine.
https://appliedradiology.com/Articles
BettysMom
in
My MSAA Community
3 months ago
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