Search
Search
About
Log in
Join
Experiences with
Enzyme Replacement Therapy
Posts
Communities
19,391 public posts
Filter results
Is ADT routinely given after prostatectomy
Trying to decide between prostatectomy and radiation (I understand if there was recurrence, I would have to do radiation and ADT) Is surgery the best chance to avoid ADT altogether Also, can anyone recommended a Surgeon at MD Anderson I also have urinary symptoms due to an enlarged prostate, I
Trying to decide between prostatectomy and radiation (I understand if there was recurrence, I would have to do radiation and ADT) Is surgery the best chance to avoid ADT altogether Also, can anyone recommended a Surgeon at MD Anderson I also have urinary symptoms due to an enlarged prostate, I
Vortex12
in
Prostate Cancer Network
6 months ago
A few new ideas in pipe line
According to news from my local paper live its been suggested that we do not need to shower daily by dermatologists which I am sure will please the local waterboard and those struggling with bill finances and most definitely for those of us who find this task exhausting due to health reasons.
According to news from my local paper live its been suggested that we do not need to shower daily by dermatologists which I am sure will please the local waterboard and those struggling with bill finances and most definitely for those of us who find this task exhausting due to health reasons.
katieoxo60
in
Lung Conditions Community Forum
1 year ago
Iron infusion error.
Hi all, Be extremely alert if you ever have to have an iron infusion as misplacement of the cannula can have severe consequences. In my case the needle didn’t fully enter the vein so the fluid dispersed around the tissue resulting in permanent staining which has made me look like an orangutan. Only
Hi all, Be extremely alert if you ever have to have an iron infusion as misplacement of the cannula can have severe consequences. In my case the needle didn’t fully enter the vein so the fluid dispersed around the tissue resulting in permanent staining which has made me look like an orangutan. Only
Mrbojangles
in
Lung Conditions Community Forum
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Dental Issues with Finesteride
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
fast_eddie
in
Advanced Prostate Cancer
6 months ago
Fostair hot flushes?
Newbie still, so lots of questions, sorry! I’m having lots of hot flushes - am taking Fostair 200/6 two puffs in am and pm. Are the meds affecting my HRT meds (anything I can do about that?) or is it just the steroid effect to add into the racing heart and shaking hands?
Newbie still, so lots of questions, sorry! I’m having lots of hot flushes - am taking Fostair 200/6 two puffs in am and pm. Are the meds affecting my HRT meds (anything I can do about that?) or is it just the steroid effect to add into the racing heart and shaking hands?
JAmanda
in
Lung Conditions Community Forum
1 year ago
Experiences of coming off zoladex or other long term hormonal treatments to conceive? Please help.
Hi there I am 31 and was diagnosed with severe stage 4 endometriosis at 17. I've been on zoladex for nearly the whole time since diagnosis add back HRT and regular bone scans. Despite zoladex I've had a lot of pain, and have had surgery 5 times and each time endo has been extensive, so although zoladex
Hi there I am 31 and was diagnosed with severe stage 4 endometriosis at 17. I've been on zoladex for nearly the whole time since diagnosis add back HRT and regular bone scans. Despite zoladex I've had a lot of pain, and have had surgery 5 times and each time endo has been extensive, so although zoladex
hcromps92
in
Endometriosis UK
1 year ago
Intermediate favorable vs. unfavorable Gleason 7 acc.to 2 doctors + CLEAN PSMA, do we need third opinion +where? (Green Bay/Milwaukee areas)
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
AliceinW57
in
Prostate Cancer Network
6 months ago
Should Perineural Invasion (PNI) change my Radiation Treatment Plan
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Hi everyone. A quick background. Age 59. Was diagnosed in Nov 2023 with Gleason 3+4=7 Intermediate Unfavorable (10 of 15 cores positive) and tumor in both side of prostate. PSA 5.9 Decipher .49 Bone Scan showed no metastasis Met with Multi Discipline team at Inova Schar Cancer Institute in Fairfax
Seminole0412
in
Advanced Prostate Cancer
6 months ago
Hot Flashes and Veozah
I am 19 months into my 2 years on ADT + Zytiga & P. 6 months into it, I started experiencing severe hot flashes. Severe = Full body sweats, dripping off my brow, palms wet and needing to mop it off my chest or change my shirt. Every 1 -2 hours. I tried 4 antidepressants that didn't work. I then
I am 19 months into my 2 years on ADT + Zytiga & P. 6 months into it, I started experiencing severe hot flashes. Severe = Full body sweats, dripping off my brow, palms wet and needing to mop it off my chest or change my shirt. Every 1 -2 hours. I tried 4 antidepressants that didn't work. I then
Huzzah1
in
Advanced Prostate Cancer
6 months ago
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels in patients with thyroid tumors
Yet another paper suggesting future research to back up their observation that adding LT3 was more effective! [i][/i] [i]
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels and tumor marker levels in patients with thyroid tumors
[/i]
Yet another paper suggesting future research to back up their observation that adding LT3 was more effective! [i][/i] [i]
Efficacy and safety of postoperative levothyroxine sodium tablets for improving serum thyroid hormone levels and tumor marker levels in patients with thyroid tumors
[/i]
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Prostate cancer treatment and sexual mutilation
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
Names of ADT and antiADT Drugs
I would like a simple list of the medical names and brand names of the various prostate hormone treatment drugs to keep them straight.
I would like a simple list of the medical names and brand names of the various prostate hormone treatment drugs to keep them straight.
Worked_the_World
in
Advanced Prostate Cancer
6 months ago
Back in permanent AF and warfarin dose decrease
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
MarkS
in
AF Association
6 months ago
ADT yes or no
My urologist has recommended ADT treatment followed by radiation. I am concerned about the ADT because of the side effects. What are the risks with radiation without ADT?
My urologist has recommended ADT treatment followed by radiation. I am concerned about the ADT because of the side effects. What are the risks with radiation without ADT?
MontanaMan
in
Advanced Prostate Cancer
6 months ago
booked in for full hysterectomy
hey I had a lap back in October and it looks like the endo has returned so I’m booked in for a total hysterectomy! I’m really scared about it all. How are you after yours? Has it changed you at all? I’ve already started hrt and get on really well with the oestrogel especially with less adhd symptoms
hey I had a lap back in October and it looks like the endo has returned so I’m booked in for a total hysterectomy! I’m really scared about it all. How are you after yours? Has it changed you at all? I’ve already started hrt and get on really well with the oestrogel especially with less adhd symptoms
AmyPeeps
in
Endometriosis UK
1 year ago
🔥 Hot Topic – Endometriosis and Menopause
Endometriosis UK Specialist Advisor Joanne Hanley is producing a series of short articles on topics that may be of interest to anyone with endometriosis. This time the 'Hot Topic' is endometriosis and the menopause Does endometriosis go away with the menopause? During the perimenopause and menopause
Endometriosis UK Specialist Advisor Joanne Hanley is producing a series of short articles on topics that may be of interest to anyone with endometriosis. This time the 'Hot Topic' is endometriosis and the menopause Does endometriosis go away with the menopause? During the perimenopause and menopause
Lynne_support
Endometriosis UK
in
Endometriosis UK
1 year ago
Will I ever get my son back?
My 5 year old son was diagnosed with ADHD and DMDD. He's angry and mean all the time. He didn't used to be this way; it started developing a few years ago and has gotten worse. We're trying now to find medication, none seem to work so far. He needs behavioral therapy but I can't afford it. He's so smart
My 5 year old son was diagnosed with ADHD and DMDD. He's angry and mean all the time. He didn't used to be this way; it started developing a few years ago and has gotten worse. We're trying now to find medication, none seem to work so far. He needs behavioral therapy but I can't afford it. He's so smart
redmama2
in
CHADD's ADHD Parents Together
10 months ago
LUNG CANCER TREATMENT SUPPORT
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
10 months ago
Has anyone ever had an Iron infusion?
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
doingitfordad
in
Thyroid UK
1 year ago
Orgovyx + Abiaterone?
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
Hope49823
in
Advanced Prostate Cancer
6 months ago
1
...
87
88
89
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4479 results
Thyroid UK
2469 results
Endometriosis UK
1869 results
View top 10 communities
Sort by
Most Relevant
Newest