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prostap3 and tibolone
I’m currently on prostap3 and tibolone hrt. On 2nd injection about mid way through the 10 weeks and I’ve felt so bad this week constant hot flushes day and worse at night( far worse than have been), bad headaches, feeling sick. Insomnia ( although had this since been on them) feel like I’m at the end
I’m currently on prostap3 and tibolone hrt. On 2nd injection about mid way through the 10 weeks and I’ve felt so bad this week constant hot flushes day and worse at night( far worse than have been), bad headaches, feeling sick. Insomnia ( although had this since been on them) feel like I’m at the end
nicbell24
in
Endometriosis UK
1 year ago
Dig the low, low, low, low, lowdown! PSA Update 💙
https://youtu.be/CWW6DRscQIc?si=61otmpzO3ugAJB0D 1.7 Woo Hoo😂🤙 The lowest PSA since 01/2018 @1.3 (552.2, 633, 840.2 in 2014) 39 chemos & 28 IMRT radiation sessions What a crazy 9 yr Rollercoaster Long Strange trip it's been 🤣 I ain't complaining Ain't Misbehavin, Stormy Weather on the
https://youtu.be/CWW6DRscQIc?si=61otmpzO3ugAJB0D 1.7 Woo Hoo😂🤙 The lowest PSA since 01/2018 @1.3 (552.2, 633, 840.2 in 2014) 39 chemos & 28 IMRT radiation sessions What a crazy 9 yr Rollercoaster Long Strange trip it's been 🤣 I ain't complaining Ain't Misbehavin, Stormy Weather on the
dockam
in
Advanced Prostate Cancer
3 months ago
Adjuvant ADT & duration
When studies refer to adjuvant ADT with radiation are they counting the length of time from the start of RT or the end of the RT course ? And as previously questioned I didn’t quite get the answer I was looking for. In research when they refer to 6, 12, 18, 24 or 36 months of ADT, are they counting
When studies refer to adjuvant ADT with radiation are they counting the length of time from the start of RT or the end of the RT course ? And as previously questioned I didn’t quite get the answer I was looking for. In research when they refer to 6, 12, 18, 24 or 36 months of ADT, are they counting
SimMartin
in
Advanced Prostate Cancer
6 months ago
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Virtual Reality Therapy Anyone?
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
Wtfisup
in
My MSAA Community
10 months ago
pain relief
my left knee is killing me with pain now and walking is proving difficult. I’ve a telephone appointment with my GP on Weds to see what I can get. Has anyone else been able to get reasonable pain relief whilst waiting for knee replacement op. I m only using nurofen at the moment and am conscious
my left knee is killing me with pain now and walking is proving difficult. I’ve a telephone appointment with my GP on Weds to see what I can get. Has anyone else been able to get reasonable pain relief whilst waiting for knee replacement op. I m only using nurofen at the moment and am conscious
TheBoys
in
NRAS
1 year ago
Quite happy with ADT
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
EBBEFLUT
in
Advanced Prostate Cancer
6 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
6 months ago
hip replacement surgery
PMR fall 2020. Tapering slowly. RA,prednisone, methotrexate, Simponi Aria & muscle spasms. Awaiting a hip replacement. Has anyone had one during this time of their life?
PMR fall 2020. Tapering slowly. RA,prednisone, methotrexate, Simponi Aria & muscle spasms. Awaiting a hip replacement. Has anyone had one during this time of their life?
Pass7
in
PMRGCAuk
1 year ago
Another useless Endo appointment - anti anxiety drugs are apparently the answer to chronic insomnia?!
Having waited a year for my follow up appointment, my t/con with the Endo was pointless. I have recently posted re 20 years of chronic insomnia, sorry I’m unsure how to tag that post. It included my blood test results. She claims waking at 1-2am is anxiety, and wants me to take anti anxiety drugs.
Having waited a year for my follow up appointment, my t/con with the Endo was pointless. I have recently posted re 20 years of chronic insomnia, sorry I’m unsure how to tag that post. It included my blood test results. She claims waking at 1-2am is anxiety, and wants me to take anti anxiety drugs.
CornishChick
in
Thyroid UK
1 year ago
Xtandi gap
Long story short, I'm on ADT & Xtandi and just retired this past summer. While employed I was fortunate enough to have no cost for this drug that my medical insurance was paying $13k/month for. When I retired I had a 3 month supply that'll take me through mid-November. But when I have refill it this
Long story short, I'm on ADT & Xtandi and just retired this past summer. While employed I was fortunate enough to have no cost for this drug that my medical insurance was paying $13k/month for. When I retired I had a 3 month supply that'll take me through mid-November. But when I have refill it this
shueswim
in
Advanced Prostate Cancer
6 months ago
next steps
hi, I have recently been diagnosed with grade 4 endo. I was today told even surgery won’t help and even if choose it it’s an 18 month wait and major surgery. One of the medical options is the analogue injections, potentially with hrt. Can anyone offer me any advice or experience from their own journeys
hi, I have recently been diagnosed with grade 4 endo. I was today told even surgery won’t help and even if choose it it’s an 18 month wait and major surgery. One of the medical options is the analogue injections, potentially with hrt. Can anyone offer me any advice or experience from their own journeys
KTe23
in
Endometriosis UK
1 year ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
6 months ago
Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
6 months ago
I am still struggling with treatment decisions - Help please.
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
Nordman
in
Advanced Prostate Cancer
3 months ago
Money! money! money!
Spending too much while depressed. Spoke with mental health professionals. They came up with HRT. If balancing me would cause me to spend less would be great but I don't think it will serriousluy help. Stepping back a little - ie not spending right away but waiting alittle was a very good suggestion
Spending too much while depressed. Spoke with mental health professionals. They came up with HRT. If balancing me would cause me to spend less would be great but I don't think it will serriousluy help. Stepping back a little - ie not spending right away but waiting alittle was a very good suggestion
Hidden
in
Mental Health Support
1 year ago
Helpful group
Hello All, This group has been very helpful in providing information and suggestions on PC. I was diagnosed in Sept. 23 as Stage 4, Gleason 7 with all core samples testing positive and one met to the sacrum. Just completed 28 rounds of IMRT and have been on Lupron, Xtandi and Zometa for the last two
Hello All, This group has been very helpful in providing information and suggestions on PC. I was diagnosed in Sept. 23 as Stage 4, Gleason 7 with all core samples testing positive and one met to the sacrum. Just completed 28 rounds of IMRT and have been on Lupron, Xtandi and Zometa for the last two
Jeffdanger
in
Advanced Prostate Cancer
3 months ago
knee replacement
Hi Anyone else has knee replacement and it’s made things worse?? My Mum had her op about 2 and a half years ago and she’s stu in pain The knee is very swollen and the skin is shiny and looks very tight It almost looks as though they’ve put too big a knee replacement in there ! Consultant not too helpful
Hi Anyone else has knee replacement and it’s made things worse?? My Mum had her op about 2 and a half years ago and she’s stu in pain The knee is very swollen and the skin is shiny and looks very tight It almost looks as though they’ve put too big a knee replacement in there ! Consultant not too helpful
LizDav2321
in
Arthritis Action
1 year ago
High Potassium Levels?
I am just curious if anyone has had elevated potassium levels during or after PC treatment? Specifically Radiation and ADT. Hubby has dangerously high potassium levels, he has kidney disease so this is something that is watched. We even log all of our food and the Nephrologist is baffled by it-he doesn
I am just curious if anyone has had elevated potassium levels during or after PC treatment? Specifically Radiation and ADT. Hubby has dangerously high potassium levels, he has kidney disease so this is something that is watched. We even log all of our food and the Nephrologist is baffled by it-he doesn
USAFproudmom
in
Fight Prostate Cancer
6 months ago
First BFN today 😢 - trying to decide on back to back or a break.
Although I was expecting the news, it was heartbreaking to hear the words "I'm sorry..." and have our suspicions confirmed that there was failed implantation.We are now faced with making a decision in quick time as our Dr has signed us off to start our next Frozen cycle as soon as I have the withdrawal
Although I was expecting the news, it was heartbreaking to hear the words "I'm sorry..." and have our suspicions confirmed that there was failed implantation.We are now faced with making a decision in quick time as our Dr has signed us off to start our next Frozen cycle as soon as I have the withdrawal
Minniemouse88
in
Fertility Network UK
1 year ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
10 months ago
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